Hereditary Neurological Disease Centre

Hereditary Neurological Disease Centre HNDC is a non-profit specializing in Huntington's disease. The Hereditary Neurological Disease Centre is a free-standing. non-profit organization.

They provide genetic testing, counseling, monthly support groups, medical clinics and research study activities. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those

with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going. Our MISSION:
At the Hereditary Neurological Disease Centre, we are dedicated to walking alongside individuals and families on their Huntington’s Disease (HD) journey. We provide compassionate guidance, comprehensive support, education, and advocacy—at little to no cost—empowering those affected to navigate the challenges with dignity and hope.

04/22/2026

Click here: https://bit.ly/48Uk7ZE to read the full story. 💙

For many people in the Huntington’s disease community, the journey to diagnosis and care can already feel long and uncertain. When symptoms are dismissed or not taken seriously, the impact goes beyond frustration—it delays answers, support, and treatment.

Medical gaslighting is real, and it can be deeply harmful. But awareness is the first step toward change. By listening more closely, believing patients sooner, and advocating for ourselves and each other, we can help create a healthcare system where no one’s experience is dismissed.

04/21/2026

A new questionnaire effectively captures behavioral symptoms and signs in people with Huntington’s disease, according to a study. https://buff.ly/5vKo8Tt

04/21/2026

🔗 Click here: https://bit.ly/4tPYd1E to read more.

A compound found in soybeans could hold promise for Huntington’s disease 👀

New research shows that genistein may help protect brain cells, improve movement, and even extend lifespan in Huntington’s mouse models.

Scientists found it works by targeting key disease pathways in the brain—reducing inflammation, limiting nerve cell damage, and slowing progression.

While this is still early research (and not yet tested in humans), it’s an exciting step toward potential new treatment approaches for HD 💙

Progress like this gives hope—and reminds us why continued research matters.

04/20/2026
04/20/2026

Find out how speech therapy supports Huntington’s disease communication: https://bit.ly/4t8m2CA

04/20/2026

Click here: https://bit.ly/48uaLDO to learn more.

There’s currently no cure for Huntington’s disease—but there are approved treatments that can help manage symptoms like chorea and improve quality of life. 💙

From medications like deutetrabenazine and valbenazine to supportive therapies, care continues to evolve.

Understanding your options is an important step in navigating HD.

Address

9300 E 29th Street N, Suite 350
Wichita, KS
67226

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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The Hereditary Neurological Disease Centre is a free-standing. non-profit organization. We often use the short version- HNDC- and this has apparently brought some confusion with the national HD organization, Huntington's Disease Society of America (HDSA). We are not, and never have been an affiliate of the national organization. While we share a common goal to assist those with Huntington's disease, our direction, purpose, mission, and funding sources are dramatically different. All HNDC funds provide direct research and patient care programs for our regional area. ALL MONEY is used for these important program services, none is used for overhead, salaries, or sent out of state. If you want to know where your dollars are used, please contact us and arrange an opportunity to learn more about WHERE your donations go, and to WHOM they help directly in this area. PLEASE...Be an informed supporter and know where your time, talent and donations are going.