Cystic Fibrosis WA

19/11/2025

Alyftrek has been approved for use in Australia by The Therapeutic Goods Administration (TGA).

This positive news brings us one step closer to the treatment listed on the Pharmaceutical Benefits Scheme (PBS).

Access to treatments like Alyfrek is important because while many people are now taking other CFTR modulators, others are ineligible, not responsive to existing options, or have had to stop due to adverse side effects.

We’re proud to share an important milestone for Australians living with cystic fibrosis. The Therapeutic Goods Administration (TGA) has officially approved Alyftrek for use in Australia.

This follows the recent positive recommendation from the PBAC and brings us closer to Alyftrek being listed on the PBS and accessible to everyone who could benefit.

Alyftrek is a next-generation, once-daily CFTR modulator that targets the underlying cause of CF. It is registered for the treatment of people aged 6 years and older who have at least one mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that is responsive based on clinical or in vitro evidence.

The registration confirms that eligibility is not limited to people who do not respond or have discontinued Trikafta. For those Australians with a responsive mutation this provides a further treatment option and the potential to benefit from this next-generation triple therapy.

This progress reflects strong, united advocacy led by Cystic Fibrosis Australia together with our state and territory members, clinicians, researchers, and most importantly, the CF community. Your experiences and voices continue to drive meaningful change.

Our work continues. CFA will keep advocating to ensure Alyftrek is subsidised through the PBS as soon as possible, so it is affordable and accessible to all who need it.

Together, we can shape a future where every Australian living with CF has the chance for a longer, healthier life.

To read further: https://www.tga.gov.au/resources/artg/452345

19/11/2025

🎄 Just a friendly reminder — there’s still time to preorder our limited-edition CFWA 50th Anniversary hoodie and snuggle teddy bear!

Every purchase supports families living with cystic fibrosis, helping kids like Piper stay healthy, active, and full of joy this Christmas. 💖

Orders close 23 November 2025, so don’t miss out!

🎁 Preorder and make a difference: https://www.cfwa.org.au/shop/

17/11/2025

Living with cystic fibrosis means every day comes with routines, treatments, and uncertainty.

“When Piper was in hospital, CFWA were there - offering support, gifts, and activities to keep her entertained.” — Hailee, Piper’s mum.

More than anything, Hailee hopes for a long, healthy, happy life for Piper - one where CF doesn’t hold her back from chasing her dreams. She dreams of laughter, normal days, and moments where CF takes a back seat so Piper can simply enjoy life.

This Christmas, you can help families like Piper’s navigate the challenges of CF and celebrate the small victories. 💖

👉 https://fundraise.cfwa.org.au/christmasappeal2025

12/11/2025

A huge congratulations to our lucky winner of the 50th Anniversary Raffle - Mitch, with ticket number 149! 🏆

Thank you to everyone who participated and supported this raffle! Stay tuned for more exciting opportunities coming your way next year.

11/11/2025

Piper’s Christmas wishlist is full of childhood dreams — and this year, you can help make wishes come true for kids living with cystic fibrosis. 💖

Preorder our limited-edition CFWA 50th Anniversary hoodie and snuggle teddy bear - exclusive, festive, and perfect for gift-giving!

Every purchase supports families like Piper’s, helping them navigate life with CF and celebrate the small victories. 🎄

Don’t miss out - preorder your merch today and add a little extra magic to your Christmas!*

🎁 Preorder now: https://www.cfwa.org.au/shop/

*Both items are limited edition and available only for pre-order. Orders close 23 November 2025. Shipping is estimated to arrive in time for Christmas.

10/11/2025

From bikes to guinea pigs, Piper’s Christmas wishlist is full of the little joys every child dreams of.

Living with cystic fibrosis doesn’t stop her from chasing those dreams — and your support helps make sure it never will.

Join us this Christmas to help make wishes come true for WA families living with CF. 💕

👉 https://fundraise.cfwa.org.au/christmasappeal2025

06/11/2025

Thank you for making our inaugural Breathe Regatta a success! ⛵️

What an incredible day on the water — filled with energy, friendly competition and plenty of team spirit. We loved seeing our CFWA team, supporters and CF researchers all come together for this special event. 💙

Congratulations to our winners Beyond Bank and friends, and to Pitts Design and Construction for a close second!

A special mention to our CF Ambassador, Sophie, who said:

“In a way, it felt like the event really epitomised what it’s like living with CF: it was challenging at times, a little bit scary if we’re honest... but it was also so much fun and incredibly rewarding.”

Thank you to the many businesses who supported us by donating prizes for our fundraising games and silent auction on the night.

And of course, a huge thank you to our sponsors Pitts Design and Construction, Aerodrome Management Services, KPMG Australia, Beyond Bank, Trident Insurance and our event partners Swan River Sailing for making this day possible. Your support has made a difference to families living with cystic fibrosis.

We’re already looking forward to the next one!

05/11/2025

⏰ FINAL HOURS! ⏰
Our 50th Anniversary Raffle closes tonight at 9PM AWST!

Win $25,000 cash or a $25,000 travel voucher — the choice is yours! Only 5,000 tickets are available, so don’t miss your shot. 💸✈️

Every ticket sold helps change lives for people living with cystic fibrosis in WA, so grab your tickets now before it’s too late. https://cfwa.auraffles.com.au/

04/11/2025

LAST CHANCE TO WIN BIG!! 😱

You could win $25,000 cash or a $25,000 travel voucher to take you and your loved ones to whatever destination you choose. Imagine being able to take the whole family on holiday or taking that long haul trip you’ve always dreamed of.

Remember, no matter who wins the prize, buying a ticket will change lives for people living with cystic fibrosis here in WA. https://cfwa.auraffles.com.au/

30/10/2025

Last week we held our annual Parents and Carers' Dinner supported by Carers WA and Lotterywest celebrating Carers Week 2025.

It was a wonderful opportunity for parents with a child with CF to connect, share stories, and support one another, reminding us again of the power of connection and community.

A huge thank you to everyone who attended and to guest speaker Dr Maggie Harrigan for sharing her research into the associations between mental and physical health in the CF community. 🌹

28/10/2025

1 in 25 Australians are carriers of cystic fibrosis. 🧬

Unfortunately we can’t offer a 1 in 25 chance to win our anniversary raffle, but a chance of 1 in 5,000 for an incredible chance to win $25,000 still feels like strong odds.

Odds are that $25,000 will make a difference to your life, buying a ticket is a winning way to support people living with cystic fibrosis and their families. https://cfwa.auraffles.com.au/

27/10/2025

We’re so excited to share that our CF Kids Connect program was a finalist at the 2025 Alike WA Brighter Together Gala for the Digital Connection Award! 💙

This award celebrates peer support groups that create safe, consistent, and meaningful connections online. It highlights the incredible power of digital spaces to bring people together, reduce isolation, and build community across distances.

We’re beyond proud of what CF Kids Connect has achieved — helping children with CF and their families connect, share, and support one another in ways that aren’t possible face-to-face due to health risks.

Thank you to everyone who makes this program such a special and supportive community! 💫

👉Learn more here https://www.cfwa.org.au/what-we-offer/support-programs/kidsconnect/