29/10/2025
IF I GET DEMENTIA…
I’d like my family to hang this wish list on the wall where I live. I want them to remember these things.
✨ Every time you enter the room, announce yourself. “Hi Dad – it’s Amanda.” Never ask, “Do you know who I am?” That only causes anxiety.
✨ Embrace my reality. If I think my spouse is still alive, or that we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
✨ ✨ Don’t argue about what’s true for me versus what’s true for you.
✨ If I seem unsure who you are, don’t take it personally. My timeline is confusing to me.
✨ When I can no longer use utensils, don’t start feeding me right away. Switch me to a finger-food diet and see if I can still feed myself.
✨ If I’m sad or anxious, hold my hand and listen. Don’t tell me my feelings are unfounded.
✨ Don’t treat me like a child. Talk to me like the adult I am.
✨ Help me keep enjoying the things I’ve always loved — exercise, reading, visiting with friends.
✨ Ask me to tell you stories from my past.
✨ If I become agitated, take time to figure out what’s bothering me.
✨ Treat me the way you would want to be treated.
✨ Keep plenty of snacks in the house. Even now, if I don’t eat, I get angry — and with dementia, I may not be able to explain what I need.
✨ Don’t talk about me as if I’m not in the room.
✨ Don’t feel guilty if you can’t care for me 24/7. It’s not your fault — you’ve done your best. Find someone who can help, or a great new place for me to live. (One with a bus and activities!)
✨ Visit often if I live in a dementia care community.
✨ Don’t show frustration if I mix up names, events, or places. Take a deep breath — it’s not my fault.
✨ Keep my favorite music playing within earshot.
✨ If I like to pick up items and carry them around, help me return them to their place.
✨ Don’t exclude me from parties and family gatherings.
✨ Remember that I still love hugs and handshakes.
✨ Most of all — remember that I am still the person you know and love.
I came across this beautiful piece written by an unknown author. It touched my heart deeply, so I’m sharing it here in hopes helps. 💛
ᴄᴏᴘʏ ᴀɴᴅ ᴘᴀsᴛᴇ in Honor of someone you know or knew who has dementia. In Honor of all those I know and love and lost who are fighting Dementia/Alzheimer’s.
If you’d like to know more or find support, visit www.dementiasa.org.