Erica's Journey

Erica's Journey Erica was born on 8th January 2013, this page is devoted to her journey. Erica was born on 8/1/2013, six and a half weeks early. Pierre Robin Sequence.
3.

During the pregnancy we were told that she will have a lot of health issues and to prepare ourselves for the worst. Erica is getting stronger every day and is currently at kindie 3 days a week and going to full time primary in 2018. Here is a list of her conditions.
1. Chromosomal disorder 1q deletion 10p duplication with resultant lissencephaly and absent corpus callosum.
2. Short stature and mic

rocephaly.
4. Mild pulmonary stenosis.
5. Soft grade 1 systolic murmur.
6. Bilateral mild hearing loss.
7. Dyskinetic quadriplegia.
8. Cleft palate.
9. Hip Dysplasia.
10. Fed 100% via a stomach PEGJ

Ready to go out for lunch with our fam
21/04/2026

Ready to go out for lunch with our fam

19/04/2026

Nearly too big for her favourite swing

Out for lunch with the family to celebrate dad's birthday ❤️
18/04/2026

Out for lunch with the family to celebrate dad's birthday ❤️

Out for lunch
18/04/2026

Out for lunch

PCH today for Respiratory appointment, all boxes ticked.
07/04/2026

PCH today for Respiratory appointment, all boxes ticked.

Quick trip to the shops
02/04/2026

Quick trip to the shops

PCH Cardiology today, all boxes ticked
31/03/2026

PCH Cardiology today, all boxes ticked

27/03/2026

Switching with Elvis

Very comfy
26/03/2026

Very comfy

Address

Perth, WA

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