EuroBloodNet - European Reference Network on Rare Hematological Diseases

23/12/2025

🌟Happy holiday season & best wishes for 2026!🌟

2025 has been a very active year for ERN-EuroBloodNet, with key achievements in education, clinical care, research, data and health policy across Europe. We’re proud of the collective work of our network. demonstrate the power of cooperation in strengthening health resilience, clinical excellence and access to expertise for rare disease patients in all Member States.

https://eurobloodnet.eu/news/694/happy-holiday-season-best-wishes-for-2026
European Commission European Hematology Association

15/12/2025

⏰Final week to submit your abstract! The submission is still open for the European Hematology Association SWG Scientific Meeting on Bleeding and Platelet Disorders, to be held in Florence, Italy, April 9–11, 2026.

This meeting will highlight the latest advances in congenital and acquired bleeding and platelet disorders, including novel therapies, diagnostics, and evolving standards of care.

​​​🗣️​Chairs: Giancarlo Castaman & Paolo Gresele

📝 Submit your abstract by December 21!

https://eurobloodnet.eu/news/697/eha-swg-scientific-meeting-abstract-submission-is-open-until-december-21-2025

15/12/2025

🚀​New educational program for patients and their families! ERN-EuroBloodNet, in collaboration with the EHC - European Haemophilia Consortium, is launching a new series dedicated to patients with bleeding disorders and their families.

The four webinars address the challenges of ageing with bleeding disorders through expert-led sessions. Topics include redefining frailty, understanding how ageing affects bleeding, and managing cardiovascular and other comorbidities.

The program brings together clinicians, researchers, and patient advocates to encourage shared learning and knowledge exchange across Europe.​​​🌍​

​​​📅​Start date: 22/01/2026
​​​✒️Registration for the full program is now open!

​​​🔗​Find out more and register here: https://eurobloodnet.eu/education-2/patients/webinars/topic-on-focus-for-patient/topic-on-focus-ageing-well-with-rare-bleeding-disorders/topic-on-focus-ageing-well-with-rare-bleeding-disorders/

10/12/2025

💻​Not yet registered? Tomorrow is the next edition of the ERN-EuroBloodNet Thursdays Webinar, register now!

These educational sessions are designed to foster interest in highly innovative topics and highlight the latest cutting-edge advances in Rare Hematological Diseases for healthcare professionals across Europe.

The series is an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH).🌟​

🎙️ Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! https://eurobloodnet.eu/education/thursdays-webinars/66/comprehensive-overview-of-mantle-cell-lymphoma-diagnosis-treatment-and-emerging-therapies

European Commission European Hematology Association

05/12/2025

🚀​Register now for the 3rd session of the ERN-EuroBloodNet Topic on Focus on Inherited Platelet Function Disorders begins!

​This accredited European online educational program is designed for healthcare professionals and is organized by ERN-EuroBloodNet, in collaboration with Centre de Référence des Pathologies Plaquettaires (CRPP) and Filière de santé maladies rares MHEMO.🤝​

🎯The main objective of the program is to disseminate up-to-date knowledge among hematologists, pediatricians, internists, clinical pathologists, and other health care professionals involved in the diagnosis and care of patients with IPFDs.

ℹ️​Discover more details of the program and register here: https://eurobloodnet.eu/education/topic-on-focus-webinars/inherited-platelet-function-disorders/4/session-3-when-to-suspect-an-inherited-platelet-function-disorder-differential-diagnoses

01/12/2025

📤​Are you ready for the last webinars of 2025? The EDU Blood Academy Newsletter is out now!

This December we have these webinars scheduled:

"Comprehensive Overview of Mantle Cell Lymphoma: Diagnosis, Treatment, and Emerging Therapies"
📅​11/12/2025
🔗​https://eurobloodnet.eu/education/thursdays-webinars/66/comprehensive-overview-of-mantle-cell-lymphoma-diagnosis-treatment-and-emerging-therapies

"Session 3: When to suspect an inherited platelet function disorder – differential diagnoses"
📅​17/12/2025
🔗​https://eurobloodnet.eu/education/topic-on-focus-webinars/inherited-platelet-function-disorders/4/session-3-when-to-suspect-an-inherited-platelet-function-disorder-differential-diagnoses

Stay informed & discover all the details and subscribe to the Newsletter here: https://eurobloodnet.eu/edu-blood-academy-newsletter/edu-blood-academy-newsletter/

European Commission

01/12/2025

📢​Register now for the next edition of the ERN-EuroBloodNet Thursdays Webinar!

