Sotos Syndrome Support Association

Sotos Syndrome Support Association Organized in 1991, the Sotos Syndrome Support Association (SSSA) is made up of families and health care professional throughout the U.S. and the world.

Sotos Syndrome Support Association,
The SSSA is a non-profit organization. The purpose of the SSSA is to provide: A social support environment for professionals and families of individuals with a diagnosis of Sotos and similar syndromes; an understanding of the condition through education; a newsletter for members to network ideas, articles and inspirations; an annual conference for professionals and families to hear experts on such topics as genetics, neurology, psychology and education; an opportunity for professionals involved with Sotos syndrome to meet colleagues and collect data for research.

11/16/2025

🍁 The Fall Sotos Syndrome Newsletter just hit your inbox! 🍁

Be sure to check it out β€” it’s packed with updates, community photos, and hotel information for the 2026 Sotos Syndrome Conference.

** Check spam/junk box or that your membership is active, if not receiving emails. Newsletters are sent to active members with the email you used to sign-up with! **

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πŸ“… Mark Your Calendars! 🌴We’re thrilled to announce that our next Sotos Syndrome Conference will be held July 10th–12th, ...
11/02/2025

πŸ“… Mark Your Calendars! 🌴

We’re thrilled to announce that our next Sotos Syndrome Conference will be held July 10th–12th, 2026 in beautiful Orlando, Florida! β˜€οΈπŸŽ‰

It’s going to be an incredible few days of connection, learning, and support with friends and families. πŸ’œ

πŸ“ Stay tuned! Conference registration details and hotel discount information will be shared soon.

Let’s make this year’s gathering our best yet β€” can’t wait to see everyone in Orlando! πŸ’«

πŸŽƒπŸ‘» We hope everyone had a fun, happy, and safe Halloween β€” full of smiles, laughter, and maybe a few too many treats! 🍬✨...
11/01/2025

πŸŽƒπŸ‘» We hope everyone had a fun, happy, and safe Halloween β€” full of smiles, laughter, and maybe a few too many treats! 🍬✨

Now as we say goodbye to October and hello to November, we’re sending love to all our amazing Sotos families. πŸ’›πŸ’œ

πŸŽ‰ HUGE THANK YOU to Our Amazing SSSA Community! πŸŽ‰We are absolutely thrilled to announce that thanks to your incredible g...
10/13/2025

πŸŽ‰ HUGE THANK YOU to Our Amazing SSSA Community! πŸŽ‰

We are absolutely thrilled to announce that thanks to your incredible generosity, spirit, and teamwork, we raised an amazing $21,847 during our Second Annual Run-Walk-Roll-Athon! πŸƒβ€β™€οΈπŸšΆβ€β™‚οΈπŸ§‘β€πŸ¦½

Every step you took, every dollar you raised, and every share of support brings us closer together β€” and helps us make future SSSA conferences even more impactful, accessible, and empowering for our entire community.

Your support means the world to us. From the bottom of our hearts β€” THANK YOU. πŸ’œ

πŸ“šπŸŽ Happy World Teachers' Day! πŸŽπŸ“šToday, we celebrate the incredible individuals who dedicate their lives to shaping minds...
10/05/2025

πŸ“šπŸŽ Happy World Teachers' Day! πŸŽπŸ“š

Today, we celebrate the incredible individuals who dedicate their lives to shaping minds, inspiring dreams, and changing the worldβ€”one lesson at a time.

To all the teachers out there:
Thank you for your patience, your passion, and your unwavering belief in the power of education. Your impact reaches far beyond the classroom and stays with us for a lifetime. πŸ’›

Drop a comment below and tag a teacher who made a difference in your life. Let’s show them how much they mean to us! πŸ‘©β€πŸ«πŸ‘¨β€πŸ«

πŸƒβ€β™€οΈπŸšΆβ€β™‚οΈβ™Ώ 🚴Last Call, Sotos Families! πŸŽ‰This is the FINAL WEEKEND to raise funds for our Run-Walk-Roll-a-thon πŸ’ͺ✨Let’s mak...
10/03/2025

πŸƒβ€β™€οΈπŸšΆβ€β™‚οΈβ™Ώ 🚴Last Call, Sotos Families! πŸŽ‰

This is the FINAL WEEKEND to raise funds for our Run-Walk-Roll-a-thon πŸ’ͺ✨

Let’s make one last push to support our amazing Sotos community. Every dollar raised goes directly towards our annual conferences that benefit our kids and families. Whether you run, walk, or roll, your support moves us all forward. πŸ’œ

βœ… Haven’t donated yet? Now’s the time!
βœ… Already donated? Share the link with family and friends!

➑ https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwY2xjawNGKRFleHRuA2FlbQIxMQABHlEWTKnvlfilPORTS1rpZJhFiyK7nLTV_be-mdeXMot-uCurm_Em-LWv_nWs_aem_K3SkNsdV1kMIyMVS3u95dQ

Together, we can finish strong! 🏁

Β 

πŸŽƒ Happy October to our Sotos Families! πŸ‚Wishing you a month full of warmth, joy, and a little Halloween magic! πŸ‘»πŸ§‘
10/01/2025

πŸŽƒ Happy October to our Sotos Families! πŸ‚

Wishing you a month full of warmth, joy, and a little Halloween magic! πŸ‘»πŸ§‘

πŸšΆβ€β™€οΈπŸƒβ€β™‚οΈπŸš² We’re down to the FINAL 10 DAYS of our Walk-Run-Roll-a-thon for Sotos Syndrome!Let’s finish strong together πŸ’ͺβ€”...
09/27/2025

πŸšΆβ€β™€οΈπŸƒβ€β™‚οΈπŸš² We’re down to the FINAL 10 DAYS of our Walk-Run-Roll-a-thon for Sotos Syndrome!

Let’s finish strong together πŸ’ͺβ€”every step, every share, and every donation helps us raise awareness and support for our amazing Sotos community. πŸ’œ

✨ Join us in making these last days countβ€”spread the word, invite your friends, and keep the momentum going!

➑️ Donate here: https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwdGRjcANEvSZleHRuA2FlbQIxMQABHlHcSfm7ZNMsBA0QstYTFank01p2jlSzXkHcrPwfXv821ljhCggqBvz4kDCn_aem_JK7mdLZ2d2peqoeV9zWKXg

09/24/2025

πŸ“Έ Show Us Your Steps for Sotos! πŸƒβ€β™€οΈπŸšΆβ€β™‚οΈπŸ¦½ 🚴

As part of our Run-Walk-Roll-a-thon fundraiser, we’d LOVE to see YOU in action! Whether you're running, walking, or rollingβ€”snap a photo and share it in the comments below to show your support.

πŸ‘‡ Drop your pictures in the comments below and tell us where you're walking from!

πŸ‚ Hello, Fall! 🍁Happy First Day of Fall to our amazing Sotos Syndrome community! As the leaves begin to change and the a...
09/22/2025

πŸ‚ Hello, Fall! 🍁

Happy First Day of Fall to our amazing Sotos Syndrome community! As the leaves begin to change and the air turns crisp, we’re reminded of the beauty in every season β€” just like the unique and wonderful individuals that make up this community. πŸ’›

Whether you're jumping into leaf piles, sipping warm drinks, or enjoying quiet cozy moments, we hope this season brings joy, peace, and connection. πŸ’œ

Address

P. O. Box 4626
Wheaton, IL
60189

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