02/12/2026
I truly NEVER would've imagined it.
But you just can't predict where a child will go!
When I first met him nearly 10 years ago, he was one of about 25 children in the WORLD with a rare genetic disorder, a hallmark symptom of which was very severe Apraxia of Speech (a rare neurological disorder that impairs the brain’s ability to plan and execute the motor skills needed for speech.)
Most children with this genetic mutation are considered functionally “nonverbal,” relying on alternative means of communication. And that holds true for his peers with this genetic mutation today.
But this young man? Not only does he communicate in short phrases/sentences, but his speech intelligibility has improved MARKEDLY in recent years.
How overjoyed was I to receive an early morning text today to let me know that he had just successfully “argued” with Alexa over breakfast and made the voice recognition software CHANGE her warning message of “Two minutes left” to “Two MORE minutes!” He had spoken his command so CLEARLY that the software understood him!
Wow! Such technology is challenging. How far he has come. Not only is he verbal, but I never would have imagined he'd be able to say words so CLEARLY!
What a hard working and amazing young man he is and I feel blessed to be a witness to his growth as a successful communicator. I won't pretend to know where his road leads, but let's go!