Vulvar Cancer Awareness Forum

Vulvar Cancer Awareness Forum If you or someone you care about is struggling to cope with Vulvar Cancer, Vulvar Cancer Awareness Forum is ready to help.

We are dedicated to raising awareness of vulvar cancer, educating the public, advocating for research and better treatments, and offering hands-on support to patients and families. Since 2018, we’ve succeeded in helping countless individuals navigate and overcome challenging situations. It is our mission to raise awareness for this little talked about cancer as well as educate on it. We also activ

ely advocate for change and advancements in Vulvar Cancer treatments, early detection, development of screenings, etc. Besides that, we advocate directly on behalf of patients who are having difficulties going through the diagnostic stages, and those who have already been diagnosed. Knowing there is a lack of support for Vulvar Cancer Patients which often leads to feelings of isolation and loneliness, we offer three private support groups on Facebook, one for Vulvar Cancer, VIN (pre-cancer), and a family and friends support group. Our Support Group members are kind, patient, and open-minded with the experience, knowledge, and tools to help you cope with what you are going through. We all must walk our own paths through life, but we don’t have to do it alone. We’re here to help, all you have to do is reach out. On February, 1, 2021, we successfully launched our Vulvar Cancer Care Box program which is the first of its kind. The care boxes are designed to let patients know that they are not alone and provide them with some items that are needed, and to encourage them. The Vulvar Cancer Community may be largely overlooked, but we are changing that one step and one person at the time.

Let’s Talk About Cancer PTSD.A cancer diagnosis doesn’t end when treatment ends. Even in remission, many survivors carry...
04/28/2026

Let’s Talk About Cancer PTSD.

A cancer diagnosis doesn’t end when treatment ends. Even in remission, many survivors carry invisible wounds—fear, anxiety, hypervigilance, medical trauma, and the emotional aftershocks of everything they’ve endured. This is often called cancer‑related PTSD, and it is far more common than people realize.

Cancer changes your body, but it also changes your mind, your sense of safety, and the way you move through the world. Scans, symptoms, anniversaries, and even certain smells or places can trigger overwhelming memories. None of this means you’re “weak.” It means you’re human.

If you’re struggling, please know this:

• You are not alone.
• Your feelings are valid.
• Your mental health matters just as much as your physical health.

Reaching out for help—whether through therapy, counseling, support groups, or talking with someone you trust—is an act of strength, not shame. Healing is not just about surviving cancer; it’s about reclaiming your peace, your joy, and your sense of self.

💜 You deserve care.
💜 You deserve support.
💜 You deserve to feel whole again.

If you find yourself struggling with the symptoms listed on the graphic, please reach out for help today. 🙏🏾

04/28/2026

04/26/2026

Post Credit:

04/26/2026

04/24/2026

'Women are dying of embarrassment'⁣

GP, educator, and health content creator Dr Aziza Sesay joined BBC Radio London’s Jacqueline Shepherd to discuss destigmatising shame around women’s health - particularly the language we use. It’s all part of her mission to tackle inequality in women's health.⁣

Reel Credit:

04/24/2026
04/24/2026

We want to celebrate with you 🔔🎊

Ringing the bell at the end of chemo or radiation is more than a tradition, it’s a powerful milestone. It tells the world that you showed up, treatment after treatment, and fought your way through to the finish. It’s a moment of courage, relief, and hope all wrapped into one.

We would be honored to celebrate your bell‑ringing moments with you. If you have videos or photos of your celebration, feel free to share them with us. With your permission, we’d love to feature them across our platforms to celebrage you, and to uplift and inspire others on their journey.

You can submit your photos or videos to us directly via DM or Messenger. 💌

It is with a heavy heart that we share the passing of one of our own, Lisa Maxwell Clark. 🕊💔Lisa was a devoted wife and ...
04/24/2026

It is with a heavy heart that we share the passing of one of our own, Lisa Maxwell Clark. 🕊💔

Lisa was a devoted wife and mother who loved her family fiercely. You could often find her in the stands, cheering on her son at his basketball games or traveling hours just to be there and support him. No matter how she was feeling, she showed up, for her family, every single time.

She fought with incredible strength, dignity, grace, and determination. While cancer may have taken her life, it did not define her or fight. Lisa faced each day with courage, pushing through obstacles and choosing to live fully and intentionally. That is not a battle lost, that is a life lived with victory and purpose.

Please let us keep her husband, her sons, and all who loved her in your thoughts and prayers during this difficult time.

🕊💜🙏🏼

04/22/2026

Karla Hardin-Pollard completed her final radiation treatment today—and she got to ring the bell. What a powerful milestone. Let’s celebrate her strength and surround her with love and encouragement in the comments.

Karla, you did it. This journey has demanded so much from you, yet you showed up with courage every single day. Now begins the chapter of healing and renewal. We’re cheering you on.

🔔🎊💜

04/22/2026

Karla Hardin-Pollard completed her final radiation treatment today—and she got to ring the bell. What a powerful milestone. Let’s celebrate her strength and surround her with love and encouragement in the comments.

Karla, you did it. This journey has demanded so much from you, yet you showed up with courage every single day. Now begins the chapter of healing and renewal. We’re cheering you on. 🔔🎊💜

VULVAR CANCER: KNOW THE SIGNS - KNOW THE RISKSVulvar cancer is often underdiagnosed and diagnosed late, but early detect...
04/20/2026

VULVAR CANCER: KNOW THE SIGNS - KNOW THE RISKS

Vulvar cancer is often underdiagnosed and diagnosed late, but early detection saves lives. Too many symptoms are ignored or dismissed — let’s change that.

✨ COMMON SYMPTOMS ✨

• Persistent itching or burning of the v***a
• Pain, tenderness, or soreness
• A lump, bump, wart-like growth, or thickened skin
• Moles
• Skin color changes (lighter, darker, red, or inflamed areas)
• Open sores or ulcers that don’t heal
• Bleeding or discharge not related to your period
• Pain during urination or interc*urse

⚠️ RISK FACTORS ⚠️

• HPV (Human Papillomavirus)
• Smoking
• Lichen Sclerosus
• Human Immunodeficiency Virus (HIV)
• Increasing age (but younger women are affected too)
• Vulvar Pre-Cancer (VIN)

🩺 Listen to your body.

If something doesn’t feel right, advocate for yourself and see a healthcare provider. Vulvar symptoms are never “normal” when they persist.

Please share this post to help educate, empower, and save lives. 💜💪🏽

Address

P. O. Box 3316
Bethlehem, PA
18017

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