IFPA

Global leader in fighting psoriatic disease
(1)

Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

22/12/2025

From all of us at IFPA, we wish you a happy, healthy, and joyful holiday season! ✨

Thank you for another year of collaboration and for helping us raise awareness about psoriatic disease worldwide. 💛

Together, we’ve taken some steps closer to our vision: a future where everyone living with psoriatic disease has access to the care and support they need and can enjoy their full lives, free from stigma and discrimination.

Here’s to continuing this important journey together in the year ahead! 🌟

19/12/2025

Dear friends, member organizations, supporters, and partners!

As we wrap up the year, we’d like to look back and highlight some of the major milestones we’ve accomplished together.

🔹We brought psoriatic disease to the global agenda at
🔹We hosted a panel conversation in partnership with to discuss psoriatic disease in the context of other NCDs
🔹World Psoriasis Day campaign became a truly global initiative, supported by our members and partners worldwide
🔹We held a successful IFPA Forum in Bogotá
🔹We attended eight scientific conferences, delivering talks, presentations, and workshops on psoriatic disease
🔹We organized our annual diplomatic lunch in Geneva with Ambassadors, Ministers and WHO representatives to address the economic impact of psoriatic disease
🔹We launched our podcast Beyond the Flare, a new series exploring the real-life experiences of people living with psoriasis.

All of this happened thanks to your support and belief in our vision and mission. As we look ahead, we do so with gratitude and anticipation for what we can achieve together in the year to come. ✨

18/12/2025

Did you know that most clinical trials don’t reflect the diversity of communities they’re meant to help?

In the US, 84% of clinical trial participants are white, and globally, most studies take place in the US and Europe, leaving many regions and communities underrepresented.

The diversity gap shows up clearly in clinical trials related to psoriasis research:
✔️In the United States, white people make up around 57.5% of the population, yet psoriasis clinical trials do not reflect this diversity. Only 30% of trials included more than 20% non-white participants, meaning that in the majority of trials, non-white communities were minimally represented or not represented at all.
✔️In phase III trials for plaque psoriasis, which guide treatment decisions, just 14.2% of participants were non-white.

These numbers highlight a serious problem: when clinical research isn’t diverse, it can lead to serious gaps in understanding of the disease and access to care, slowing progress and widening health inequalities.

That’s why IFPA launched Breaking Barriers in Psoriatic Disease — a global initiative to identify the obstacles that prevent people from participating in psoriasis research.

Working together with world-class experts, the project team explores how stigma, culture, geography, and socioeconomic factors affect participation — and develops practical tools to foster inclusion and equity in research.

Breaking Barriers aims to ensure every voice is represented in psoriatic disease research. Make your voice heard, share your experience with us.

Read more: https://eu1.hubs.ly/H0qxyTJ0

18/12/2025

Holistic care for psoriatic disease means being understood, not just treated.

In episode 3 of Beyond The Flare, Joel Nelson shares how specialist nurses transformed his care by understanding his priorities, recognizing when something wasn’t right, and considering his life beyond the condition.

Tune in:
Spotify: https://eu1.hubs.ly/H0qvR4m0
Apple Podcasts: https://eu1.hubs.ly/H0qvS9d0

16/12/2025

We are happy to welcome the passing of the new Political Declaration on Noncommunicable Diseases (NCDs) and Mental Health – a milestone we have worked hard to support throughout the year.

This declaration represents an important step forward in recognizing the interconnected nature of physical and mental health, and the need for stronger, more integrated health systems worldwide.

“This declaration has the potential to drive positive change at country level,” said Frida Dunger, Executive Director of IFPA. “When implemented, it can help ensure earlier diagnosis, better access to care and more holistic support for people living with psoriatic disease. Ultimately, this means improved quality of life for millions of people around the world.”

IFPA looks forward to continuing to work with governments and partners to support implementation of the declaration and to ensure that the needs of people living with psoriatic disease are fully addressed.

12/12/2025

Today is Universal Health Coverage Day 🌍
Access to healthcare is a fundamental human right — but for too many it remains out of reach.

According to the World Health Organization (WHO), at least half of the world’s population still lacks full coverage of essential health services. Nearly two billion people struggle to pay for care, often sacrificing basic needs like food, education, or housing. That’s 1/4 of the global population.

For people living with psoriatic disease — a painful, lifelong systemic condition, still burdened by stigma and discrimination - insufficient access to healthcare results in immense, preventable suffering. Without timely and comprehensive care, individuals face a significantly higher risk of developing comorbidities such as cardiovascular disease, diabetes, psoriatic arthritis, depression, and more.

On this Universal Health Coverage Day, IFPA calls on governments worldwide to invest in health systems that ensure every person can receive the care they need.

Reaffirming a commitment to universal health coverage (UHC) is the most effective way to safeguard this right. UHC means everyone, everywhere, can access the full range of quality health services and products they require — without financial hardship.

We strongly believe that universal health benefit packages must include psoriatic disease care, delivered through holistic, person-centered approaches. Strengthening global commitment to UHC for psoriatic disease is essential to ensure equitable access to diagnosis, treatment, and ongoing support.

Here is our suggested roadmap to link UHC approaches to psoriatic disease:
✔️ Foster integrated health systems
✔️ Strengthen health infrastructure and workforce
✔️ Improve data collection
✔️ Leverage digital health solutions
✔️ Empower and engage with people living with psoriatic disease
✔️ Adopt inclusive and equitable approaches

Read more in our report on UHC and psoriatic disease:
https://eu1.hubs.ly/H0qnrTp0

11/12/2025

Guess who we met in person this week? Yes, it was Jonathan Van Ness, who visited Stockholm on December 10 during their Hot & Healed tour.

