CHES Foundation, Inc.

11/15/2025

¡La próxima sesión de Hermanas de Sangre será el 15 de diciembre de 2025 a las 20:00 horas! “Managing Our Emotional Well-Being amid the Current Political and Migratory Climate”/ Manejo de nuestro bienestar emocional en media del actual climate politico y migratory.

Si ya te has registrado anteriormente, no necesitas volver a hacerlo.
¿Eres nueva en Hermanas de Sangre? Obtén más información aquí e inscríbete para la próxima reunión: https://ches.education/hermanas-de-sangre

Carolina Castillo, LPC, LMHC, BC- CMHC
La profesión de la consejería fue el camino que eligió con el propósito de brindar apoyo a personas en crisis emocional; hacerlo es una pasión que descubrió desde muy joven. Carolina tiene más de 15 años de experiencia trabajando con niños, adolescentes y adultos que enfrentan una amplia variedad de trastornos de salud mental o que atraviesan crisis en sus relaciones interpersonales, en el trabajo, en la paternidad u otras propias de las diferentes etapas de la vida.

11/14/2025

This , we’re expressing our gratitude for the groundbreaking research and medical advancements driving the future of bleeding disorder treatments 🔬🩸

In fact, in the past few weeks alone, we’ve highlighted some exciting updates in the Lifelines for Health Digital Digest! From progress in gene therapy to new perioperative studies on patients with bleeding disorders, these innovations not only offer hope but also pave the way for a brighter, healthier future for our community.

With so much happening in the dynamic world of bleeding disorders, it can feel overwhelming to keep up! Stay informed by subscribing to our online mailing list and receive the latest updates directly to your inbox: https://ches.education/communications-profile-form

What are your thoughts on the latest innovations in the world of bleeding disorders ? Share your insights and join the conversation below! 👇

11/12/2025

In honor of National Family Caregivers Month, we at CHES want to spotlight the incredible strength and resilience of caregivers like Ashley Hall, who navigates the challenges of raising a child with a rare bleeding disorder. Ashley’s journey with her son Maverick, who developed inhibitors shortly after birth, has been one of strength and perseverance.

𝗔𝘀𝗵𝗹𝗲𝘆’𝘀 𝗦𝘁𝗼𝗿𝘆:
When Maverick was diagnosed with inhibitors, Ashley felt lost and overwhelmed. Despite her familiarity with hemophilia, the new diagnosis plunged their family into unknown territory. Fortunately, they found solace and support through CHES programs. Ashley shares how attending CHES’ After the Shock inhibitor family camp offered a lifeline, providing a safe space to connect with other families, gain clarity, and receive much-needed guidance.

Ashley’s experience underscores the importance of community and support. Through shared experiences, families like hers find strength and hope, knowing they are not alone in their journey. As Ashley beautifully puts it, “Nobody should fight inhibitors alone.”

Join us this month in celebrating caregivers by acknowledging their impact and dedication. Share your own stories or tag a caregiver who inspires you! 💪❤️

11/12/2025

ROSS SAYS PIVOT! So, we're pivoting! The air travel disruption has given us a great challenge to overcome and we have made the very difficult decision to move One Drop 2025 in Tampa this weekend to February 27-March 1st of 2026. Be sure to check your email if you were attending and respond to the new dates questionnaire as we need your commitment to process flights accordingly. Luckily, the airlines are still being flexible but unknown for how long. We will open applications again in early January to accept a small number of slots that open up. If you applied and were accepted/waitlisted, you will NOT need to apply again!

Thank you all to those who responded to the flash poll and reached out to us individually to express your caution, sentiments and situations. We couldn't have arrived at this point without the honesty and transparency of the Ultra-Rare community. SAFETY was the main driver behind our decision and the thought of families stranded in different parts of the country when dealing with chronic conditions was really just a no-brainer.

https://ches.education/one-drop ⬅️ More about the conference and the new dates!

11/07/2025

Get ready for an insightful edition! Heather dives into the emotional challenges of living with chronic conditions and the importance of sharing the mental load this holiday season. Plus, get excited for our One Drop conference in Tampa, happening NEXT WEEK, November 14-16! Stay tuned for updates on our 2026 events and learn about our successful removal of an unauthorized GoFundMe page.

