Cystic Fibrosis WA

06/03/2026

Our friends at Conquer Cystic Fibrosis are hosting an unforgettable evening of elegance, entertainment and impact, and you’re invited! 💛

The Conquer Cystic Fibrosis Gala Ball 2026 is on 16 May at Optus Stadium. From 6:30pm to midnight, guests will enjoy flowing drinks, a deluxe three-course meal, live entertainment, auctions, raffles and powerful stories of hope, all in support of conquering cystic fibrosis.

Secure your table and be part of a night that helps transform and save lives. https://www.trybooking.com/events/landing/1419168/

04/03/2026

Friendships & social life can be deeply shaped by CF, in both challenging and meaningful ways. 👭

Living with CF sometimes means missing social events or feeling out of step with friends because of treatments, fatigue, or hospital stays. Even when people care, they might not fully understand what it’s like to live with an invisible condition like CF.

As health changes, many people notice new opportunities to reconnect, make plans and explore activities, while others may struggle with guilt or expectations from family and friends.

Read more in our new CF Futures resources https://www.cfwa.org.au/futures/my-relationships/friendships-social-life/

03/03/2026

With 65 Roses back this year, you can make a real difference in the lives of West Australians living with cystic fibrosis by getting involved in one of these meaningful ways:

🛍️ Stall Attendant – Help sell fresh roses at shopping centres and the CBD on 28 - 29 May. It’s a fun, feel-good way to raise vital funds and awareness in your community.
🚗 Delivery Driver – Support the day behind the scenes by delivering fresh roses and bouquets across the Perth metro area from 27 - 29 May. Perfect if you enjoy being on the road and making things happen.
🌹 Rose Wrapping – Join us on 27 May to help prepare thousands of roses ready for sale. It’s fast-paced, community-driven and a volunteer favourite every year!

Whether you can give a few hours or a full day, your time will help make 2026 our biggest and most impactful 65 Roses Day yet.

Find out how you can get involved today! https://bit.ly/65-roses-day-26/

02/03/2026

Early bird registrations close in just days! ⏰
Don’t miss your chance to join Team CFWA at the HBF Run for a Reason on Sunday, 24 May. 🏃‍♀️💙

Register before 3 March, raise $50, and you’ll go in the draw to win a $75 Rebel Sport voucher too!

3km, 12km or half marathon - every step and every dollar helps support people living with cystic fibrosis across WA.

Sign up before early bird closes! https://www.hbf.com.au/run

28/02/2026

Today, on Rare Disease Day, we take a moment to recognise the 300 million people globally living with a rare disease.

We acknowledge our CF community and the daily challenges that many don't see. The strength it takes to manage daily treatments, medications, and the hidden challenges of living with a rare condition.

Rare Disease Day

27/02/2026

Adult Cystic Fibrosis Clinic - Advocacy Update

Last year, CFWA was invited by North Metropolitan Health Services to participate in a planning and business case development process for a new or redeveloped adult outpatient clinic.

The current clinic struggles to accommodate growing adult patient numbers and needs, so changes are urgent. The State Government is now considering the business case and budget ask. As they consider this right now in budget deliberations, we are urging them to prioritise funding.

Visit our website for more information about current advocacy efforts, and what you can do to help.

CFWA Advocacy: www.cfwa.org.au/what-we-offer/research-advocacy/advocacy

26/02/2026

Are you one of the ~1,000 Australians living with Cystic Fibrosis Related Diabetes (CFRD)?

Cystic Fibrosis Queensland is recruiting a person with lived experience of CFRD to join an Australian-first research priority setting team as an Expert Reviewer.
Your lived experience could help shape the future of research and deliver better outcomes for Australians living with CF and CFRD.

Are you one of the ~1,000 Australians living with Cystic Fibrosis Related Diabetes (CFRD)?

Your voice is needed.

The Australian Cystic Fibrosis Data Registry, led by Monash University, shows that approx. 3 800 Australians live with cystic fibrosis — and around 30% are also managing CFRD, one of the most common and complex complications of the disease. Yet CFRD remains a hidden burden. It adds insulin management, glucose monitoring, and new health risks on top of an already demanding daily cystic fibrosis treatment routine.

Cystic Fibrosis Queensland is recruiting a person with lived experience of CFRD to join an Australian-first research priority setting team as an Expert Reviewer. Your lived experience will help shape the future of research — ensuring it focuses on what truly matters: reducing treatment burden, improving quality of life, and delivering better outcomes for Australians living with CF and CFRD.

Expressions of Interest: ceo@cfqld.org.au Open to Australians living with CFRD - because the future of cystic fibrosis research must be shaped by those living it every day.

25/02/2026

CF can shape how you see yourself, whether you live with CF or care for someone who does. It can become part of your identity, routines and life story. 👶

With treatment advances, some people are experiencing new independence and shifting responsibilities. Others continue to navigate ongoing health challenges or feelings of being left behind. Every journey is different.

Read more about the changing landscape of self-identity and CF in our new CF Futures resources https://www.cfwa.org.au/futures/my-relationships/identity/

24/02/2026

Great to see this milestone recognised and supported at the highest levels of government.

23/02/2026

Mark your calendars, 65 Roses Day returns Friday, 29 May! 🌹
This year, you can make a real difference in the lives of those affected by cystic fibrosis through a variety of impactful initiatives:

🌱 Fundraise - Help raise funds by selling roses in your workplace, school or community, or by organising your own fundraising event.

🚗 Volunteer - Join us as a delivery driver, rose wrapper, or stall attendant. These volunteer opportunities fill up quickly, so be sure to sign up early to make a hands-on impact in your community.

💐 Send a Bouquet - Show your love by sending a beautiful bouquet of roses to a special someone through our online store.

Find out how you can participate today! https://bit.ly/65-roses-day-26

Your generosity helps fund life-changing research and essential support services that improve the lives of children and adults living with cystic fibrosis.

21/02/2026

Although the South32 Rottnest Channel Swim has unfortunately been cancelled due to bad weather conditions, we still want to give a massive shoutout to Eleisha, who has already raised over $3,000 for people living with cystic fibrosis!

Having been an education assistant in Connor’s kindy class, Eleisha has continued to show her dedication to the cause. She’s using her love of swimming and fitness to make a difference and support children like Connor who are living with CF (pictured below). 💙

If you’d like to support Eleisha’s incredible fundraising efforts, you can donate here:
https://rottnestchannelswim26.grassrootz.com/cfwa/eleisha-lucas

18/02/2026

Thinking about doing the HBF Run for a Reason this year? Now’s a great time to jump in! 🏃‍♀️💙

Early bird registrations are open until 3 March. Plus, if you register early and raise your first $50, you’ll go in the draw to win a $75 rebel sport voucher!

HBF members also save an extra 20%, so don’t leave it too late 👀

Join Team CFWA today: https://www.hbf.com.au/run