PiNSA

13/03/2026

🎬 In our latest IPOPI mini-doc, we feature insights from Prof Siobhan Burns, Professor of Translational Immunology at University College London, who helps explain the science behind Primary Immunodeficiency (PID) and why understanding the genetics of these conditions matters for patients.

From her work at Great Ormond Street Hospital to the Royal Free Hospital in London, Prof Burns has dedicated her career to uncovering how genetic changes affect the immune system - and how this knowledge can improve patient care.

💙 This mini-doc shines a light on the patient journey, combining expert insight with real experiences.

https://youtu.be/_0mRituivcc?si=uRvLKnAuGB_ODw8i

👉 Watch it, share it, and help us spread the word.
Invite a colleague, friend, or member of your community to watch it too—because the more people understand PID, the stronger our community becomes.

08/03/2026

🛡️ Do you know the warning signs of Primary Immunodeficiency (PI)?
Primary Immunodeficiencies are a group of more than 550 rare, chronic conditions where a part of the body's immune system is missing or does not function correctly - and they can affect anyone, regardless of age, gender, or ethnicity.

Here are key symptoms to watch for 👇
🔁 Recurring infections — frequent infections that are harder to treat than usual.
🦠 Unusual or severe infections — infections that are more severe than expected, or that a person with a healthy immune system would be unlikely to get.
💙 Awareness saves lives. Share this post and help someone get the answers they deserve.

05/03/2026

Do You Know the Difference Between Primary Immune Deficiency and Autoimmune Disease?
They can sound similar, but they’re actually very different — and understanding the difference can make a huge impact on diagnosis, treatment and long-term outcomes.
This quick Clinical Brief breaks it down in a clear, patient-friendly way, including why some patients can experience both at the same time.
Read and share:
https://www.igliving.com/magazine/articles/IGL_2026-02_AR_Understanding-the-Difference-Between-Primary-Immune-and-Autoimmune-Disorders.pdf

02/03/2026

Let us look at some common misconceptions about Primary Immunodeficiencies. 💡

It is important to understand that PIDs present as a complex set of symptoms. Let us shine a light on these symptoms in order to spread awareness. 🔦

28/02/2026

23/02/2026

Primary Immunodeficiencies (P*s) are typically genetic conditions where the immune system doesn’t function properly from birth 🧬. “Immunocompromised” is a broader term that can describe many situations – temporary or acquired. Understanding the difference helps ensure accurate care and awareness 📢.

21/02/2026

Foundation volunteer Chris Simpson underwent a novel base-editing gene therapy to treat CD40 ligand deficiency, also known as X-linked hyper IgM syndrome, at the National Institutes of Health (NIH).

16/02/2026

Watch this mini-dcoumentary, The Life Journey with Primary Immunodeficiencies, made by IPOPI. Learn about diagnosis, delays in treatment and challenges that Primary Immunodeficient Patients face.

Primary Immunodeficiencies (PIDs) are a group of rare and often underdiagnosed conditions that affect people from birth through adulthood and beyond.This min...

14/02/2026