These educational sessions are designed to foster interest in highly innovative topics and highlight the latest cutting-edge advances in Rare Hematological Diseases for healthcare professionals across Europe.

The series is an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH).🌟​

🎙️ Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! https://eurobloodnet.eu/education/thursdays-webinars/66/comprehensive-overview-of-mantle-cell-lymphoma-diagnosis-treatment-and-emerging-therapies

26/11/2025

26/11/2025

On 17 November 2025, the European Commission released its first Monitoring Report on the 24 European Reference Networks ( ) — a landmark system connecting specialised centres across the EU and Norway to improve care for people living with rare, complex, and low-prevalence diseases.

📊 The report highlights significant progress: in six years, referrals to ERN-affiliated clinical centres increased by 160%, now managed across 1,606 expert centres in 375 hospitals in 27 countries. A clear sign of the value ERNs bring to patients and health systems alike.

Within this ecosystem, EuroBloodNet - European Reference Network on Rare Hematological Diseases, plays a crucial role in strengthening expertise across disorders such as , (SCD), and other —areas central to ’s mission.

For , these efforts translate into faster diagnosis, greater access to expert centres, and more consistent, high-quality care. For and healthcare systems, ERNs provide a framework for shared knowledge, harmonised practices, and stronger cross-border collaboration.

📄 Explore the full Monitoring Report here: https://health.ec.europa.eu/publications/european-reference-networks-monitoring-report-2025_en

26/11/2025

📢 Don't miss the 2nd Session of the EDITSCD & ERN-EuroBloodNet webinar series!

🎯​This series provides an in-depth exploration of gene therapy and genome editing approaches for Sickle Cell Disease ( ), combining fundamental concepts with cutting-edge clinical perspectives.

Developed in partnership with the EDITSCD Consortium, led by Annarita Miccio (Institut Imagine), the program benefits from the valuable insights of the steering committee and patient representatives from the European Sickle Cell Federation (ESCF).🤝​

💻Register now: https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/2/session-2-basics-of-gene-therapy-with-lentiviral-vectors

14/11/2025

📢 Join us for the 2nd Session of the EDITSCD & ERN-EuroBloodNet webinar series!

We are pleased to announce the second webinar of the program “EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with Sickle Cell Disease.”

🎯​This series provides an in-depth exploration of gene therapy and genome editing approaches for Sickle Cell Disease ( ), combining fundamental concepts with cutting-edge clinical perspectives.

Developed in partnership with the EDITSCD Consortium, led by Annarita Miccio (Institut Imagine), the program benefits from the valuable insights of the steering committee and patient representatives from the European Sickle Cell Federation (ESCF).🤝​

💻​This educational series includes 7 webinars and is hosted on Zoom, featuring live AI translation to ensure accessibility for all participants.

👉 Register now:
https://eurobloodnet.eu/education-2/patients/webinars/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/editscd-ern-eurobloodnet-focus-on-genetic-therapy-for-people-living-with-scd/2/session-2-basics-of-gene-therapy-with-lentiviral-vectors

10/11/2025

📢​Last days to register for this week’s ERN-EuroBloodNet Thursdays Webinar!

These educational sessions are designed to foster interest in highly innovative topics and highlight the latest cutting-edge advances in Rare Hematological Diseases for healthcare professionals across Europe.

The series is an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH).🌟​

🎙️ Speaker: Maarten Vermeer
👉Don’t miss it, secure your spot today! https://eurobloodnet.eu/education/thursdays-webinars/65/cutaneous-t-cell-lymphomas-bridging-gaps-in-therapy-and-patient-care