IFPA

Global leader in fighting psoriatic disease
(1)

Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

27/01/2026

The Beyond The Flare podcast shares real experiences from people living with psoriatic disease.

In episode 4, Kathleen opens up about navigating flares and what helps her stay grounded, from movement and nutrition to staying close to her care team.

Listen to hear more:
Spotify: https://eu1.hubs.ly/H0rgdDn0
Apple Podcasts: https://eu1.hubs.ly/H0rgdck0

21/01/2026

In psoriasis research most clinical studies focus on North America and Europe, with many regions and communities missing.

📍If you live with psoriasis and reside outside Europe or North America, we want to hear from you.

🔗 Read more about the project: https://eu1.hubs.ly/H0r5J6h0

20/01/2026

How is AI transforming dermatology?

Discover key insights at the Skin & Digital Summit on 31 January 2026 as part of IMCAS World Congress. The summit will be broadcast worldwide for free. Registration is required to access the recording.

👉 Read more and register here: https://eu1.hubs.ly/H0r4n4r0

14/01/2026

The global family of national psoriasis organizations continues to grow. 🌍

We are thrilled to announce the launch of APPEAP (Asociación de pacientes con psoriasis y enfermedades autoinmunes de la piel – Association of Patients with Psoriasis and Autoimmune Skin Diseases) in Paraguay.

Congratulations to Hugo Federico Bellassai Benitez on successfully establishing the organization and hosting an impactful kick-off event in December 2025, bringing together members of the local psoriasis community, patient advocates and medical experts.

We are happy to support APPEAP in its early stages and wish the organization every success as it grows and advocates for people living with psoriasis and autoimmune skin diseases in Paraguay.

👉 To local psoriasis activists worldwide: if you are passionate about starting a psoriasis organization in your country and need guidance or support, we encourage you to reach out to our IFPA team. Together, we amplify the voices of people living with psoriatic disease worldwide.

09/01/2026

When it comes to decisions about your health, representation matters.

For Emmanuel, Advanced Nurse Practitioner in Dermatology, involving patients from the very start is key to shaping better care plans for psoriatic disease.

Tune in to hear more on episode 3 of Beyond The Flare – with more coming soon!

Spotify: https://eu1.hubs.ly/H0qvRzc0
Apple Podcasts: https://eu1.hubs.ly/H0qvQYg0

31/12/2025

Welcome 2026! 🌟

At IFPA, we’re excited to continue our journey toward a world where everyone living with psoriatic disease have access to care and support they need. 💛

Thank you for being part of our community and for helping us move closer to this vision every day. Let’s make 2026 a year of progress, hope, and positive change – together! ✨

22/12/2025

From all of us at IFPA, we wish you a happy, healthy, and joyful holiday season! ✨

Thank you for another year of collaboration and for helping us raise awareness about psoriatic disease worldwide. 💛

Together, we’ve taken some steps closer to our vision: a future where everyone living with psoriatic disease has access to the care and support they need and can enjoy their full lives, free from stigma and discrimination.

Here’s to continuing this important journey together in the year ahead! 🌟

19/12/2025

Dear friends, member organizations, supporters, and partners!

As we wrap up the year, we’d like to look back and highlight some of the major milestones we’ve accomplished together.

🔹We brought psoriatic disease to the global agenda at
🔹We hosted a panel conversation in partnership with to discuss psoriatic disease in the context of other NCDs
🔹World Psoriasis Day campaign became a truly global initiative, supported by our members and partners worldwide
🔹We held a successful IFPA Forum in Bogotá
🔹We attended eight scientific conferences, delivering talks, presentations, and workshops on psoriatic disease
🔹We organized our annual diplomatic lunch in Geneva with Ambassadors, Ministers and WHO representatives to address the economic impact of psoriatic disease
🔹We launched our podcast Beyond the Flare, a new series exploring the real-life experiences of people living with psoriasis.

All of this happened thanks to your support and belief in our vision and mission. As we look ahead, we do so with gratitude and anticipation for what we can achieve together in the year to come. ✨

18/12/2025

Did you know that most clinical trials don’t reflect the diversity of communities they’re meant to help?

