Vulvar Cancer Awareness Forum

Vulvar Cancer Awareness Forum If you or someone you care about is struggling to cope with Vulvar Cancer, Vulvar Cancer Awareness Forum is ready to help.

We are dedicated to raising awareness of vulvar cancer, educating the public, advocating for research and better treatments, and offering hands-on support to patients and families. Since 2018, we’ve succeeded in helping countless individuals navigate and overcome challenging situations. It is our mission to raise awareness for this little talked about cancer as well as educate on it. We also actively advocate for change and advancements in Vulvar Cancer treatments, early detection, development of screenings, etc. Besides that, we advocate directly on behalf of patients who are having difficulties going through the diagnostic stages, and those who have already been diagnosed. Knowing there is a lack of support for Vulvar Cancer Patients which often leads to feelings of isolation and loneliness, we offer three private support groups on Facebook, one for Vulvar Cancer, VIN (pre-cancer), and a family and friends support group. Our Support Group members are kind, patient, and open-minded with the experience, knowledge, and tools to help you cope with what you are going through. We all must walk our own paths through life, but we don’t have to do it alone. We’re here to help, all you have to do is reach out. On February, 1, 2021, we successfully launched our Vulvar Cancer Care Box program which is the first of its kind. The care boxes are designed to let patients know that they are not alone and provide them with some items that are needed, and to encourage them. The Vulvar Cancer Community may be largely overlooked, but we are changing that one step and one person at the time.

Post Credit: Most anatomically correct images are censored. It's time women's health and anatomy become a normal convers...
02/17/2026

Post Credit:

Most anatomically correct images are censored. It's time women's health and anatomy become a normal conversation topic.

📣 There is no shame in saying the word V***A.

A Gentle Reminder About Our Mission 💜We’ve noticed an increase in comments asking why a specific type of v***ar cancer w...
02/17/2026

A Gentle Reminder About Our Mission 💜

We’ve noticed an increase in comments asking why a specific type of v***ar cancer wasn’t mentioned in a particular post, or urging us not to forget cancers like melanoma, basal cell carcinoma, Paget’s Disease, and others.

We hear you — and we want to reassure you.

👉🏽 Our mission has always been, and will always be, to educate on all v***ar cancer types and v***ar pre‑cancer conditions. This includes EVERY form and type.

👉🏽 We cover each one across our page.
Some posts focus on a single topic so we can give it the depth and clarity it deserves. But that never means we are ignoring the others. Education requires both broad awareness and focused, topic‑specific content — and we are committed to providing both.

👉🏽 We will NEVER be selective in what we address. To do so would betray our mission, our community, and every patient who deserves to be seen, heard, and informed.

So please rest assured:

💜 We see every type.

💜 We honor every journey.

💜 We will continue raising awareness for all v***ar cancers and v***ar pre‑cancers — always.

Thank you for your passion, your vigilance, and your shared commitment to saving lives through awareness.

Let’s Talk About Cancer PTSD.A cancer diagnosis doesn’t end when treatment ends. Even in remission, many survivors carry...
02/17/2026

Let’s Talk About Cancer PTSD.

A cancer diagnosis doesn’t end when treatment ends. Even in remission, many survivors carry invisible wounds—fear, anxiety, hypervigilance, medical trauma, and the emotional aftershocks of everything they’ve endured. This is often called cancer‑related PTSD, and it is far more common than people realize.

Cancer changes your body, but it also changes your mind, your sense of safety, and the way you move through the world. Scans, symptoms, anniversaries, and even certain smells or places can trigger overwhelming memories. None of this means you’re “weak.” It means you’re human.

If you’re struggling, please know this:

• You are not alone.
• Your feelings are valid.
• Your mental health matters just as much as your physical health.

Reaching out for help—whether through therapy, counseling, support groups, or talking with someone you trust—is an act of strength, not shame. Healing is not just about surviving cancer; it’s about reclaiming your peace, your joy, and your sense of self.

💜 You deserve care.
💜 You deserve support.
💜 You deserve to feel whole again.

If you find yourself struggling with the symptoms listed on the graphic, please reach out for help today. 🙏🏾

✨️ We Just Reached 7,000 Followers! ✨️Thank you for helping us break the silence.In less than a month, our community has...
02/17/2026

✨️ We Just Reached 7,000 Followers! ✨️

Thank you for helping us break the silence.

