Hereditary Neurological Disease Centre

Hereditary Neurological Disease Centre HNDC is a non-profit specializing in Huntington's disease. The Hereditary Neurological Disease Centre is a free-standing. non-profit organization.

They provide genetic testing, counseling, monthly support groups, medical clinics and research study activities. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going. Our MISSION:
At the Hereditary Neurological Disease Centre, we are dedicated to walking alongside individuals and families on their Huntingtonโ€™s Disease (HD) journey. We provide compassionate guidance, comprehensive support, education, and advocacyโ€”at little to no costโ€”empowering those affected to navigate the challenges with dignity and hope.

"๐—ง๐—ต๐—ฒ ๐˜€๐˜๐˜‚๐—ฏ๐—ฏ๐—ผ๐—ฟ๐—ป ๐—ฝ๐—น๐—ฎ๐—ฐ๐—ฒ๐—ฏ๐—ผ: ๐—™๐—ถ๐—ป๐—ฑ๐—ถ๐—ป๐—ด ๐—ต๐—ผ๐—ฝ๐—ฒ ๐—ฎ๐—บ๐—ถ๐—ฑ ๐˜๐—ต๐—ฒ ๐˜๐˜‚๐—ฟ๐—บ๐—ผ๐—ถ๐—น ๐—ผ๐˜ƒ๐—ฒ๐—ฟ ๐—”๐— ๐—ง-๐Ÿญ๐Ÿฏ๐ŸฌThe clash between regulators and uniQure is felt by pat...
03/16/2026

"๐—ง๐—ต๐—ฒ ๐˜€๐˜๐˜‚๐—ฏ๐—ฏ๐—ผ๐—ฟ๐—ป ๐—ฝ๐—น๐—ฎ๐—ฐ๐—ฒ๐—ฏ๐—ผ: ๐—™๐—ถ๐—ป๐—ฑ๐—ถ๐—ป๐—ด ๐—ต๐—ผ๐—ฝ๐—ฒ ๐—ฎ๐—บ๐—ถ๐—ฑ ๐˜๐—ต๐—ฒ ๐˜๐˜‚๐—ฟ๐—บ๐—ผ๐—ถ๐—น ๐—ผ๐˜ƒ๐—ฒ๐—ฟ ๐—”๐— ๐—ง-๐Ÿญ๐Ÿฏ๐Ÿฌ
The clash between regulators and uniQure is felt by patients, their families"
--
Read more here: https://huntingtonsdiseasenews.com/columns/stubborn-placebo-finding-hope-amid-turmoil-amt-130/

Columnist Carlos Briceรฑo weighs in on the recent disagreement between the FDA and uniQure, and looks for a reason to hope for a good outcome. https://buff.ly/8kJeks3

03/16/2026
03/12/2026

HDSA and FreeWill have partnered together to offer a free, secure way to write your will online.

The process only takes about 20 minutes, and you can complete it, entirely from the comfort of your own home.

Because planning for the future should be simple, not stressful or expensive.

To Learn more, visit: https://www.freewill.com/hdsa?utm_source=partner

03/11/2026

Click here: https://bit.ly/47lIMWb to learn more!

Communication matters ๐Ÿ’› โ€” Speech therapy can help people with Huntingtonโ€™s disease improve clarity, manage swallowing challenges, and stay connected for longer.

03/10/2026

Women with HD are more likely to experience irritability and are less likely to be employed than men with the disease, per a study. https://buff.ly/JXRjvot

03/10/2026

Find out how speech therapy supports Huntingtonโ€™s disease communication: https://bit.ly/4t8m2CA

Address

9300 E 29th Street N, Suite 350
Wichita, KS
67226

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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The Hereditary Neurological Disease Centre is a free-standing. non-profit organization. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going.