In the US, 84% of clinical trial participants are white, and globally, most studies take place in the US and Europe, leaving many regions and communities underrepresented.

The diversity gap shows up clearly in clinical trials related to psoriasis research:
✔️In the United States, white people make up around 57.5% of the population, yet psoriasis clinical trials do not reflect this diversity. Only 30% of trials included more than 20% non-white participants, meaning that in the majority of trials, non-white communities were minimally represented or not represented at all.
✔️In phase III trials for plaque psoriasis, which guide treatment decisions, just 14.2% of participants were non-white.

These numbers highlight a serious problem: when clinical research isn’t diverse, it can lead to serious gaps in understanding of the disease and access to care, slowing progress and widening health inequalities.

That’s why IFPA launched Breaking Barriers in Psoriatic Disease — a global initiative to identify the obstacles that prevent people from participating in psoriasis research.

Working together with world-class experts, the project team explores how stigma, culture, geography, and socioeconomic factors affect participation — and develops practical tools to foster inclusion and equity in research.

Breaking Barriers aims to ensure every voice is represented in psoriatic disease research. Make your voice heard, share your experience with us.

Read more: https://eu1.hubs.ly/H0qxyTJ0

18/12/2025

Holistic care for psoriatic disease means being understood, not just treated.

In episode 3 of Beyond The Flare, Joel Nelson shares how specialist nurses transformed his care by understanding his priorities, recognizing when something wasn’t right, and considering his life beyond the condition.

Tune in:
Spotify: https://eu1.hubs.ly/H0qvR4m0
Apple Podcasts: https://eu1.hubs.ly/H0qvS9d0

16/12/2025

We are happy to welcome the passing of the new Political Declaration on Noncommunicable Diseases (NCDs) and Mental Health – a milestone we have worked hard to support throughout the year.

This declaration represents an important step forward in recognizing the interconnected nature of physical and mental health, and the need for stronger, more integrated health systems worldwide.

“This declaration has the potential to drive positive change at country level,” said Frida Dunger, Executive Director of IFPA. “When implemented, it can help ensure earlier diagnosis, better access to care and more holistic support for people living with psoriatic disease. Ultimately, this means improved quality of life for millions of people around the world.”

IFPA looks forward to continuing to work with governments and partners to support implementation of the declaration and to ensure that the needs of people living with psoriatic disease are fully addressed.

12/12/2025

Today is Universal Health Coverage Day 🌍
Access to healthcare is a fundamental human right — but for too many it remains out of reach.

According to the World Health Organization (WHO), at least half of the world’s population still lacks full coverage of essential health services. Nearly two billion people struggle to pay for care, often sacrificing basic needs like food, education, or housing. That’s 1/4 of the global population.

For people living with psoriatic disease — a painful, lifelong systemic condition, still burdened by stigma and discrimination - insufficient access to healthcare results in immense, preventable suffering. Without timely and comprehensive care, individuals face a significantly higher risk of developing comorbidities such as cardiovascular disease, diabetes, psoriatic arthritis, depression, and more.

On this Universal Health Coverage Day, IFPA calls on governments worldwide to invest in health systems that ensure every person can receive the care they need.

Reaffirming a commitment to universal health coverage (UHC) is the most effective way to safeguard this right. UHC means everyone, everywhere, can access the full range of quality health services and products they require — without financial hardship.

We strongly believe that universal health benefit packages must include psoriatic disease care, delivered through holistic, person-centered approaches. Strengthening global commitment to UHC for psoriatic disease is essential to ensure equitable access to diagnosis, treatment, and ongoing support.

Here is our suggested roadmap to link UHC approaches to psoriatic disease:
✔️ Foster integrated health systems
✔️ Strengthen health infrastructure and workforce
✔️ Improve data collection
✔️ Leverage digital health solutions
✔️ Empower and engage with people living with psoriatic disease
✔️ Adopt inclusive and equitable approaches

Read more in our report on UHC and psoriatic disease:
https://eu1.hubs.ly/H0qnrTp0

Adress

Slottsbacken 8
Stockholm
SE-16751

Webbplats

http://www.ifpa-pso.com/

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Typ

Medicin och hälsa