Jonathan Van Ness — a celebrated TV personality, comedian, podcaster, bestselling author, also known for their work as the beauty and hair stylist expert on the Emmy-nominated Netflix series Q***r Eye.

Jonathan has inspired many through their advocacy for LGBTQIA+ rights and for stigmatized health conditions like HIV and psoriatic disease.

Jonathan is one of the few well-known public figures who openly shares their experience with psoriasis. We appreciate Jonathan’s advocacy, that helps bring visibility and compassion to a condition like psoriasis that is often misunderstood.

As Jonathan pointed out during their comedy act, healing is a journey, not a destination. This is also true for people living with psoriatic disease, for whom this journey is life-long and often burdened with discrimination and stigma. Making their unique experiences visible is vital to reducing stigma and fostering greater understanding of the complex nature of the disease.

Thank you, Jonathan, for your incredible energy, tons of laughs, and for giving hope and empowerment to millions 💛

10/12/2025

Last week, our Board representatives Ingvar Ágúst Ingvarsson and Helen Crawford attended the International Psoriasis Council (IPC) Think Tank event in San Juan, Puerto Rico, focusing this year on the link between metabolic syndrome and psoriatic disease. This annual gathering brings together IPC Board members, councilors, fellows and partner organizations to explore the most critical issues and latest advancements in psoriasis research and care.

The Think Tank also offered a chance for the IFPA Board to reconnect with the local Puerto Rican Association for Helping Psoriasis Patients and continue a dialogue on how to better support the psoriasis community.

During the event, Ingvar and Helen also had the opportunity to connect with two esteemed leaders in the field — Professors Joel M. Gelfand and Jo Lambert.

We are honored that both Prof. Gelfand and Prof. Lambert also serve on the Scientific Executive Committee for the IFPA Conference (also known as the World Psoriasis & Psoriatic Arthritis Conference), taking place in Stockholm on 20–22 May 2027. The Conference is themed: From Burden to Breakthrough: Bridging science, innovation and patient care.

We look forward to carrying the momentum from the Think Tank into the preparations for the 2027 conference and to continuing these vital conversations for the benefit of the global psoriasis community.

A big thank you to the IPC for organizing such an impactful and inspiring event.

09/12/2025

Did you know early intervention in psoriatic disease can reduce the risk of comorbidities like psoriatic arthritis and improve quality of life?

Tune into our second episode of Beyond The Flare, where members of the global psoriatic disease community discuss how timely intervention can alter the progression of the disease.

Listen now:
Spotify: https://eu1.hubs.ly/H0qgPNB0
Apple Podcasts: https://eu1.hubs.ly/H0qgP_c0

03/12/2025

Today, on International Day of Persons Living with Disabilities, we take a moment to reflect. 🌍

Inequalities in health and in daily life remain a reality for too many people. Access to healthcare, opportunities, and a dignified standard of living still depend on factors like income, geography, education, social attitudes, or someone’s physical appearance or abilities – factors that should never define a person’s worth or potential.

It’s also important to recognize that not all disabilities or health conditions are visible. Many people live with challenges that others often cannot see – challenges that influence their ability to pursue education, build careers, relationships, or simply participate fully in society.

The daily struggle of people living with psoriasis is often misunderstood or overlooked by others. Beyond the visible symptoms, psoriasis can deeply affect emotional wellbeing, self-esteem and daily functioning. Over 30% of people with psoriasis are at risk of developing psoriatic arthritis. Many face increased risks of diabetes, obesity and cardiovascular disease. These comorbidities can significantly shape someone’s long-term health, mobility and quality of life.

👉 Today is a reminder that these inequalities need to be addressed.
We must continue working toward healthcare systems and policies that are inclusive, equitable, and responsive to the needs of all individuals, including those with visible and invisible health conditions.

👉 Greater awareness and understanding across society is essential.

When we acknowledge the diverse realities people face and live in, we create space for empathy, respect, understanding and support. And we empower individuals to express themselves, make important life choices, and live their best lives.

On this day, we’d like encourage everyone to look deeper, listen more carefully and consider how we can all contribute to a more inclusive world – not just today, but every day.

02/12/2025

Over 6 million people in Europe are living with psoriatic disease — a number that underscores the urgency for better care, inclusive policies and patient involvement.

On November 22, EUROPSO brought together representatives from across Europe for its annual meeting to discuss how we can collectively move forward to improve the lives of people living with psoriatic disease.

We were proud to have our Community Manager, Camille Lancelot, represent IFPA and lead a session following up on the priorities established at the first Europe Forum in 2022, co-hosted by IFPA and EUROPSO.

EUROPSO members have now identified their key focus areas for the next three years:
✔️ Improving access to care through early diagnosis and better financing
✔️ Involving patients and their organization in decision-making processes

These priorities reflect a shared commitment: placing people with psoriatic disease at the center of care and policy.

Together, we’re building a stronger, more inclusive future for everyone impacted by psoriatic disease in Europe.

27/11/2025

Our Executive Director, Frida Dunger, was recently featured on Practical Dermatology's podcast, DWTV Extra, where she talked about IFPA’s advocacy efforts for people living with psoriasis and attending the UN General Assembly this autumn.

🗣️ The key message: people living with psoriatic disease are experts in their own experiences and should be included in policymaking decisions about them.

👉 Watch the full video and learn more about how IFPA is driving change on a global scale: https://eu1.hubs.ly/H0q0dn90

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