(ME and FM) through education, research, support and advocacy.
The National ME/FM Action Network is a Canadian, registered charitable organization of volunteers since 1993, dedicated to spreading awareness for Myalgic Encephalomyelitis & Fibromyalgia.
12/17/2025
A Self-Care Checklist for Surviving the Holidays
The author, Anna Lindberg Cedar that holidays can bring on a lot of emotional triggers due to painful memories, grief or challenging dynamics with family members.
Anna has created a checklist for self-care list for the holidays.
To view, please go to:
"Use this checklist to plan your self-care so that you can enjoy the upcoming holidays to their fullest."
12/08/2025
5 Ways I’m Planning to Handle the Holidays Differently This Year With Chronic Illness
By: K.M. Lang
The author has been coping with a chronic illness for nearly ten years and each year she promises herself not to let the holidays knock her down but they always do.
This year the author decided to do things differently and she is sharing what she will do this year.
To read what the author plans to do to make life easier for her, please go to:
"I’m making a change. I can’t afford to spend all of January recovering from December."
11/22/2025
The National ME/FM Action Network is pleased to bring you the Fall 2025 edition of our Quest newsletter.
In this Issue:
• Research News
• Why Isn’t Canada Investing in a New System of ME Care?
• Some Releases since May 2025
• The Network’s Redesigned Website
To view, please go to:
Fall 2025 Newsletter - Quest 147 We are pleased to bring you the Fall 2025 edition of our Quest newsletter. In this issue: Research News Why Isn’t Canada I...
11/15/2025
The Invisibility Cloak I Wear as a Disabled person
By: Dr. Amy Kenny
Dr. Kenny relates you want to camouflage yourself to get away with something illegal, but on days when one is visibly disabled, strangers may come up to you to offer unsolicited advice.
In this article, Dr. Kenny explains what is the reality for those who are sometimes visibly disabled and other times not.
To read Dr. Kenny’s article, please go to:
"If I perform my pain, will it seem more real to you?"
11/05/2025
When Chronic illness Turns you into a Spectator of Your Own Life
By: Kat Harrison
The author, Kat Harrison, was sitting in a parking lot and relating what is going through her mind and all the questions she is asking herself. A very relatable condition for anyone with a chronic illness.
In Kat’s case, she has been ill for 19 years.and she expresses her feelings and the questions she asked herself. She’s hoping by telling her story, it may help someone else also.
To read Kat’s story, please go to:
"I am ridiculously tired of watching my life like it's a movie."
11/01/2025
No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Miriam E. Tucker
October 31, 202
Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’
10/30/2025
ME/FM/Lyme/Long COVID Patient Healthcare Experiences and Priorities in BC
This report, conceived and commissioned by four BC organizations, presents the results of an on-line survey of ME, FM, Lyme and Long COVID patients in BC conducted during the winter of 2024-25.
The survey asked people to give their perspectives on strengths and weaknesses of the existing health care system and to identify opportunities for improvement. Just over 1,000 people in BC participated in the survey.
The survey shows that respondents have had some good and many bad experiences in the health system. Bad experiences included being dismissed, disrespected or disbelieved, getting wrong diagnoses or harmful treatments, and receiving little help with financial applications. It is notable how appreciative the respondents were of good experiences, even when the experience was as basic as being believed.
Here are three specific take-aways from the survey:
• Despite all their bad experiences, the respondents said that they want one-on-one care from doctors. People understand that they need individualized, on-going, informed medical care.
• The health system has a role to play in helping patients access financial and social programs. For some patients, this is very important.
• Emergency rooms can be very difficult for these patients.
Full report click 2025_Community_Survey_Report This report, conceived and commissioned by four BC organizations, presents the results of an on-line survey...
10/21/2025
7 Lessons for Recovering Your Spirit After a Health Crisis
By: Carolina Vergara M.
Caroline relates that when you’re chronically ill, everything changes in your life, including your habits. Something much more important to you that’s not your body.
In this article, the author explains what she has learned about the importance of staying you and what that means.
Please remember that there is no wrong way to help you manage a chronic illness but only what will work for YOU.
To read Caroline’s story, please go to:
"These experiences are not making me lose parts of myself, they are only changing me."
10/05/2025
ICANCME CANADIAN
COLLABORATIVE CONFERENCE ON
MYALGIC ENCEPHALOMYELITIS
NOVEMBER 4-6, 2025, 1-5 PM EASTERN
2025 ME Conference Home Research 2025 ME Conference Canadian Collaborative Conference on ME Nothing About Us Without Us Please join us for three (3) half-day sessions where researchers, healthcare professionals and individuals affected by myalgic encephalomyelitis (ME) come together to share up-to-d...
09/20/2025
When Chronic Illness Turns You Into a Spectator of Your Own Life
By: Kat Harrison
Kat has a chronic illness and also has a rare disease for 19 years.
She learned that there two modes of existence i.e. either in an acute, heightened state or in a stable routine state. As a result, she feels like a ‘professional patient’ and asked herself how to break out of that state and pinpoint what she is actually experiencing.
In order for her to pinpoint what she’s actually experiencing and why it matters, she has put together questions which helps her to live her life to the best of her ability.
To read Kat’s story, please go to:
"I am ridiculously tired of watching my life like it's a movie."
09/04/2025
When It Feels Like You’re Starting Over With Chronic Illness
By: Annie Basil
Annie advises not to be afraid to start over because this time you wouldn’t be starting from scratch. She points out that the fear of not knowing what will happen next terrified her as she was afraid she would never recover.
In Annie’s article she relates that due to her husband’s job, she had to move from an area where she had developed ways of coping that were not available in her new location.
To read Annie’s article about how she copes and handles obstacles in her way, please go to:
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Founded in June 1993, The National ME/FM Action Network is a Canadian registered charitable organization dedicated to Myalgic Encephalomyelitis and Fibromyalgia. (ME/FM) through research, information, advocacy and support.
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QUESTION: Why is the Canada Goose in the logo of the National ME/FM Action Network?
ANSWER: When the Canada Geese fly South for the winter, they fly in "V" formation. As each bird flaps its Wings, it creates an Uplift for the bird immediately following. By flying in "V" formation, the whole flock adds at least 71% greater flying range, than if each bird flew on its own.
Geese honk from behind to Encourage those up Front to keep up their Speed. Please remember that none of us can go it alone, we need your encouragement in the manner that you are able to do so. For some it may be financial by becoming a member, for others it may be helping of another sort. All we ask is that you help in whatever manner you are capable of so that we can keep up our Speed.
