Hope For Hamish

13/03/2026

So very excited to finally get my hands on this today!!! Hopefully having to use adrenaline is in the past for us, but we still always have to carry it. This is a gamechanger, a nasal spray instead of using the Epipen which is a needle. Hopefully this will give not only Hamish the confidence to self administer if he has to, but anyone else who may be caring for him, such as his teachers at school. I really think using a nasal spray instead of a needle will result in faster administration, instead of trying to make a decision or watch and wait scenarios. Taking away the fear of it for Hamish, will take away hesitancy and fast administration is the key. Delays cost lives.

I asked for a prescription for this at his recent immunology appointment and was told I would have to wait months for it as there was no stock, the next day I checked with our local chemist and they ordered it straight in. Thank you to my amazing nurse prescribing friend who sorted us with a script. Yet another let down from immunology here!!!!!

And on another note, Hamish has just had his bloods done and his ige levels have more than halved from last year. They are the lowest they have ever been. This has been a very good week for Hamish. He is currently on 65mls milk daily as maintenance and he is enjoying a mini dairy milk egg every day as a little treat. I wish I had filmed the moment he had his first taste of "real" chocolate. His face lit up and he said "this tastes amazing!". He wants to try m&ms next.

His goal is to eat pizza at Pizza Express next time we are in the UK.

17/11/2025

On Friday 14th November Hamish reached another milestone. 50mls of milk. I still have to pinch myself everyday to believe this.

A mum at the allergy conference last month said "avoidance gets you nowhere" and I couldn't have said it better myself. Without OIT, Hamish would be in exactly the same position as he was when he was diagnosed at 6 months of age. Courtesy of OIT, he can now tolerate 50mls of milk. It is beyond amazing. He is thriving!

Next milestone 60 mls which is maintenance. We can stay there or we can keep going. Our goal is for Hamish to freely eat his allergen so we plan to keep going. Wish us luck 🙂

05/11/2025

Two weeks ago we attended the Allergy & Gut Health Summit in Sydney and were super lucky to win this absolutely amazing hamper from Happy Tummies. Hamish was thrilled, so was I, even though it was very stressful sneaking it onto the plane when our carry on was super overweight already! Was well worth the stress and we now have lots of baking to be getting on with! Have a look at Happy Tummies page for lots of yummy allergy friendly treats xx

06/10/2025

Hamish and I are thrilled to be attending this summit in a few weeks. We hope to gain insights into improving his gut health to aid his OIT and EOE journey. This is my first time travelling and flying on my own with Hamish and I'm not even nervous!
Hamish is currently on 40mls a day of milk but we will skip dosing while away to be on the safe side whilst flying and so he can enjoy his time and not have to do rest time. We will resume dosing as normal when we get back.

Australia’s first Gut Health & Allergy Summit - science, strategies & community in one groundbreaking day.

12/09/2025

💬 'Why do you have a different lunch?' 'Why can’t you sit with us?' 'Why can't you try some of mine?' 'I don't believe you, I bet you just don't like it.'

Many kids with food allergies hear these types of remarks all the time; they carry a weight of responsibility that for some can turn into deep stress and anxiety.

Having to navigate all sorts of situations in order to remain safe, food allergies touch every part of a young person's daily life and school is a big part of a that life.

That’s why we developed Allergy School - a suite of FREE, expert-led online resources to support both kids with food allergies and school staff too.💡

Allergy School provides school leaders and teachers with the tools they need to:
✅ Understand and appreciate the complexities of food allergies and anaphylaxis
✅ Respond confidently in any allergic emergency
✅ Ensure their school/classroom/club setting is a safe place for allergic children

Let’s keep children safe.
Let’s make allergy training part of every school’s toolkit.

📚 Learn more or ask your school to sign up: http://allergyschool.org.uk

12/09/2025

1 year ago today marks Hamish's last day at Freedom Allergy. This has been such a fast year full of ups and downs with his journey. Today, Hamish is doing amazing. He is on 30mls of milk which he is tolerating well. He even likes the taste and takes his milk with his dinner with no fuss whatsoever. He doesn't complain about rest time, it is just part of his daily routine. Dr A is very pleased with Hamish's progress.

We have decided to take a different route with his eoe and after discussion with a gut health dietician, we are trialling the elimination diet to find his trigger. This will enable us to avoid that food and there will be no need for him to be on steroids for the rest of his life. We have removed wheat from his diet and he has not had any eoe symptoms and has actually gained 1.4kg in 3 weeks. So fingers crossed, I think we may have found the trigger. Hamish has adjusted to going wheat free really well and the only thing he has missed is McDonalds chicken nuggets.

For anyone who is interested in OIT, I am happy to help you find information and sources of information. It has changed Hamish's life for the better. My only regret is not knowing about it sooner and being able to act quicker.

18/08/2025

A Little Update:
So we are just over a year into OIT. Lots of ups and downs with dosing. We are currently on 27mls milk, but unfortunately the winter bugs have caught up with Hamish and today he is sick. So dosing has stopped again and I will restart once he is over this cold. Feeling a bit frustrated as it feels like as soon as we are on a winning streak, a cold comes out of nowhere and shoots us back down. Hard not to be disappointed. So today is not a good one, but we keep going! He is still so much further ahead than he was this time 18 months ago where we were on strict food avoidance.

