oneAMYLOIDOSISvoice

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oneAMYLOIDOSISvoice

oneAMYLOIDOSISvoice is an online community that educates, supports and empowers those impacted by am
(1)

04/26/2023

Getting assistance for household costs or medical expenses can be a lengthy process. Once you've identified a possible solution, check out these tips to maximize your chances of receiving help: https://loom.ly/R-hfg6U

04/19/2023

Navigating treatment can be overwhelming. Check out this excerpt from Amyloidosis Support Groups' ATTR Amyloidosis Webinar. Paula Schmitt, Executive Director of Amyloidosis Support Groups, talks about patient support and financial assistance. Watch now: https://loom.ly/5G1tyj8

04/12/2023

To enjoy your best life with amyloidosis, it’s important to take care of your body, manage stress, and communicate effectively about your condition. Read more about living well with amyloidosis: https://loom.ly/yCoKvvM

04/04/2023

Harold Baines, MLB Hall of Famer has a genetic condition called amyloidosis which is a rare disease characterized by a buildup of abnormal amyloid deposits in the body. As a result, he needed both a heart and kidney transplant. Read Harold's story: https://loom.ly/uLqTHiA

03/09/2023

Attention ATTR cardiac amyloidosis patients! Time is running out to apply for an ongoing virtual research panel by M3 Global Research. Qualified ATTR-CM participants can earn up to $500+. Deadline is 3/17, or sooner if panel fills. Details: http://m3gr.io/IQTJIS

http://m3gr.io/IQTJIS

02/28/2023

In honor of , we're sharing Fabio's story about hereditary amyloidosis, and how he and future generations of his family will be able to manage their disease much more effectively. Read the story: https://loom.ly/PM2z9KQ

02/23/2023

Attention ATTR cardiac amyloidosis patients! M3 Global Research is currently seeking ALL TYPES of ATTR cardiac amyloidosis (ATTR-CM) patients for an ongoing virtual research panel. Qualified participants can earn up to $500+. Deadline is March 17, or sooner if panel fills. Details: http://m3gr.io/IQTJIS

02/22/2023

Celebrate Rare Disease Day by joining NIH virtually or in-person on February 28th. The free event features panel discussions, rare disease stories, exhibitors and scientific posters. Register & learn more: https://loom.ly/01kbfmo

02/17/2023

02/15/2023

The Amyloidosis Foundation provides an overview of wild-type ATTR including information on symptoms, diagnosis, monitoring and treatment. Read through the FAQs to find answers to commonly asked questions that may not have crossed your mind: https://loom.ly/TriMER0

02/08/2023

There are times in the lives of patients with amyloidosis when they will require assistance. Each patient is unique as are their treatment and care requirements. Mackenzie's Mission shares some thoughts and guidance about how to build a caregiver team. Learn more: https://loom.ly/bqY8O4w

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606 Post Road East, #397
Westport, CT

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+18446638642

Website

http://www.oneamyloidosisvoice.com/

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Our Mission

oneAMYLOIDOSISvoice was created to provide an amyloidosis community tailored to you!

Get support, connect with others like you, learn more about amyloidosis while being part of a community dedicated to transforming the health of those impacted by amyloidosis and get information about the challenges and processes of proper diagnosis.

oneAMYLOIDOSISvoice is an online community and education platform that gathers credible disease and lifestyle information and empowers people impacted by amyloidosis.

Working groups of leaders in amyloidosis advocacy and healthcare review valuable information to create a "Trusted Resources" library that is then integrated alongside relevant conversations taking place in the Social Wall, where our community truly flourishes!