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Cystic Fibrosis WA

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Cystic Fibrosis WA

Cystic Fibrosis WA (CFWA) was established by a group of parents in 1975. Since those early days, we have grown into a professional not for profit organisation.

Today CFWA provides a comprehensive range of services, in home support, and resources for people affected by cystic fibrosis (CF) in Western Australia. We have built strong partnerships and continue to collaborate with a range of state and national organisations, and contribute extensively to CF research.

22/12/2025

This year, we’ve created a special CFWA Christmas Bauble for you to hang on your tree! 🎄

This special bauble features our Christmas Appeal ambassador, Piper — a bright and determined 6-year-old living with cystic fibrosis, whose Christmas wishlist is full of dreams every child deserves to chase.

Hang it on your tree as a reminder of the strength, hope and joy that families like Piper’s share — and the difference your support can make this Christmas. ❤️

👉 Download your bauble here: https://bit.ly/appeal-bauble

18/12/2025

“My Christmas wish is definitely for a cure for this horrible genetic disease so that my strong, sassy daughter can be whatever she wants to be and can live a full, healthy and happy life." — Tyson, Piper’s dad. 💖

Living with cystic fibrosis is full of daily routines, medications, and physio, but your support helps kids like Piper enjoy the magic of childhood and thrive despite the challenges.

This Christmas, you can help make wishes come true for families navigating CF.

🎄 Donate today: https://fundraise.cfwa.org.au/christmasappeal2025

17/12/2025

🎄CFWA Office Christmas Closure Dates 🎄

Please note that the CFWA office will be closing for a break on Friday December 19 and reopening on Monday January 5.

Please reach out to your CF team for support during this time. We wish you all a wonderful Christmas and Happy New Year! ❤️

16/12/2025

Piper’s Christmas wishlist is full of the little things every child dreams of - a new phone, a bike, a guinea pig, a shiny locket. 💖

Living with cystic fibrosis means every day is structured around medications, physio, and routines - but your support helps kids like Piper stay healthy, active, and enjoy the magic of the season.

This Christmas, your gift can make a real difference for families navigating CF - helping with hospital care, physio, and everyday support.

🎄 Donate today and make wishes come true: https://fundraise.cfwa.org.au/christmasappeal2025

15/12/2025

This year we welcomed 33 amazing kids across our online CF Kids Connect and CF Youth Connect programs. In total we ran a huge 40 sessions full of creativity, laughter, and connection. From crafts to LEGO builds to online games, chats, and everything in between!

Because of cross-infection risks, people with CF can’t meet in person which makes these online spaces truly vital. Connect gives kids and teens a safe place to build friendships, feel understood, and realise they’re not the only ones navigating life with CF.

We’re already planning for 2026 and can’t wait to share what’s coming next 💚

12/12/2025

What goes into a CFWA hospital bag?

Snacks, Legos, toys, colouring-in markers…and a whole lot of care. 🩵

When Piper was admitted to hospital, this bag helped brighten long days and reminded her mum she wasn’t alone.

This Christmas, your donation helps us pack and deliver these bags to families navigating long hospital stays with cystic fibrosis.

Help bring comfort to kids like Piper: https://fundraise.cfwa.org.au/christmasappeal2025

11/12/2025

This Christmas, you can help children like Piper enjoy the little things - from hanging with family, opening presents, or even just enjoying a holiday treat. 💖

CFWA provides vital support -hospital care packages, subsidies for activities, and emotional support - so kids living with cystic fibrosis can thrive.

Every donation helps families stay healthy, happy, and enjoy the magic of the season.

🎄 Give today and make a real difference https://fundraise.cfwa.org.au/christmasappeal2025

11/12/2025

Check out this short animation we have created as part of our upcoming CF Futures project.

The CF landscape is changing. Many people with CF (though not all!) are now taking CFTR modulator treatments that are making real improvements to daily life; however, they still live with CF and face daily challenges.

As more people grow up without many of the “typical” CF symptoms, it can be harder to stay on top of treatments, maintain motivation, and recognise when you are becoming unwell. This animation is a reminder of the importance of maintenance therapy and keeping up a routine that works for you, even when you feel well; to protect future you.

CF Futures is our new suite of resources that looks at some of these challenges including managing finances, future planning, and some of the physical and mental changes people are experiencing as they’re getting older with CF.

Thank you to everyone in our community who has helped shape these resources. We are looking forward to sharing more with you soon!

08/12/2025

This is your last chance to pre-order CFWA’s limited-edition merch! 🎉

With only a small number of Snuggle Teddy Bears and 50th Anniversary Hoodies left, now’s the perfect time to secure a meaningful gift that supports families living with cystic fibrosis this festive season.

Make sure to place your order by December 12 to receive it in time for Christmas. 🎄

👉 Grab yours today: https://www.cfwa.org.au/shop/

04/12/2025

Surprise! We’ve got extra limited-edition CFWA 50th Anniversary hoodies and snuggle teddy bears in stock! 🎁

While we’re busy fulfilling all preorders, we’ve added a small batch of merch for those who don’t want to wait. These festive treasures are perfect gifts and every purchase supports families living with cystic fibrosis, helping kids like Piper stay healthy and happy.

Don’t miss out - once this extra stock is gone, it’s gone for good!
Grab yours now: https://www.cfwa.org.au/shop/

04/12/2025

Farewell and congratulations to Nurse Practitioner Sue Morey, who is retiring today after decades of caring for the adult CF community🌹

Thank you for everything you have contributed to ensure outstanding care for the adult community, and all the best in your well-earned retirement!

03/12/2025

🎄 Living with cystic fibrosis this Christmas takes a little extra planning!

Here’s Piper’s guide to a safe and happy holiday:

✅ Morning physio everday
✅ Check how many enzymes to take with every Christmas snack and meal
✅ Don't forget to take meds
✅ Do lots of exercise (this bit’s the most fun)
✅ Mum to check relatives are 100% well before visiting
✅ Evening physio everyday

There is no time off from CF at Christmas; medications, physio and lots of planning are essential for kids with CF. 💙

This Christmas, you can help families like Piper’s navigate the season safely — and bring a little extra magic with your donation.

👉 https://fundraise.cfwa.org.au/christmasappeal2025

Address

The Niche, 11 Aberdare Road
Perth, WA
6009

Opening Hours

Monday	8am - 4pm
Tuesday	8am - 4pm
Wednesday	8am - 4pm
Thursday	8am - 4pm
Friday	8am - 4pm

Telephone

+61862244100

Website

http://cfwa.org.au/

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