In less than a month, our community has grown by over 3,000 new followers — a surge that speaks volumes. This isn’t just growth. It’s a sign that people are finally recognizing the urgent need for v***ar cancer awareness, education, and open conversation.

For far too long, v***ar cancer has been hidden behind stigma, embarrassment, and silence. But every one of you — every follow, every comment, every like, every share — is helping to change that. You’re pushing awareness into places it has never reached before, and that truly saves lives.

💜 Thank you for showing up.
💜 Thank you for caring.
💜 Thank you for helping us break the taboo and bring this conversation into the light.

Your engagement is more than support — it’s advocacy. It’s courage. It’s community. And it’s making a real difference for patients, survivors, caregivers, and families everywhere.

✨️ Here’s to continuing this mission together.
✨️ Here’s to education, early detection, and empowerment.
✨️ Here’s to every voice that refuses to let this cancer remain invisible.

Thank you, 7,000 strong. 💪🏽

We are deeply, truly grateful. 💜

✨️ We’re Creating a Special Legacy Project ✨️This month, we are working on something incredibly meaningful — a project d...
02/15/2026

✨️ We’re Creating a Special Legacy Project ✨️

This month, we are working on something incredibly meaningful — a project dedicated to honoring the beautiful lives lost to v***ar cancer. Their stories, their strength, and their love deserve to be remembered.

If you would like your loved one to be included, we would be honored to carry their memory forward.
You can submit a photo and their full name to us via DM.

💜 Every name matters.
💜 Every story deserves to be seen.
💜 Every life should be remembered.

We hold your loved ones close as we build this tribute together. 🕊💜

✨️To every cancer patient:You are not defined by your diagnosis. You are defined by your courage. By the way you show up...
02/15/2026

✨️To every cancer patient:

You are not defined by your diagnosis. You are defined by your courage. By the way you show up—tired, hurting, uncertain—and still choose to fight. Still choose to hope. Still choose to love.

Whether today feels like a mountain or a moment of peace, you are seen. You are loved. You are never alone.

✨️ KEEP GOING.....
..One breath, one prayer, one step at a time.

✨️ Your story is sacred.

✨️ Your strength is real.

✨️ Your light—yes, even now—is shining.

Please don't scroll past this life saving information. After watching, please share to.inform others because awareness s...
02/11/2026

Please don't scroll past this life saving information. After watching, please share to.inform others because awareness saves lives! 💜💪🏽

In the quiet corners of women’s health, v***ar cancer often goes unspoken. 🤐 It begins in the v***a, the external part o...
02/11/2026

In the quiet corners of women’s health, v***ar cancer often goes unspoken. 🤐 It begins in the v***a, the external part of the female ge***alia, and most commonly affects the outer lips of the l***a. Yet despite how impactful it can be, the silence surrounding it is deafening. 🫢

What makes v***ar cancer so elusive?

🧬 It often starts as precancerous changes, abnormal cells that may linger for years before evolving into cancer.

‼️ Symptoms like persistent itching, skin changes, or unusual lumps are easy to dismiss or misattribute.

🔍 There’s no routine screening test, so early detection relies heavily on awareness and self-examination.

But beyond biology lies a deeper truth: v***ar cancer challenges our cultural comfort zones. 🫨 It forces us to confront taboos around female anatomy, aging, and sexuality. Many women feel embarrassed to speak up about symptoms 😶‍🌫️, and even healthcare providers may overlook subtle signs. 😔

Treatment often involves surgery 🏥, which can range from removing small areas of tissue to invasive procedures like radical vulvectomies and pelvic exenterations or life altering pelvic radiation and chemo therapy. These interventions, while life-saving, can affect health, body image, intimacy, and emotional well-being. 🌦️

So what can we do?

🗣️ Normalize the conversation. The v***a is not a shameful word. It’s part of our anatomy, deserving of care and attention.

💡 Empower self-awareness. Monthly self-checks and routine gynecologic visits can be life-changing.

