My Every Breath

My Every Breath A Memoir of love, loss and hope. ISBN 9781771367097

A remarkable memoir of endurance - the compelling story of a woman's lifelong battle with Cystic Fibrosis and her astonishing resilience despite a double lung transplant and a senseless murder.

11/06/2025

Did you know your lungs carry you through the day with 22,000 breaths?

November is , and if you are a registered organ and tissue donor, one of the organs that you may be able to donate at the end of your life are your life-giving lungs. To breathe freely, easily. What a gift.

People who need lung transplants have failing or diseased lungs that cannot be improved with medication or other medical intervention. You may be able to donate one or both lungs to someone suffering with cystic fibrosis, emphysema, and pulmonary fibrosis. And, ultimately, give them more time living – and breathing. In Canada, 62.5% of patients who received a first lung transplant from a deceased donor survived at least 5 years.

Choose to leave well so others can live well.

https://www.donateyourorgans.ca/

Source: Canadian Institute for Health Information. Annual Statistics on Organ Replacement in Canada: Dialysis, Transplantation and Donation, 2010 to 2019.
Ottawa, ON: CIHI; 2020.

06/11/2025
06/02/2025

CFTR modulator therapies: A breakthrough in treating cystic fibrosis –and why Alyftrek deserves your voice.

Cystic fibrosis has long been viewed as a relentless and life-limiting condition, with treatment historically focused on managing symptoms rather than addressing the underlying cause. But the emergence of CFTR (Cystic Fibrosis Transmembrane Conductance Regulator) modulator therapies has radically changed that narrative, offering new hope to thousands of people living with CF. These revolutionary drugs target the root cause of the disease — mutations in the CFTR gene — and not just the symptoms.

Read More : https://acrobat.adobe.com/id/urn:aaid:sc:AP:0f469bcd-2750-40ae-b6ed-4ae366451c40

03/01/2025

What does it look like to live with a rare disease? In recognition of Rare Disease Day, share a photo of yourself or your loved one with cystic fibrosis in the comments below to share what life looks with a rare disease.

06/13/2024

Ninety percent of Canadians say they support organ donation; only 32% are actually registered. We’re on a mission to get as many Canadians registered as possible. The more registered organ donors there are, the more likely that the 4000+ Canadians on the waiting list right now will not have to wait so long for lifesaving transplants.

Registering to donate your organs is a really easy process.

We’re talking five minutes tops on your computer or phone.

Registering to be an organ donor does not mean you will actually be one at the end of your life. It just means that you would like to be one. If you happen to die in a way where your organs can be donated (only 1-2% of people die this way), then you may become an organ donor at the end of your life. If you support organ donation, please register your decision at www.donateyourorgans.ca.

Choose to leave well so others can live well.

03/23/2024
03/19/2024

The Gift of Life flag is flying today. Raised at HSC_Winnipeg, the flag is up in honour of a donor, someone who has offered a life-saving gift to others in need either through living or deceased organ donation. The flag is a tribute to the courage, compassion and generosity of the donor and recognizes the decision to say yes to organ donation. Thank you.

02/22/2024

Documentary about David and Dennis Pischke, the twins featured in the book, "Where Children Run." This video was shot on location in Moosehorn, Manitoba by j...

06/11/2023

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Winnipeg, MB

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