Cystic Fibrosis WA

21/02/2026

Although the South32 Rottnest Channel Swim has unfortunately been cancelled due to bad weather conditions, we still want to give a massive shoutout to Eleisha, who has already raised over $3,000 for people living with cystic fibrosis!

Having been an education assistant in Connor’s kindy class, Eleisha has continued to show her dedication to the cause. She’s using her love of swimming and fitness to make a difference and support children like Connor who are living with CF (pictured below). 💙

If you’d like to support Eleisha’s incredible fundraising efforts, you can donate here:
https://rottnestchannelswim26.grassrootz.com/cfwa/eleisha-lucas

18/02/2026

Thinking about doing the HBF Run for a Reason this year? Now’s a great time to jump in! 🏃‍♀️💙

Early bird registrations are open until 3 March. Plus, if you register early and raise your first $50, you’ll go in the draw to win a $75 rebel sport voucher!

HBF members also save an extra 20%, so don’t leave it too late 👀

Join Team CFWA today: https://www.hbf.com.au/run

17/02/2026

Great news!! Alyftrek® (Vanzacaftor with tezacaftor and with deutivacaftor) will be listed on the Pharmaceutical Benefits Scheme for the first time to treat cystic fibrosis in people who have at least one mutation in the CF transmembrane conductance regulator (CFTR) gene which is responsive to treatment.

13/02/2026

New research suggests Trikafta may do more than improve lung function in cystic fibrosis. 🧬

A new Italian study has found that Trikafta may also help reduce chronic inflammation, a major driver of long-term lung damage in people with CF. In adults with advanced lung disease, the medication not only improved lung function, nutrition, and reduced intravenous antibiotics treatments but it also lowered multiple markers of inflammation in the blood.

While more research is still needed to understand the long-term effects and impacts in younger patients, the findings suggest Trikafta’s benefits could extend beyond CFTR gene correction.

🔗 Read the full article here to learn more about what this could mean for the CF community.

Beyond lung function gains in cystic fibrosis, Trikafta may reduce chronic inflammation and protect patients from lung damage, per a study.

13/02/2026

Living with CF can shape how we experience relationships in unique and sometimes complex ways.

From friendships and dating, to family roles, future planning and relationships with your CF team, connection is often navigated alongside treatment, hospital care, and uncertainty. As treatments evolve and health outcomes improve for many, relationships can feel both more possible and more complex.

Learn more at our website:
www.cfwa.org.au/futures/my-relationships

This resource is part of our CF Futures series, grounded in lived experience and practical guidance shaped by our community.

CF Futures has been made possible thanks to generous support from Lotterywest

12/02/2026

Jonah’s Pill-Swallowing Win 💙

Just before turning seven Jonah was stuck, daily meds are essential for living with CF, but the tablets just wouldn’t go down. Then Sharon from CFWA stepped in with simple, practical techniques, and everything changed.

Within days, Jonah was swallowing his medication confidently, even without water! “Too good of news not to share,” his mum wrote. “There’s no way it would have happened without Sharon.”

Now Jonah is back on Trikafta. “I honestly can’t believe it,” his mum said. “To think he’s back on treatment has answered all my prayers.”

What a difference the right support can make! Who else might need a little help to unlock a big breakthrough?

10/02/2026

What a successful 18th year of the Corporate Battle of the Bands! 🎸🎤

The night delivered incredible energy, talent and community spirit, with corporate bands lighting up the stage in support of Cystic Fibrosis WA and Youth Focus.

Congratulations to Bravo Inferno, who took home the win on the night, and The Volatiles, who were crowned People’s Choice Award winners.

Thanks to the amazing support from bands, sponsors and attendees, who helped us raise an outstanding amount during the event. ❤️

09/02/2026

Can a group of six-year-olds teach us about community? 💙

For nearly 50 years, family and friends from The University of Western Australia’s Human Movement program have gathered on Rottnest Island, Western Australia to celebrate the end of the year. Over the past 15 years, a handicapped triathlon has been added which is a true celebration of the human spirit.

The past two years have been especially meaningful as children aged six to nine ran a fundraising stall, selling handmade bracelets, necklaces, and wind chimes to raise money for cystic fibrosis and supporting their friend William.

Together, they raised $132 and reminded everyone that this event is about far more than sport, it’s about community, compassion, and the love we share.

👉 Read more about their story here https://www.cfwa.org.au/news/fundraising-in-honour-of-william/

05/02/2026

HBF Run for a Reason is back! 🏃🏻‍♀️
Join Team CFWA on Sunday 24 May and help support children and adults living with cystic fibrosis across WA. 💙

📅 Sunday, 24 May
✅ Early bird registrations close 3 March
Also, if you register early and raise $50 or more, you’ll go in the draw to win a $75 rebel sport voucher!

Whether you’re running the 3km, 12km or half marathon, every dollar you raise helps fund essential CFWA support services and research.

👉 Sign up now and make CF your reason to run! https://www.hbf.com.au/run

02/02/2026

Lucy is driven, compassionate, and quietly powerful. 💪

With an early offer to study Occupational Therapy, Lucy is already building a future helping others thrive. But behind the achievements is a story of resilience, balancing ATAR pressure, boarding school life, and living with cystic fibrosis.

From discovering her passion through a chance work experience, to pushing through exams while battling a chest infection, Lucy’s story is about finding strength, leaning on support, and knowing that success doesn’t come in just one form.

👉 To find out more, read Lucy’s full story here https://www.cfwa.org.au/news/lucys-story-finding-balance-strength-and-joy-in-every-challenge/

31/01/2026

Wonderful news this morning.

From 1 February 2026, Alyftrek will be listed on the PBS, making this next-generation treatment more accessible to eligible Australians aged six and over.

We’re proud to share a major milestone for Australians living with cystic fibrosis.

From 1 February 2026, Alyftrek will be listed on the PBS, making this next-generation treatment more accessible to eligible Australians aged six and over.

Alyftrek combines three active ingredients - vanzacaftor, tezacaftor and deutivacaftor - to target the genetic cause of CF. As the first once-daily CFTR modulator, it helps control mucus production, supports lung and digestive health, and may make daily treatment routines easier to manage.

This achievement belongs to our entire community.

Thank you to the individuals, families, federation members and supporters who advocated alongside Cystic Fibrosis Australia, sharing your stories and insights to highlight why access to treatments like this truly matters.

Together, you made this possible, and we’ll continue working to ensure everyone living with CF can access the treatments they need to live full and productive lives.

30/01/2026

🎸Next Saturday! One night only! Will you be there?🎹
Eighteen years in and Corporate Battle of the Bands still delivers one of the best nights on the calendar, all raising funds for Cystic Fibrosis WA and Youth Focus.

Join us Saturday 7 February from 6–11pm as the Charles Hotel fills with live music, cold drinks and fierce competition.

Tickets are $40, or $350 for a table of 10. Numbers are limited, so gather your crew and secure your spot now. https://bit.ly/battle-of-the-bands-26