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Cystic Fibrosis WA

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Perth, WA
Cystic Fibrosis WA

Cystic Fibrosis WA (CFWA) was established by a group of parents in 1975. Since those early days, we have grown into a professional not for profit organisation.

Today CFWA provides a comprehensive range of services, in home support, and resources for people affected by cystic fibrosis (CF) in Western Australia. We have built strong partnerships and continue to collaborate with a range of state and national organisations, and contribute extensively to CF research.

31/03/2026

Get your NEW CFWA red shirts now! 👕

We have officially launched our ‘Making Every Breath Count’ shirt, which you can now purchase on our website!

With our logo on the front and some rosy lungs on the back, you can rep our new red shirt while out on a fundraiser or volunteering. Grab some now for 65 Roses Day before they run out!

https://www.cfwa.org.au/shop/make-every-breath-count-shirt/

30/03/2026

Who are the most important people in your life? 👨‍👩‍👧

Life can change in an instant - for all of us. That’s why writing your will now is one of the most loving things you can do for the people you care about most.

It's the last day to take advantage of our FREE will offer through our partners Safewill – create your valid will today. https://bit.ly/cfwa-safewill

27/03/2026

Living with CF means your body can experience a lot of change over time, and with new treatments helping people live longer, the CF journey is evolving.

People with CF are now navigating new questions around physical and mental health, medications, family planning and ageing with CF.

Learn more at our website: www.cfwa.org.au/futures/my-body

This resource is part of our CF Futures series, grounded in lived experience and practical guidance shaped by our community.

CF Futures has been made possible thanks to generous support from Lotterywest.

26/03/2026

We recently hosted Jonathan Huston MLA, Member for Nedlands and Shadow Minister for Deregulation; Small Business; Public Sector Reform; and Veterans, at our CFWA office this week. 📣

During his visit, our CEO Lisa Bayakly shared the work we do to support people living with cystic fibrosis in Western Australia, the ongoing need for practical and financial assistance for families, and our continued advocacy for a new adult CF Outpatient clinic.

Building strong relationships across all sides of Parliament helps strengthen awareness and support for the CF community, and we appreciate Jonathan taking the time to meet with us and learn more about the challenges faced by people with CF.

24/03/2026

Let's make some magic this 65 Roses Day! 🪄🎩🐇

Be part of the joy and wonder that brings 65 Roses for Cystic Fibrosis to life. Every rose sold and every hour volunteered helps support West Australians living with CF - a small act that creates a big impact. We're looking for volunteers for the following roles:

🌹 Stall Attendants (28-29 May)
🌹 Delivery Drivers (27-29 May)
🌹 Rose Wrappers (27 May)

Can’t volunteer? You can sprinkle some magic by ordering roses for your workplace, school, or community group - no pre payment needed and delivered ready to sell. It’s fundraising made easy. ✨

Sign up or order roses today! https://bit.ly/65-roses-day-26

23/03/2026

Meet Sarah - a mum of three, a longtime fundraiser, and now a proud participant in the HBF Run for a Reason supporting Cystic Fibrosis WA.

Both her firstborn and youngest sons live with cystic fibrosis, and this year, Sarah is running to say thank you. Since moving to Australia, her family has received support from hospital teams and from CFWA - care that has helped them through so much. Running and raising money is her way of paying that kindness forward and helping other families going through the same journey.

You can support Sarah’s run here: https://runforareason26.grassrootz.com/cfwa/sarah-haddow

Every donation helps families living with CF access the services, care, and community they need. Let’s cheer Sarah on and help her make an incredible impact for CF families across WA! 💙

22/03/2026

Protect the people you love! 🫶

Writing a will with Safewill is another powerful way to make sure the people you care about are looked after, no matter what. It brings peace of mind, and it’s a chance to let your values live on.

If you’re able to leave a gift in your will to Cystic Fibrosis WA, your kindness can change lives for generations to come.

Your legacy can give hope and your impact can last forever. Create your will today! https://bit.ly/cfwa-safewill

20/03/2026

Our Virtual Rose Garden is now LIVE for 65 Roses Day, and this year it's more special than ever!🌟

For the first time, every rose in our garden has been hand-drawn by children living with cystic fibrosis, each one a beautiful symbol of courage, creativity and hope for more tomorrows.
🌹 Pick your donation amount and select from 12 unique rose designs
🌹 Dedicate your rose to someone special and send an e-card
🌹 Invite others to plant a rose and grow the garden together

Help fund vital support services, advocacy and research for Western Australians living with cystic fibrosis and share a meaningful message of strength and hope with someone you care about. https://rosegarden.org.au

19/03/2026

Missed out on early bird registrations? It’s not too late to sign up for HBF Run for a Reason on Sunday, 24 May! 🏃‍♀️💙

Plus, when you run for CFWA and raise $250 or more, you’ll go in the draw to win a Google Fitbit Inspire 3 - our biggest prize yet!* ⌚✨

Join Team CFWA and help make a real difference in the lives of children and adults living with cystic fibrosis. Register here: https://www.hbf.com.au/run

Raise $250 by 24 May to go in the draw. Winner announced 25 May.

18/03/2026

Many people with CF and their families form close connections with their multidisciplinary care team during frequent hospital visits and appointments. 🏥

With newer treatments reducing hospital time and improving health, these relationships are shifting from crisis care to long term support, focusing more on life goals, wellbeing, and partnership.

For some, this shift can feel freeing and empowering, for others, it can feel like a loss of familiar support. https://www.cfwa.org.au/futures/my-relationships/mdt-relationships/

17/03/2026

We recently hosted Breakthroughs Over Breakfast at The Kids Research Institute Australia, bringing together an incredible panel of researchers working to improve the lives of people living with cystic fibrosis.

Dr Yuliya Karpievitch, Dr Maggie Harrigan and Sarah Thomas shared insights into their research and how they are helping people with cystic fibrosis live longer, healthier lives. With Kate Bingemann as our host, it was inspiring to start the morning hearing about the breadth of innovative projects currently underway in such a wonderful space.

This vital research is made possible thanks to funding from the WA Cystic Fibrosis Research Collaborative Program, a partnership between the Western Australian Future Health Research and Innovation (FHRI) Fund and Cystic Fibrosis WA (CFWA), in collaboration with Conquer Cystic Fibrosis (CCF).

16/03/2026

Some life admin can wait… but some truly can’t. ⏳
Writing a will is one of the most meaningful ways to protect the people you love and bring peace of mind to your future.

During Safewill's Charity Wills Week (16–30 March), you can write your will for free using their simple online service.

Do it for the ones who matter most. Protect the people you love. Write your will now. https://bit.ly/cfwa-safewill

Address

The Niche, 11 Aberdare Road
Perth, WA
6009

Opening Hours

Monday	8am - 4pm
Tuesday	8am - 4pm
Wednesday	8am - 4pm
Thursday	8am - 4pm
Friday	8am - 4pm

Telephone

+61862244100

Website

http://cfwa.org.au/

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