Hereditary Neurological Disease Centre

Hereditary Neurological Disease Centre HNDC is a non-profit specializing in Huntington's disease. The Hereditary Neurological Disease Centre is a free-standing. non-profit organization.

They provide genetic testing, counseling, monthly support groups, medical clinics and research study activities. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going. Our MISSION:
At the Hereditary Neurological Disease Centre, we are dedicated to walking alongside individuals and families on their Huntington’s Disease (HD) journey. We provide compassionate guidance, comprehensive support, education, and advocacy—at little to no cost—empowering those affected to navigate the challenges with dignity and hope.

01/29/2026
From Huntington's Disease News:𝗛𝗨𝗡𝗧𝗜𝗡𝗚𝗧𝗢𝗡'𝗦 𝗗𝗜𝗦𝗘𝗔𝗦𝗘 𝗧𝗥𝗘𝗔𝗧𝗠𝗘𝗡𝗧 𝗢𝗣𝗧𝗜𝗢𝗡𝗦"Huntington’s disease is a genetic neurological dis...
01/29/2026

From Huntington's Disease News:

𝗛𝗨𝗡𝗧𝗜𝗡𝗚𝗧𝗢𝗡'𝗦 𝗗𝗜𝗦𝗘𝗔𝗦𝗘 𝗧𝗥𝗘𝗔𝗧𝗠𝗘𝗡𝗧 𝗢𝗣𝗧𝗜𝗢𝗡𝗦

"Huntington’s disease is a genetic neurological disorder that’s marked by a variety of symptoms, including uncontrolled movements, cognitive difficulties, and mental health problems.

There is currently no cure for Huntington’s, and no medication can slow or stop the disease’s progression. However, there are several available Huntington’s disease treatment options that can help to ease symptoms and improve quality of life for people at all stages of Huntington’s disease."
--
Read here for more: https://huntingtonsdiseasenews.com/huntingtons-disease-treatment-options/?utm_source=facebook&utm_medium=social&utm_campaign=cpuv&utm_content=202601270100&utm_term=austedorx

Learn about the latest Huntington’s disease treatments here: https://f.mtr.cool/kjzoesqymw

SNL alum shares his personal experience with Huntington Disease and the importance of raising awareness!https://www.face...
01/28/2026

SNL alum shares his personal experience with Huntington Disease and the importance of raising awareness!

https://www.facebook.com/share/p/1ByYMWoSbp/

Will Forte joins TODAY’s Jenna Bush Hager and Sheinelle Jones to share details about his new sketch comedy show he’s making with his mom and her best friend! Forte also looks back on his time at “Saturday Night Live,” talks about “Four Seasons” Season Two and opens up about his work to r...

01/28/2026

👉 Learn more here: https://bit.ly/3Zo6jBA

Researchers are exploring experimental treatments aimed at slowing progression, targeting the root cause, and improving quality of life — from gene therapies to oral medications and brain stimulation.

These therapies are still in clinical trials, but each represents a step forward in understanding and treating HD. 💛

01/23/2026
01/22/2026

uniQure released a community statement addressing questions that came up after their January 9 press release about a Type A meeting with the FDA related to AMT-130.

Read the full community statement here:
https://hdsa.org/wp-content/uploads/2026/01/2026-01-21-AMT-130-HD-Community-Letter.pdf

01/21/2026

Ingrezza engages with its target more strongly than Austedo XR, which may translate into better chorea control in Huntington’s, per a study. https://buff.ly/h8HqZUl

Address

9300 E 29th Street N, Suite 350
Wichita, KS
67226

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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The Hereditary Neurological Disease Centre is a free-standing. non-profit organization. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going.