CHES Foundation, Inc.

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Middleboro, MA
CHES Foundation, Inc.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members.

CHES Foundation seeks to empower those affected by rare bleeding disorders through education, personalized support, and community connection, ensuring every person has the knowledge, resources, and advocacy they need to live confidently and thrive. CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment. Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment. For info, please visit our website.

03/01/2026

🚨 Thank you Hemophilia News Today for posting such an amazing post about One Drop, the ONLY national conference for the Ultra-Rare Community. It has been an amazing weekend and we're not quite done yet! 🩸❤️

02/28/2026

𝗛𝗮𝗽𝗽𝘆 𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗗𝗮𝘆! 🦓

Today, we honor the strength and resilience of those living with rare bleeding disorders. Rare Disease Day shines a spotlight on the unique challenges faced by our community and the incredible courage displayed every day. Let's join hands to raise awareness, amplify voices, and support ongoing research and advocacy.

What does Rare Disease Day mean to you? Share your stories, spread the word, and let's stand united in our mission to bring hope and healing 💪💜

02/27/2026

Embarking on a unique journey with a bleeding disorder can feel daunting, but remember, you are never alone. At CHES, we stand proudly by your side, offering unwavering support every step of the way.

Our community thrives on the strength we find in one another, where every connection and shared experience brings us closer together. Whether you're a patient or a caregiver, your journey is supported by a network that cares deeply and shares profoundly.

How has CHES helped you find strength and resilience on your journey? Share your stories in the comments below, and let's continue to inspire each other with the power of community and unity 💜✨

02/24/2026

Did you know that Bernard-Soulier syndrome is a rare inherited blood clotting disorder characterized by unusually large, giant platelet cells? 🤯It's true!

🩸 This ultra-rare condition leads to prolonged bleeding time, excessive bleeding, and spontaneous ecchymoses. Due to its rarity, BSS might not be the first condition clinicians consider, and diagnosis often requires a high level of suspicion and family history assessment.

🔍 General coagulation studies may not be helpful, and the paucity of data can obscure the diagnosis. However, recognizing BSS is crucial for proper management and family screening.

At CHES, we are committed to providing quality educational programs for those with ultra-rare factor/platelet disorders, like Bernard-Soulier syndrome. Our One Drop Ultra Rare Bleeding Disorders Consortium brings together individuals with rare conditions for support and learning.

📅 We can't wait to see everyone at One Drop in Tampa this week and again in November! Will you be there? Let us know in the comments👇

Data source: NIH, https://bit.ly/4aqMK0r

02/23/2026

The countdown for [rescheduled] One Drop 2025 is ON! ⏰

We’re so excited to see everyone in Tampa this week! As we get closer to Friday, you may have some day-of questions. Swipe through our carousel for some of our more popular FAQs, and check out the One Drop website for the full list, as well as the event agenda: https://ches.education/one-drop

A BIG thank you and appreciation goes out to our legacy Platinum Sponsor, Novo Nordisk, for their continued support of One Drop, the F7 Retreat, and GT Symposia over the years. We also extend our gratitude to our Silver Sponsor,

Let’s make this an unforgettable weekend of learning, networking, and community building. See you there! 🙌

02/21/2026

Powerful 🔋 edition! Heather dives into the importance of support in this community and how little bits come together to make something big. Education and connections within all of our chronic conditions must remain a constant in all of our lives. Plus, get we're EXCITED for our One Drop conference in Tampa, FINALLY happening NEXT WEEK, Feb 27-Mar 1!

Get caught up in the latest Digital Digest! 👉 https://ches.education/newsblog/2026/bdnews2-20-champions-lbdeadline-grandma

02/20/2026

Happy National Caregivers Day! 💜 As we honor the incredible caregivers in our community, we're sharing our top tips to help you navigate your journey with strength and resilience:

1️⃣𝗨𝘁𝗶𝗹𝗶𝘇𝗲 𝗥𝗲𝘀𝗼𝘂𝗿𝗰𝗲𝘀: Take advantage of the resources available to support you and your loved ones. Explore the CHES website, where you’ll find our Lifelines for Health archive, the Lifelines for Health Digital Digest, articles, videos, and more: https://ches.education

2️⃣𝗣𝗿𝗶𝗼𝗿𝗶𝘁𝗶𝘇𝗲 𝗦𝗲𝗹𝗳-𝗖𝗮𝗿𝗲: Remember, caring for yourself is just as important as caring for others. Make time for rest, relaxation, and activities that rejuvenate your spirit, like unwinding with a good book or an afternoon walk.

3️⃣𝗕𝘂𝗶𝗹𝗱 𝗮 𝗦𝘂𝗽𝗽𝗼𝗿𝘁 𝗡𝗲𝘁𝘄𝗼𝗿𝗸: Connect with other caregivers or join a support group to share experiences and gain valuable insights. CHES can be a great place to find community and support through both in-person and virtual events. Remember, you are not alone on this journey!

4️⃣𝗦𝗲𝘁 𝗥𝗲𝗮𝗹𝗶𝘀𝘁𝗶𝗰 𝗚𝗼𝗮𝗹𝘀: Establish achievable goals that allow you to focus on what truly matters without overwhelming yourself. Celebrate small victories along the way.

5️⃣𝗣𝗿𝗮𝗰𝘁𝗶𝗰𝗲 𝗦𝘁𝗿𝗲𝘀𝘀 𝗠𝗮𝗻𝗮𝗴𝗲𝗺𝗲𝗻𝘁: Incorporate stress-reducing techniques, such as mindfulness or meditation, into your routine to maintain emotional balance.