We have also had a consult with a gut health dietician and have decided to try the elimination diet to try to find what is Hamish's EOE trigger. Today is day 1 of eliminating wheat from Hamish's diet to see if that is a trigger. Not the best day to start when he doesn't want to eat because he is sick!

06/05/2025

This is a late post given Easter was a few weeks ago. I picked Hamish up from his after school care and noticed the kids were all watching the Peter Rabbit movie. I was THAT parent that spoke to the educator and just let her know the content and that I would prefer if the movie wasn't shown in Hamish's presence. Michael as always, mortified at me was halfway back to the car 🤣 BUT, she was super understanding once I explained why. If you don't know, you don't know. Anyway, on the topic, I will link below a list of movies which mock allergies and anaphylaxis for anyone who may be interested. Sadly, lots of them are kids movies.
It's a pretty low blow and really winds me up. Imagine having to live with the fact that a mouthful of food can kill you and sit in a cinema where it is used as comedy and listening to everyone surrounding you laughing.
Prior to having Hamish, I can remember finding the scene in Hitch pretty funny, but now that I have lived experience of the fear of allergy, it just makes me feel sick and angry.
Hope this post is helpful in educating people on why these scenes are not funny. No one sits in a cinema and laughs at someone who has cancer, why should anaphylaxis be any different?

06/05/2025

This is your reminder to get involved in this year's Food Allergy Week and take part in our short survey that'll help us learn more about how people living with food allergy navigate travel. ✈️🚆🛳️🌴

Whether you've travelled locally or overseas, or are avoiding travel because of food allergy - we'd love to hear from you.

👉Click here https://loom.ly/cMIlh84 to participate in the short anonymous survey that'll only take a few minutes. Every answer helps!

22/04/2025

A powerful message to make people stop and think about how dangerous it is for our loved ones every time they eat. Check your food label packaging today for everything you eat, how many times do you read may contain? Imagine having to take the risk of severe illness or death every single time you eat. It's not fun.

Most people don’t realise the immense burden of responsibility that food allergies place on individuals and their families. The fear of accidentally consuming their allergen isn’t just an occasional worry, it’s a constant reality. Asking for transparency of food ingredients, can feel like you are asking for the earth. Every meal, every snack, every bite comes with a question: “Is this safe for me?”

Clear and accurate ingredient labelling from the food industry is essential for people with food allergies to be able to make safe and informed food choices. It is important for May Contain labels to be taken seriously, yet due to the mass, often blanket labelling of them, these statements can often feel lazy; their lack of regulation and consistency, incredibly frustrating.

For many people with food allergies, the overuse of May Contain labelling doesn’t just limit options, it severely restricts their already narrow choices, making an often-challenging diet feel even more difficult.

This sandwich analogy will strike a nerve for many of you.

So we ask the question:
🥪Would 'they' eat a sandwich that ‘May Contain’ Salmonella?

We think not.

02/04/2025

Took a little trip to Melbourne. Another 2 successful flights done and dusted 🙌
Prior to going, we were back at the start with dosing for Hamish following his break from OIT (see previous post). Dosing was stopped due to flying and yesterday we restarted again. We have a very conservative plan to get Hamish restarted and back on track. So positive news again!!!!

Plus, little hi-five to us for another safe trip where we navigated airports, flights, air shows and places to eat out with Hamish. Doing our best to ensure he feels safe and confident to travel. He even advocated for himself by telling the waitress that he was anaphylactic to dairy so no milk in his scrambled eggs 😄

12/03/2025

Little update on Hamish.
February was not a kind month to us. Hamish had an anaphylaxis on Tuesday 11th February just before bedtime. It came completely out of the blue. He had had his dose of milk over 2 hours prior to it. He was a day off updosing to 50mls. He was watching Sonic on tv and just started coughing which wouldn't stop. He then started to get distressed and was constantly clearing his throat. Put his dad on facetime (he was working away) to see if that would calm/distract him, but after 5 or so minutes he asked for his epipen. I gave the epipen and thankfully the coughing stopped within a few minutes then about 5-10 minutes later he felt much better (just in time for the paramedics to arrive!). We then had an overnight stay in hospital. During his overnight stay Hamish started to have regular low heart rates in the 50s, and this is still happening so we have an appointment with his paediatrician this week to try to get to the bottom of it. He also had a surveillance scope to check his EOE status and it has also reared its ugly head. So for now we continue with daily steroid treatment for that.
We have been off milk for a month but are currently working on a new plan to restart the milk whilst trying to minimise triggering the EOE more.
Hamish has had more anxiety again with the anaphylaxis and an incident at school with a child throwing Cheezels at him to "see what would happen".
So, we are hoping that March and the rest of the year will be a better month and that we can start moving forward again. Really gutted we got so far and then had the initial set back of the anaphylaxis. I think it may have been caused by a combination of the hot weather and Hamish just starting back at school after the school holidays and not yet being back into a sleep routine.

I just wanted to be transparent and show the good, the bad and the ugly of this journey. I wouldn't change it though, I am still glad to be on this journey. I just find it disheartening to have a setback. But we are doing this for Hamish's adulthood, so we have plenty of time to get to where we want to be 💙