Sotos Syndrome Support Association

04/05/2026

🌸🐣 HAPPY EASTER 🐣🌸

💜 Wishing you a joyful and hope-filled Easter season! 💜

May your day be filled with:
🥚 Colorful eggs
🧺 Sweet treats
🌷 Love, laughter, and new beginnings

With appreciation for our amazing community—thank you for being part of the Sotos family! 💜

04/01/2026

🎉 Now that you're registered for the Conference, it’s time to book your hotel! 🏨

Be sure to reserve your room at the Drury Inn in Orlando, FL, where many conference families will be staying. Staying at the conference hotel is a great way to connect with other families, make new friends, and be close to all conference activities.

Rooms can fill up quickly, so don’t wait!

Room Rates here: https://www.sotossyndrome.org/conference/hotel-travel/

We can’t wait to see everyone in July! ☀️

You must be a member to register for the conference. Make sure to join before registering if you have not already done so.

04/01/2026

Please connect with the Sotos Syndrome Support Association's official Linkedin page.

SOTOS SYNDROME SUPPORT ASSOCIATION | 11 followers on LinkedIn. Our Mission is to provide a social support environment for professionals and families of individuals affected by Sotos. | Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counse...

03/30/2026

📣 Attention Sotos Syndrome Community! 📣

Time is running out to register for the Sotos Syndrome Conference this July in Orlando, FL! ☀️🏝️

This is an incredible opportunity to connect with other families, learn from experts, and be part of a supportive, uplifting community.

⏰ Important Reminder: Registration rates increase on April 1, so don’t wait!

Secure your spot today and join us for a meaningful and memorable experience.

👉 Register now before prices go up!

Aiding in the journey of coping with Sotos Syndrome. Join our mission for support and knowledge sharing at the SSSA.

03/30/2026

‼️ Attention ‼️

Take advantage of the early bird registration rates. Get registered TODAY for the 2️⃣0️⃣2️⃣6️⃣ conference in Orlando, Florida!

Rates increase on April 1, 2026!

Aiding in the journey of coping with Sotos Syndrome. Join our mission for support and knowledge sharing at the SSSA.

03/20/2026

03/17/2026

🍀💜💛🍀

03/08/2026

🌴🎢 Will we see YOU in Florida? ☀🏖

Register TODAY ➡ https://www.sotossyndrome.org/conference/overview/

03/05/2026

📣 Important Links 📣

Hotel information ➡ https://www.sotossyndrome.org/conference/hotel-travel/

Conference Registration ➡ https://www.sotossyndrome.org/conference/rates/

2026 Agenda ➡ https://www.sotossyndrome.org/conference/agenda/

Silent Auction Information ➡ https://www.sotossyndrome.org/conference/silent-auction/

Financial Assistance ➡ https://www.sotossyndrome.org/conference/financial-assistance/

You must be a member to register for the conference. Make sure to join before registering if you have not already done so.

03/01/2026

Early Bird Registration is OPEN now.
Prices will increase April 1, 2026.

https://www.sotossyndrome.org/conference/rates/

02/28/2026

Sotos is rare and affects 1:14,000 people!

Care 4️⃣ Rare 💜💛