rareLife solutions, 606 Post Road East, #397, Westport, CT (2026)

12/29/2025

As we step into this new chapter and look forward to a New Year, we’d like to share what inspires us about the RARE community:

R – Real voices
Elevating the expertise and experiences shared by patients, caregivers, and advocates.
A – Adaptive Science
Supporting approaches that evolve with the needs of the rare community.
R – Relationships
Building authentic partnerships grounded in trust and collaboration.
E – Equity
Championing access to knowledge, resources, and opportunities in rare.

In 2026, rareLife will continue to put patients, advocates, and caregivers at the heart of everything we do, deliver bold, innovative solutions, and improve the development and acceptance of life-changing treatments. Every idea, every action, every collaboration moves us closer to transforming the rare disease landscape—because for us, it’s personal.

12/23/2025

In rare, everything is different. Your scientific communications should be, too.
At rareLife solutions, the rare disease agency, we are more than scientists, writers, strategists, and creatives. We are also rare moms, caregivers, and carriers who develop content that educates, motivates, and drives meaningful change.
Learn more about how we can help you: www.rarelifesolutions.com

12/16/2025

Wishing our clients, friends, and colleagues a joyful holiday season. We celebrate the patients, advocates, and caregivers who inspire our work and look forward to delivering innovative solutions that make a difference in the year ahead.
from all of us at rareLife solutions!

12/11/2025

Great science deserves great storytelling. At rareLife, we design strategic, rare-customized slide decks that turn complex data into clear, compelling narratives. Because for us, it’s personal.
Learn more: www.rarelifesolutions.com

12/02/2025

In rare, everything is different. Your scientific communications should be, too.
At rareLife solutions, the rare disease agency, we are more than scientists, writers, strategists, and creatives. We are also rare moms, caregivers, and carriers who develop content that educates, motivates, and drives meaningful change.
Learn more about how we can help you: www.rarelifesolutions.com

11/27/2025

At rareLife, we are thankful for our family, friends, and the rare disease community that inspires us every day. We are grateful for the opportunity to support and improve the rare disease experience in collaboration with our clients and committed community partners.
This Thanksgiving, we wish you comfort, joy, and time to reflect on what truly matters most.

11/20/2025

Breakthroughs in rare disease start with a strong scientific foundation. At rareLife, we partner with medical affairs teams to build scientific platforms that capture the complexity of rare conditions, align stakeholders, and accelerate meaningful progress for underserved communities.
Together, we can advance what’s possible in rare disease.
Learn more at www.rarelifesolutions.com

11/16/2025

Today is World Sanfilippo Awareness Day.
We recognize the children and families affected by Sanfilippo syndrome, also known as mucopolysaccharidosis type III (MPS III)—a neurodegenerative rare disease often referred to as childhood Alzheimer’s.
Sanfilippo is caused by a single genetic defect that prevents the body from producing a vital enzyme required to break down heparan sulfate. Without this enzyme, toxic buildup damages cells, particularly in the brain, leading to severe neurological decline and loss of life in early adolescence.
At rareLife, we remain dedicated to advancing treatment development and improving outcomes for patients and families across the rare disease community.
Learn more about our work at www.rarelifesolutions.com.

11/13/2025

Attending the 2025 ISMPP Academy in Boston, MA?
Don’t miss Hugh Bartlett, CMPP, Senior Director, Solutions Development at rareLife solutions, on Friday, November 14, when he joins five other experts to discuss:
“Pharma-Agency Partnerships: Evolving Roles, Shared Goals.”
Connect with Hugh via the Whova Event App to schedule a chat! He’s eager to engage with professionals across pharma, biotech, medical communications, and publications—all united by a commitment to improving outcomes in rare disease.
Learn more about Hugh and his work at www.rarelifesolutions.com.

11/05/2025

In rare, caregivers play a critical role in all aspects of the patient journey, yet they are often overlooked. At rareLife, we do not overlook caregivers; we intentionally collaborate with them and develop meaningful partnerships to advance disease understanding.
Learn more about our work: www.rarelifesolutions.com

10/30/2025

Today, on World HPP Day, we join the global HPP community in shining a light on the often underrecognized breadth of HPP—a rare condition that extends far beyond bones and affects many aspects of daily life.
We honor the individuals and families who live with HPP every day—navigating complex symptoms, seeking diagnosis, and pushing for new understanding and care.
As part of this day, we reaffirm our dedication to working alongside patients, caregivers, clinicians, and researchers to:
*Amplify the voices of those living with HPP
*Deepen understanding of the full spectrum of the impact of HPP
*Support early diagnosis and intervention
*Advocate for access to care, research, and meaningful outcomes
Thank you to everyone in the HPP community for your commitment, your stories, and your leadership. On this World HPP Day, we see you, we stand with you, and we move forward together.
www.rarelifesolutions.com

10/26/2025

Today is —a day when people around the world unite to raise . Amyloidosis is a rare and often misdiagnosed disease caused by abnormal protein deposits in tissues and organs. If left untreated, it can lead to organ failure, most commonly affecting the heart, kidneys, liver, spleen, and nervous system.
The 2025 World Amyloidosis Day theme, Hereditary Amyloidosis, highlights the urgent need for faster symptom recognition and improved global access to diagnostic tools.
At rareLife, we honor rare patients and families and remain dedicated to advancing treatment development and improving outcomes for the rare disease community.
Learn more about our work: contactus@rarelifesolutions.com

rareLife solutions

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