Sotos Syndrome Support Association

12/26/2025

❄️ Winter Newsletter Photos Wanted! 📸

Sotos families—we’d love your help! Please share any fun winter photos of your child or family (snow days, cozy moments, holiday fun, or everyday smiles) to be featured in our upcoming winter newsletter.

You can comment below or message us with your photos. Thank you for helping us celebrate our amazing Sotos community! 💜 ⛄️ 💜

12/25/2025

Wishing our amazing Sotos Syndrome families a very Merry Christmas and Happy Holidays 🎄✨

Sending warm wishes to every family, caregiver, and individual—may the new year bring hope, health, and many small wins worth celebrating. ❤️❄️

12/06/2025

❤️Sotos Syndrome Family!💚

We’re putting together our Winter Newsletter and would LOVE to feature YOUR holiday cheer! 🎄❄️

Share your favorite festive photo in the comments to help spread some joy this season. ❤️

Send a message to learn more

11/27/2025

🧡 Happy Thanksgiving to Our Sotos Community 🧡

Today we’re feeling extra grateful for this beautiful community — for your gratitude, your kindness, and the love you share so generously. Thank you for lifting each other up, celebrating the little victories, and reminding us all that we’re never alone on this journey.

Wishing every family and every individual a day filled with warmth, peace, and joy.

We are so thankful for you. 🦃💛

11/16/2025

🍁 The Fall Sotos Syndrome Newsletter just hit your inbox! 🍁

Be sure to check it out — it’s packed with updates, community photos, and hotel information for the 2026 Sotos Syndrome Conference.

** Check spam/junk box or that your membership is active, if not receiving emails. Newsletters are sent to active members with the email you used to sign-up with! **

Send a message to learn more

11/02/2025

📅 Mark Your Calendars! 🌴

We’re thrilled to announce that our next Sotos Syndrome Conference will be held July 10th–12th, 2026 in beautiful Orlando, Florida! ☀️🎉

It’s going to be an incredible few days of connection, learning, and support with friends and families. 💜

📝 Stay tuned! Conference registration details and hotel discount information will be shared soon.

Let’s make this year’s gathering our best yet — can’t wait to see everyone in Orlando! 💫

11/01/2025

🎃👻 We hope everyone had a fun, happy, and safe Halloween — full of smiles, laughter, and maybe a few too many treats! 🍬✨

Now as we say goodbye to October and hello to November, we’re sending love to all our amazing Sotos families. 💛💜

10/13/2025

🎉 HUGE THANK YOU to Our Amazing SSSA Community! 🎉

We are absolutely thrilled to announce that thanks to your incredible generosity, spirit, and teamwork, we raised an amazing $21,847 during our Second Annual Run-Walk-Roll-Athon! 🏃‍♀️🚶‍♂️🧑‍🦽

Every step you took, every dollar you raised, and every share of support brings us closer together — and helps us make future SSSA conferences even more impactful, accessible, and empowering for our entire community.

Your support means the world to us. From the bottom of our hearts — THANK YOU. 💜

10/07/2025

⏰ FINAL 2 HOURS! ⏰

This is it—the last chance to get a donation in! Every single donation counts right now, no matter the size.

📣 If you've been meaning to give, now is the time.

https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwY2xjawNRS_JleHRuA2FlbQIxMABicmlkETFGZ3RGSFpySWFBOVl6dHk2AR4SjeWYQHUfVwWBFH1KmpWt3dMs2mrxvG4IztL5A3GnIcE4W6ZiTLcuKqZGdQ_aem_bSD72tnV6x7YZGoKhJe8tA

10/05/2025

📚🍎 Happy World Teachers' Day! 🍎📚

Today, we celebrate the incredible individuals who dedicate their lives to shaping minds, inspiring dreams, and changing the world—one lesson at a time.

To all the teachers out there:
Thank you for your patience, your passion, and your unwavering belief in the power of education. Your impact reaches far beyond the classroom and stays with us for a lifetime. 💛

Drop a comment below and tag a teacher who made a difference in your life. Let’s show them how much they mean to us! 👩‍🏫👨‍🏫

10/03/2025

🏃‍♀️🚶‍♂️♿ 🚴Last Call, Sotos Families! 🎉

This is the FINAL WEEKEND to raise funds for our Run-Walk-Roll-a-thon 💪✨

Let’s make one last push to support our amazing Sotos community. Every dollar raised goes directly towards our annual conferences that benefit our kids and families. Whether you run, walk, or roll, your support moves us all forward. 💜

✅ Haven’t donated yet? Now’s the time!
✅ Already donated? Share the link with family and friends!

➡ https://go.dojiggy.io/fa7e8a/Members/Details?fbclid=IwY2xjawNGKRFleHRuA2FlbQIxMQABHlEWTKnvlfilPORTS1rpZJhFiyK7nLTV_be-mdeXMot-uCurm_Em-LWv_nWs_aem_K3SkNsdV1kMIyMVS3u95dQ

Together, we can finish strong! 🏁

10/01/2025

🎃 Happy October to our Sotos Families! 🍂

Wishing you a month full of warmth, joy, and a little Halloween magic! 👻🧡