Sotos Syndrome Support Association

11/16/2025

🍁 The Fall Sotos Syndrome Newsletter just hit your inbox! 🍁

Be sure to check it out — it’s packed with updates, community photos, and hotel information for the 2026 Sotos Syndrome Conference.

** Check spam/junk box or that your membership is active, if not receiving emails. Newsletters are sent to active members with the email you used to sign-up with! **

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11/02/2025

📅 Mark Your Calendars! 🌴

We’re thrilled to announce that our next Sotos Syndrome Conference will be held July 10th–12th, 2026 in beautiful Orlando, Florida! ☀️🎉

It’s going to be an incredible few days of connection, learning, and support with friends and families. 💜

📝 Stay tuned! Conference registration details and hotel discount information will be shared soon.

Let’s make this year’s gathering our best yet — can’t wait to see everyone in Orlando! 💫

11/01/2025

🎃👻 We hope everyone had a fun, happy, and safe Halloween — full of smiles, laughter, and maybe a few too many treats! 🍬✨

Now as we say goodbye to October and hello to November, we’re sending love to all our amazing Sotos families. 💛💜

10/13/2025

🎉 HUGE THANK YOU to Our Amazing SSSA Community! 🎉

We are absolutely thrilled to announce that thanks to your incredible generosity, spirit, and teamwork, we raised an amazing $21,847 during our Second Annual Run-Walk-Roll-Athon! 🏃‍♀️🚶‍♂️🧑‍🦽

Every step you took, every dollar you raised, and every share of support brings us closer together — and helps us make future SSSA conferences even more impactful, accessible, and empowering for our entire community.

Your support means the world to us. From the bottom of our hearts — THANK YOU. 💜

10/07/2025

⏰ FINAL 2 HOURS! ⏰

This is it—the last chance to get a donation in! Every single donation counts right now, no matter the size.

📣 If you've been meaning to give, now is the time.

https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwY2xjawNRS_JleHRuA2FlbQIxMABicmlkETFGZ3RGSFpySWFBOVl6dHk2AR4SjeWYQHUfVwWBFH1KmpWt3dMs2mrxvG4IztL5A3GnIcE4W6ZiTLcuKqZGdQ_aem_bSD72tnV6x7YZGoKhJe8tA

10/05/2025

📚🍎 Happy World Teachers' Day! 🍎📚

Today, we celebrate the incredible individuals who dedicate their lives to shaping minds, inspiring dreams, and changing the world—one lesson at a time.

To all the teachers out there:
Thank you for your patience, your passion, and your unwavering belief in the power of education. Your impact reaches far beyond the classroom and stays with us for a lifetime. 💛

Drop a comment below and tag a teacher who made a difference in your life. Let’s show them how much they mean to us! 👩‍🏫👨‍🏫

10/03/2025

🏃‍♀️🚶‍♂️♿ 🚴Last Call, Sotos Families! 🎉

This is the FINAL WEEKEND to raise funds for our Run-Walk-Roll-a-thon 💪✨

Let’s make one last push to support our amazing Sotos community. Every dollar raised goes directly towards our annual conferences that benefit our kids and families. Whether you run, walk, or roll, your support moves us all forward. 💜

✅ Haven’t donated yet? Now’s the time!
✅ Already donated? Share the link with family and friends!

➡ https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwY2xjawNGKRFleHRuA2FlbQIxMQABHlEWTKnvlfilPORTS1rpZJhFiyK7nLTV_be-mdeXMot-uCurm_Em-LWv_nWs_aem_K3SkNsdV1kMIyMVS3u95dQ

Together, we can finish strong! 🏁

10/01/2025

🎃 Happy October to our Sotos Families! 🍂

Wishing you a month full of warmth, joy, and a little Halloween magic! 👻🧡

09/28/2025

➡️ Donate here: https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwY2xjawNGJ0pleHRuA2FlbQIxMABicmlkETFkWUwzZHF3djE1Z3ZyV0ZoAR60MJhWpAxDXekcpE6nC0xaSnDDspgqt8-yuVhHXhQfPIGmxEQLVZ2DrSDw1w_aem_MGw4K7SMqhHld_2lfdaeXw

09/27/2025

🚶‍♀️🏃‍♂️🚲 We’re down to the FINAL 10 DAYS of our Walk-Run-Roll-a-thon for Sotos Syndrome!

Let’s finish strong together 💪—every step, every share, and every donation helps us raise awareness and support for our amazing Sotos community. 💜

✨ Join us in making these last days count—spread the word, invite your friends, and keep the momentum going!

➡️ Donate here: https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwdGRjcANEvSZleHRuA2FlbQIxMQABHlHcSfm7ZNMsBA0QstYTFank01p2jlSzXkHcrPwfXv821ljhCggqBvz4kDCn_aem_JK7mdLZ2d2peqoeV9zWKXg

09/24/2025

📸 Show Us Your Steps for Sotos! 🏃‍♀️🚶‍♂️🦽 🚴

As part of our Run-Walk-Roll-a-thon fundraiser, we’d LOVE to see YOU in action! Whether you're running, walking, or rolling—snap a photo and share it in the comments below to show your support.

👇 Drop your pictures in the comments below and tell us where you're walking from!

09/22/2025

🍂 Hello, Fall! 🍁

Happy First Day of Fall to our amazing Sotos Syndrome community! As the leaves begin to change and the air turns crisp, we’re reminded of the beauty in every season — just like the unique and wonderful individuals that make up this community. 💛

Whether you're jumping into leaf piles, sipping warm drinks, or enjoying quiet cozy moments, we hope this season brings joy, peace, and connection. 💜