6️⃣𝗦𝘁𝗮𝘆 𝗜𝗻𝗳𝗼𝗿𝗺𝗲𝗱: Keep up-to-date with the latest developments in healthcare and treatment options related to your loved one's condition. Subscribe to our online mailing list and receive the latest updates directly to your inbox: https://ches.education/communications-profile-form

02/20/2026

‼️ Important Aꜱꜱɪꜱᴛᴀɴᴄᴇ Nᴇᴇᴅᴇᴅ 👇

For this year CHES is asking all participants who are financially able to cover the cost of overnight hotel rooms for in person CHES experiences. As the funding landscape continues to change there are significant reductions of support for all. The CHES community is no exception to this reality.

Read more about this situation in our news blog press release here ➡️ https://ches.education/newsblog/2-19-ches-changes-support-needed

We know based on years of feedback that people would like to contribute to further CHES’s vision. CHES Champions is set up for donations of any size. With a little love, we can ensure that all our community members have equitable access to be seen, heard, and supported.

02/19/2026

As we continue our countdown to Rare Disease Day on February 28, let’s shine a light on Factor VII (7) Deficiency, the most common of the rare bleeding disorders. Here’s what you need to know:

🔹𝗪𝗵𝗮𝘁 𝗶𝘀 𝗙𝗮𝗰𝘁𝗼𝗿 𝗩𝗜𝗜?: Factor VII (FVII), also known as proconvertin, is a protein crucial for initiating the clotting process. When bound to tissue factor, it triggers the clotting cascade leading to blood clot formation.
🔹𝗛𝗼𝘄 𝗥𝗮𝗿𝗲 𝗜𝘀 𝗜𝘁?: With an incidence of 1 in 300,000-500,000, Factor VII Deficiency is the most prevalent among rare factor deficiencies.
🔹𝗜𝗻𝗵𝗲𝗿𝗶𝘁𝗮𝗻𝗰𝗲: It is inherited in an autosomal recessive manner, affecting men and women equally. Both parents must carry the gene to pass it on.
🔹𝗦𝘆𝗺𝗽𝘁𝗼𝗺𝘀: Severity varies; severe cases can involve joint and muscle bleeds, easy bruising, and bleeding post-surgery. Women may experience severe menorrhagia.
🔹𝗗𝗶𝗮𝗴𝗻𝗼𝘀𝗶𝘀: Determined through aPTT and PT tests, with confirmation via a FVII assay.
🔹𝗧𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁 𝗢𝗽𝘁𝗶𝗼𝗻𝘀: Recombinant factor VIIa (rFVIIa) is the primary treatment, with prothrombin complex concentrates and fresh frozen plasma as alternatives.

At CHES, we are committed to providing quality educational programs for those with rare bleeding disorders, like Factor VII deficiency. Our One Drop Ultra Rare Bleeding Disorders Consortium brings together individuals with rare conditions for support and learning. https://ches.education/one-drop

02/17/2026

𝗥𝗮𝗻𝗱𝗼𝗺 𝗔𝗰𝘁𝘀 𝗼𝗳 𝗞𝗶𝗻𝗱𝗻𝗲𝘀𝘀 𝗗𝗮𝘆: 𝗦𝗵𝗮𝗿𝗲 𝘁𝗵𝗲 𝗟𝗼𝘃𝗲! 💌

Today is all about spreading joy and kindness within our community. Whether it's a simple smile, a heartfelt note, or lending a helping hand, every act of kindness counts and makes the world a brighter place.

Let's celebrate by sharing your random acts of kindness in the comments below and inspire others to join the movement. Remember, kindness is contagious – let's make it go viral! 🌟

02/14/2026

This Valentine's Day, we celebrate the love and support that binds our CHES community together. Whether it's the unwavering commitment of caregivers, the compassionate touch of healthcare professionals, or the solidarity shared among patients, love is the heartbeat of our community.

Let's honor the connections that uplift us, the friendships that empower us, and the acts of kindness that make a difference every day. Share your stories of love and support in the comments below and let’s spread the warmth this Valentine’s Day! 🌹

02/13/2026

🦓 𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗗𝗮𝘆 𝗖𝗼𝘂𝗻𝘁𝗱𝗼𝘄𝗻: 𝗘𝘅𝗽𝗹𝗼𝗿𝗶𝗻𝗴 𝗜𝗻𝗵𝗶𝗯𝗶𝘁𝗼𝗿𝘀

Did you know that inhibitors can develop in anyone with hemophilia A, hemophilia B, or von Willebrand disease (VWD)? 🤔These antibodies block the effectiveness of clotting factor treatments, making it crucial to manage and understand.

🩸 People with hemophilia B may experience allergic reactions during or after treatment with factor IX. These can be severe, so communicating with your hemophilia treatment center is vital.

🤝 At CHES, we understand the personal challenges of living with inhibitors, and we are here to support you. Our programs, like After the Shock Inhibitor Family Camp and InhibitCon, create a space for families to connect, learn, and grow together.

Join us in New Orleans this September for InhibitCon to gain the tools and support you need to thrive with an inhibitor diagnosis. Learn more about CHES programs & campaigns: https://ches.education/

Data source: National Bleeding Disorders Foundation, https://bit.ly/4rKVsh5

Address

Middleboro, MA
02346

Telephone

+17818788561

Website

http://www.ches.education/

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Our Story

CHES provides support for individuals with chronic medical conditions that allows them to assert their independence and the knowledge to more fully engage in their treatment.

Over the years CHES has grown in scope and reach, attracting national and international attention for our unceasing work on behalf of our ever-widening community. With the important help of our funders, CHES offers those in need with a wide range of resources, including on-site patient programming, education, and the latest information on research and treatment.

CHES is currently owned and managed by Janet Brewer and Eric Lowe, both of whom live with chronic conditions, their own or those of family members. For info, please visit our website.