Hereditary Neurological Disease Centre

Hereditary Neurological Disease Centre HNDC is a non-profit specializing in Huntington's disease. The Hereditary Neurological Disease Centre is a free-standing. non-profit organization.

They provide genetic testing, counseling, monthly support groups, medical clinics and research study activities. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going. Our MISSION:
At the Hereditary Neurological Disease Centre, we are dedicated to walking alongside individuals and families on their Huntington’s Disease (HD) journey. We provide compassionate guidance, comprehensive support, education, and advocacy—at little to no cost—empowering those affected to navigate the challenges with dignity and hope.

🎄✨ The holidays are here, and we’re taking a short winter pause — the kind filled with twinkling lights, warm moments, a...
12/22/2025

🎄✨ The holidays are here, and we’re taking a short winter pause — the kind filled with twinkling lights, warm moments, and the intentional slowing down that only this season seems to encourage.

𝗢𝘂𝗿 𝗼𝗳𝗳𝗶𝗰𝗲 𝘄𝗶𝗹𝗹 𝗯𝗲 𝗰𝗹𝗼𝘀𝗲𝗱 𝗗𝗲𝗰𝗲𝗺𝗯𝗲𝗿 𝟮𝟰𝘁𝗵–𝟮𝟲𝘁𝗵 so our team can spend time with loved ones and return rested and ready to continue serving our community. We will reopen on December 29th.

If an urgent matter arises during our closure, please contact our live answering service at (316) 609-3020. They will ensure messages requiring timely attention are directed appropriately.

We are grateful for the individuals and families we serve, and we send our warmest wishes for a season filled with peace, comfort, and connection. 💚

From all of us at the Hereditary Neurological Disease Centre,
𝗛𝗮𝗽𝗽𝘆 𝗛𝗼𝗹𝗶𝗱𝗮𝘆𝘀. ✨

12/16/2025

A nearly $12 million grant will support a first-in-human trial, slated for 2026, that will test a stem cell therapy for Huntington's disease. https://buff.ly/B00JaFt

12/15/2025
12/15/2025

https://f.mtr.cool/bfhpahjyez to learn why an early diagnosis matters, and share to raise awareness for the HD community.

Early detection of Huntington’s disease can make a real difference — from accessing treatments sooner to planning for the future and supporting research. 💛

12/15/2025
12/10/2025

Antipsychotics can significantly improve functional capacity and other Huntington's disease symptoms, trial data showed. https://buff.ly/Piz3Bui

12/09/2025

https://f.mtr.cool/jlhlhqrxey to learn more.

🧬 Big news for Huntington’s disease research! 🎉

ReviR Therapeutics just won a $4.6 million grant to help develop a potential oral treatment that could change the game for people with Huntington’s disease. Their new compound targets key proteins involved in disease progression — a hopeful step toward slowing or stopping HD, not just managing symptoms.

12/09/2025
12/04/2025

Final meeting minutes from uniQure’s AMT-130 application discussion with the FDA have now been released. This update is an important step in understanding the regulatory path forward for a therapy that holds meaningful potential for the HD community.

If you would like to share your perspective on how this decision impacts individuals and families affected by Huntington’s disease, visit: https://bit.ly/Hope4HD

Huntingtons post: https://www.help4hd.org/post/uniqure-provides-regulatory-update-on-amt-130-for-huntington-s-disease

Address

9300 E 29th Street N, Suite 350
Wichita, KS
67226

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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Our Story

The Hereditary Neurological Disease Centre is a free-standing. non-profit organization. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going.