IFPA

Global leader in fighting psoriatic disease
(1)

Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

20/02/2026

Rare Disease Day – February 28

Over 300 million people worldwide live with a rare disease — that’s about 1 in 25 people.

Many know the most common form of psoriasis — plaque psoriasis or psoriasis vulgaris, which causes itchy, flaky patches. But psoriatic disease is a spectrum, with several lesser-known forms.

About 3% of people with psoriasis develop pustular psoriasis, including:
🔸Generalized pustular psoriasis (GPP) – a life-threatening condition where the skin becomes intensely red, painful, and can peel in large areas.
🔸Palmoplantar pustulosis (PPP) – painful inflammation on the hand palms and feet soles.
🔸Acrodermatitis continua of Hallopeau (ACH) – affecting fingers, toes, and nails.

Other rare, serious forms include:
🔸Erythrodermic psoriasis, characterized by fiery red skin across the body, increased heart rate, severe itching, and temperature changes.
🔸Arthritis mutilans – a severe, deforming form of psoriatic arthritis.

This Rare Disease Day, we stand with everyone living across the psoriatic disease spectrum, along with their families, friends, and caregivers.

💜 Join us in raising awareness for every form of psoriatic disease.

👉 Read more here:
https://eu1.hubs.ly/H0rZJRT0

19/02/2026

A major milestone for the global psoriasis community.
Last week in Geneva, IFPA (the International Federation of Psoriasis Associations) signed a multi-year collaboration agreement with the WHO Foundation — a significant step forward in strengthening global action on psoriasis and psoriatic arthritis.

This partnership aims to support WHO-led efforts to improve access to diagnosis and care for people living with psoriatic disease worldwide.

🎥 Watch the video to hear the reflections of Frida Dunger, IFPA's Executive Director, and learn what this collaboration means for millions of people around the world.

📄Read the article: https://eu1.hubs.ly/H0rY5yg0

11/02/2026

For many people with psoriatic disease, conversations with doctors often stay focused on the skin, but there is much more to understand.

In episode 4 of Beyond The Flare, dermatologist, Dr. Álvaro González Cantero-Dermatólogo discusses why looking beyond visible symptoms and recognizing comorbidities is essential.

Listen now:
Spotify: https://eu1.hubs.ly/H0rFSm30
Apple Podcasts: https://eu1.hubs.ly/H0rFR5Y0

09/02/2026

An important step for the global psoriasis community.

IFPA and WHO Foundation have signed a collaboration agreement to support WHO-led efforts to strengthen understanding, diagnosis and care for psoriatic disease.

Why does this collaboration matter?
Despite its global prevalence, psoriatic disease remains widely under-recognized, and many countries lack reliable epidemiological data to inform diagnosis, care and policy decisions. According to the Global Psoriasis Atlas, only about 20 percent of countries currently have data on psoriasis.

It has been nearly a decade since the Global Report on Psoriasis helped elevate psoriasis on the global health agenda. Since then, research has further clarified links between psoriatic disease and other chronic conditions, alongside advances in treatment and care.

As part of this collaboration, IFPA will support WHO-led work, including the planned update of the Global Report on Psoriasis published in 2016, incorporating new data and scientific advances.

Additional areas of focus include:
🔹Sharing evidence-based guidance with countries
🔹Supporting WHO-aligned digital tools that strengthen earlier recognition of psoriatic disease, particularly in low-resource settings
🔹Contributing to education and training efforts for healthcare professionals

We look forward to collaborating to help strengthen health systems and improve care for people living with psoriatic disease.

👉 Read more on our website: https://eu1.hubs.ly/H0rzS-r0

04/02/2026

Today, on World Cancer Day, we stand in solidarity with the global cancer community, including those living with cancer, cancer survivors, and the families and communities who support them.

We also want to highlight that cancer is a serious yet lesser-known comorbidity of psoriatic disease. Chronic systemic inflammation, along with some long-term immunosuppressive therapies, may increase cancer risk, especially for skin cancers and lymphoma.

Regular screenings and proactive health checks are essential for early detection and prevention. Understanding the link between inflammation and cancer is a critical step toward timely intervention.

03/02/2026

Psoriatic disease affects everyone differently, and for many, the emotional impact can be just as challenging as the physical symptoms.

For Gabriel, it meant slowly withdrawing and feeling isolated. Over time, finding a community of people who understood his experiences helped him feel seen again and showed him what it could look like to reconnect with life on his own terms.

Tune in to hear more:
Spotify: https://eu1.hubs.ly/H0rrfSz0
Apple Podcasts: https://eu1.hubs.ly/H0rrkCV0

27/01/2026

The Beyond The Flare podcast shares real experiences from people living with psoriatic disease.

In episode 4, Kathleen opens up about navigating flares and what helps her stay grounded, from movement and nutrition to staying close to her care team.

Listen to hear more:
Spotify: https://eu1.hubs.ly/H0rgdDn0
Apple Podcasts: https://eu1.hubs.ly/H0rgdck0

21/01/2026

In psoriasis research most clinical studies focus on North America and Europe, with many regions and communities missing.

📍If you live with psoriasis and reside outside Europe or North America, we want to hear from you.

🔗 Read more about the project: https://eu1.hubs.ly/H0r5J6h0

20/01/2026

How is AI transforming dermatology?

Discover key insights at the Skin & Digital Summit on 31 January 2026 as part of IMCAS World Congress. The summit will be broadcast worldwide for free. Registration is required to access the recording.

👉 Read more and register here: https://eu1.hubs.ly/H0r4n4r0

14/01/2026

The global family of national psoriasis organizations continues to grow. 🌍

We are thrilled to announce the launch of APPEAP (Asociación de pacientes con psoriasis y enfermedades autoinmunes de la piel – Association of Patients with Psoriasis and Autoimmune Skin Diseases) in Paraguay.

Congratulations to Hugo Federico Bellassai Benitez on successfully establishing the organization and hosting an impactful kick-off event in December 2025, bringing together members of the local psoriasis community, patient advocates and medical experts.

We are happy to support APPEAP in its early stages and wish the organization every success as it grows and advocates for people living with psoriasis and autoimmune skin diseases in Paraguay.

👉 To local psoriasis activists worldwide: if you are passionate about starting a psoriasis organization in your country and need guidance or support, we encourage you to reach out to our IFPA team. Together, we amplify the voices of people living with psoriatic disease worldwide.

09/01/2026

When it comes to decisions about your health, representation matters.

For Emmanuel, Advanced Nurse Practitioner in Dermatology, involving patients from the very start is key to shaping better care plans for psoriatic disease.

Tune in to hear more on episode 3 of Beyond The Flare – with more coming soon!

Spotify: https://eu1.hubs.ly/H0qvRzc0
Apple Podcasts: https://eu1.hubs.ly/H0qvQYg0

31/12/2025

Welcome 2026! 🌟

At IFPA, we’re excited to continue our journey toward a world where everyone living with psoriatic disease have access to care and support they need. 💛

Thank you for being part of our community and for helping us move closer to this vision every day. Let’s make 2026 a year of progress, hope, and positive change – together! ✨

Adress

Slottsbacken 8
Stockholm
SE-16751

Webbplats

http://www.ifpa-pso.com/

Aviseringar

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Dela

Typ

Medicin och hälsa