Get caught up in the latest Digital Digest! 👉 https://ches.education/newsblog/2025/bdnews11-7-gfmupdate-emotional-holidayload

11/07/2025

This November, join us every Thursday as we launch our series! 💜

As we enter the season of giving and reflect on 2025, we’ll shine a light on the incredible advancements, unwavering support, and inspiring individuals that make our community remarkable. From breakthroughs in treatment to the selfless dedication of healthcare professionals and caregivers, there's so much to be grateful for.

We invite you to share your gratitude by tagging those who inspire you or by mentioning the moments that have made a difference in your life. Let’s spread positivity and appreciation throughout the CHES community! 🙏✨

11/04/2025

This November, we honor the unsung heroes—the caregivers. At CHES, we recognize the vital role caregivers play in the lives of those with rare, chronic disorders. They are the backbone of support, offering love, patience, and resilience every day.

Throughout November, we’ll be sharing spotlight stories, tips, and resources to support and uplift our caregiving community. Join us in celebrating the dedication and strength of caregivers who make this possible ❤️

Is there a caregiver in your life you’d like to recognize? Tag them below and let everyone know what makes them special! 👇

10/29/2025

We're only two weeks away! The agenda 📋 is here for One Drop 2025 in Tampa 🌴 There will be so many professionals joining us for the weekend to share their subject matter knowledge on Ultra Rare Factor and Platelet conditions. Use the link below to see what the weekend has in store!

https://ches.education/s/Agenda-One-Drop-2025.pdf

A BIG thank you and appreciation to Novo Nordisk for being our legacy Platinum Sponsor for One Drop as well as the F7 Retreat and GT Symposia through out the years.

Silver Sponsor 🥈 -

Friends - CVS Health , Hemophilia Drugco Health, , Optum and Soleo Health

10/28/2025

We're featuring the most impactful articles from our 2024 LifeLines for Health publication as we ramp up to release the LFH 2025 edition! Written by Dr. Joanna Davis, this article highlights the lack of awareness for women affected by a bleeding disorder and what can be done to further affect change for females in this community.

Read more articles from all LifeLines editions here: https://ches.education/lfh-blog

Christopher Brewer October 28, 2025 The Future of Care for Women with Bleeding Disorders - LFH 2024 Issue Christopher Brewer October 28, 2025

10/24/2025

Wow what a week! From charitable organization fraud, to events coming next year and quite a few other articles Heather has to share, it's been a wild ride! Read more in our 110th edition of Digital Digest!

Christopher Brewer October 24, 2025 Bleeding Disorder News # 110: 2026 CHES Events are coming! GFM Fraud and Gene Therapy Update Christopher Brewer October 24, 2025 Campaign URL Copy Twitter 0 tweets Subscribe Past Issues RSS Translate English العربية Afrikaans беларуская мова ....

10/23/2025

‼️DO NOT DONATE TO CHES FOUNDATION THROUGH GOFUNDME. In the last 24 hours, CHES staff have discovered that GoFundMe created a webpage in the name of CHES Foundation WITHOUT consent or knowledge of this foundation.

GoFundMe (a company used to assist in charity collections for anyone who chooses to use their service) created 1.4 million nonprofit webpages without the consent or knowledge of those nonprofits by using public IRS data. For their service, GoFundMe (GFM) takes a portion of the donations as high as 19.4% in combined fees and tips. If you would like to donate to CHES please use our website: https://ches.education/donation-page

GFM denies CHES any control of the unauthorized page without surrendering data-sensitive documents. At this time, we are working to have the page removed.

https://www.facebook.com/DonaldTrump4President/posts/-exposed-gofundme-caught-auto-creating-over-a-million-fake-nonprofit-pages-and-t/1238051391684221/

https://nonprofitnewsfeed.com/news/1-4-million-donation-pages-without-permission-created-by-gofundme/

https://www.yahoo.com/news/articles/gofundme-faces-backlash-creating-donation-180016881.html

10/22/2025

❗️TOMORROW NIGHT! Dr. Joanna Davis will be joining to discuss what testing women might suggest or advocate for to obtain an accurate diagnosis. If you have signed up for previous BFFF sessions it is not necessary to register again T

his month’s topic is "Exploration and Preparation". The aim is to take space and make space regarding preparation for clinical visits, exploration of what a diagnosis means to you, and how we can best support each other in this bleeding disorder journey. Please register here: https://bit.ly/4pgFJWG ⬅️