📚 Advocate for education. Whether through forums, support groups, or community outreach, knowledge is a powerful antidote to fear. 💪

Vulvar cancer may go unmentioned, but every woman deserves to know her body, recognize warning signs, and feel safe seeking help. 🤝

Silence should never be the reason a diagnosis comes too late. ⏳ So, let's continue to break the silence and break through society's taboo barriers. 💪🏼

Understanding Vulvar Pre‑Cancerous ConditionsThere are 4 v***ar pre‑cancerous conditons. Vulvar pre-cancer doesn’t start...
02/11/2026

Understanding Vulvar Pre‑Cancerous Conditions

There are 4 v***ar pre‑cancerous conditons. Vulvar pre-cancer doesn’t start overnight — it begins with changes in the v***ar skin that can be detected early. Knowing the signs and symptoms is key to early detection.

Here are the main v***ar pre‑cancerous conditions:

• Dysplasia - Abnormal cell changes on the v***a that need monitoring and, in many cases, treatment.

• LSIL (Low‑Grade Squamous Intraepithelial Lesion) - Mild cell changes often linked to HPV. These may resolve on their own but still require follow‑up.

• HSIL (High‑Grade Squamous Intraepithelial Lesion) — More serious changes that carry a higher risk of progressing to cancer if untreated.

• VIN 1 (Vulvar Intraepithelial Neoplasia) — Low‑grade v***ar intraepithelial neoplasia; early abnormal changes.

• VIN 2 — Moderate abnormal cell changes that need medical attention.

• VIN 3 — Severe abnormal changes and the highest risk of becoming invasive cancer without treatment.

There is another type of VIN called dVIN , which is usually caused by Lichen Sclerosus.

👉🏽 These conditions are NOT cancer — but they are warnings and could progress to cancer

👉🏽 They are treatable.

👉🏽 Early detection makes all the difference.

If something feels off such as:

• Persistent Itching
• Burning
• Pain
• White or red raised lesions
• Bumps
• Iritation
• Sores

Please don’t wait and see a doctor. Advocate for yourself. Ask for a v***ar exam, and ask for a biopsy kf symptoms don’t improve.

💜 Your v***a deserves attention, care, and respect.

💜 Your story matters.

💜 Your body matters.

💜 Early detection matters.

Not sure how? That’s okay. Here’s a simple way to get to know your v***a and notice any changes.✨ Get comfortable.Stand,...
02/09/2026

Not sure how? That’s okay. Here’s a simple way to get to know your v***a and notice any changes.

✨ Get comfortable.

Stand, squat, sit over a handheld mirror, or lie down with your legs open — whatever helps you see clearly.

✨ Start with the hair-bearing area.

Take a look for anything that seems new or different, like spots, bumps, moles, rashes, redness, or sores.

✨ Find your cl****is.

Check for any changes in color, texture, or the appearance of bumps, moles or growths.

✨ Look at your outer lips (l***a majora).
Gently look and feel for anything unusual — bumps, lumps, moles, irritation, or changes in the skin.

✨ Check your inner lips (l***a minora).

Again, notice anything that doesn’t feel or look like your normal.

✨ Don’t forget the area between the va**na and a**s (perineum).

Look for irritation, bumps, moles, or changes in the skin here too.

🚨 If something doesn’t look or feel right, trust yourself.

Even small changes are worth mentioning to your doctor. Vulvar cancer is very treatable when found early.

💡 A quick reminder:

There’s no routine screening for v***ar cancer, and the only way to know for sure is through a biopsy — which is why knowing your own body matters.

💌 Please share this post to help spread awareness.

Early detection saves lives. 💜💪🏽

Know the Types - Understand the Risks.Vulvar cancer is not one-size-fits-all. There are multiple types, each with differ...
02/08/2026

Know the Types - Understand the Risks.

Vulvar cancer is not one-size-fits-all. There are multiple types, each with different characteristics, behaviors, and risks — and awareness can save lives.

This graphic highlights 6 types of v***ar cancer, including the most common and the more rare forms. Knowing what they are helps patients, caregivers, and clinicians recognize symptoms earlier and advocate for timely care.

✨ Awareness matters
✨️ Education empowers.
✨️ Early detection saves lives.

We encourage you to:

• Learn the types
• Learn the Symtpoms
• Listen to your body
• Speak up about changes
• Share this post to help spread awareness

Together, we can break the silence, reduce delays in diagnosis, and support those impacted by v***ar cancer.

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P. O. Box 3316
Bethlehem, PA
18017

Telephone

+14848930360

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