Vulvar Cancer Awareness Forum

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Vulvar Cancer Awareness Forum

If you or someone you care about is struggling to cope with Vulvar Cancer, Vulvar Cancer Awareness Forum is ready to help.

We are dedicated to raising awareness of vulvar cancer, educating the public, advocating for research and better treatments, and offering hands-on support to patients and families. Since 2018, we’ve succeeded in helping countless individuals navigate and overcome challenging situations. It is our mission to raise awareness for this little talked about cancer as well as educate on it. We also actively advocate for change and advancements in Vulvar Cancer treatments, early detection, development of screenings, etc. Besides that, we advocate directly on behalf of patients who are having difficulties going through the diagnostic stages, and those who have already been diagnosed. Knowing there is a lack of support for Vulvar Cancer Patients which often leads to feelings of isolation and loneliness, we offer three private support groups on Facebook, one for Vulvar Cancer, VIN (pre-cancer), and a family and friends support group. Our Support Group members are kind, patient, and open-minded with the experience, knowledge, and tools to help you cope with what you are going through. We all must walk our own paths through life, but we don’t have to do it alone. We’re here to help, all you have to do is reach out. On February, 1, 2021, we successfully launched our Vulvar Cancer Care Box program which is the first of its kind. The care boxes are designed to let patients know that they are not alone and provide them with some items that are needed, and to encourage them. The Vulvar Cancer Community may be largely overlooked, but we are changing that one step and one person at the time.

01/13/2026

🛑 𝗪𝗵𝗲𝗻 “𝗪𝗮𝘁𝗰𝗵 𝗮𝗻𝗱 𝗪𝗮𝗶𝘁” 𝗜𝘀𝗻’𝘁 𝗦𝗮𝗳𝗲: 𝗛𝗼𝘄 𝘁𝗼 𝗔𝗱𝘃𝗼𝗰𝗮𝘁𝗲 𝗳𝗼𝗿 𝗮 𝗩𝘂𝗹𝘃𝗮𝗿 𝗕𝗶𝗼𝗽𝘀𝘆 🛑

Too many women with symptoms of vulvar cancer are being dismissed, misdiagnosed, or told to “monitor” and "watch and wait" without receiving the one test that can actually diagnose or rule out cancer: a biopsy.

💡 𝗛𝗲𝗿𝗲’𝘀 𝗵𝗼𝘄 𝘁𝗼 𝗮𝗱𝘃𝗼𝗰𝗮𝘁𝗲 𝗳𝗼𝗿 𝘆𝗼𝘂𝗿𝘀𝗲𝗹𝗳 𝘄𝗵𝗲𝗻 𝘆𝗼𝘂 𝗸𝗻𝗼𝘄 𝘀𝗼𝗺𝗲𝘁𝗵𝗶𝗻𝗴 𝗶𝘀𝗻’𝘁 𝗿𝗶𝗴𝗵𝘁:

1️⃣ 𝘼𝙨𝙠 𝘿𝙞𝙧𝙚𝙘𝙩𝙡𝙮 𝙛𝙤𝙧 𝙖 𝘽𝙞𝙤𝙥𝙨𝙮: If you have a lesion, discoloration, or persistent symptoms, say clearly: “I would like a biopsy to rule out vulvar cancer.” You do not need to wait for your doctor to suggest it. You have the right to request it.

2️⃣ 𝙄𝙛 𝙩𝙝𝙚 𝘿𝙤𝙘𝙩𝙤𝙧 𝙍𝙚𝙛𝙪𝙨𝙚𝙨: Ask for That Refusal to Be Documented. Say: “Please document in my chart that you are declining to order a biopsy.” This simple request often shifts the dynamic. Many providers hesitate to put a refusal in writing—because it creates accountability. In many cases, they’ll reconsider and order the biopsy.

3️⃣ 𝙄𝙛 𝙏𝙝𝙚𝙮 𝙎𝙩𝙞𝙡𝙡 𝙍𝙚𝙛𝙪𝙨𝙚: Find a New Doctor. You deserve a provider who listens, investigates, and respects your concerns. A documented refusal is a red flag. Take your records and seek care elsewhere. Your health is worth the extra step.

4️⃣ 𝘽𝙧𝙞𝙣𝙜 𝙖 𝙎𝙪𝙥𝙥𝙤𝙧𝙩 𝙋𝙚𝙧𝙨𝙤𝙣 𝙤𝙧 𝘼𝙙𝙫𝙤𝙘𝙖𝙩𝙚: Sometimes having someone with you—especially someone who can calmly reinforce your request—can help shift the tone of the appointment and ensure you’re heard.

5️⃣ 𝙏𝙧𝙪𝙨𝙩 𝙔𝙤𝙪𝙧 𝘽𝙤𝙙𝙮: Trust Your Voice. You are not “being dramatic.” You are being vigilant. Vulvar cancer is rare, but it does happen—and early detection saves lives. A biopsy is quick, simple, and definitive. You are worth that clarity.

💬 Have you ever had to push for a biopsy—or been denied one? Your story could help someone else find the courage to speak up.

💪🏿 Let’s break the silence and empower each other to demand the care we deserve.

LichenSclerosus Cancer VulvalCancer GirlPower Advocate Awareness MakeUp

01/06/2026

Not sure how to do it? 🤔

Here's a detailed description. ⬇️

📌 Stand, squat, sit over the top of a handheld mirror, or lay on a bed with your legs spread making sure you can see your ge****ls clearly.

📌 Check the area where your p***c hair grows. Look for any moles, spots, lesions, bumps, lumps, rashes, white raised lesions red spots or pimples, or wart-like growths.

📌 Next, find your cl****is. Look for any growths, bumps, or discoloration.

📌 Check your l***a majora (the outer lips) and feel for any bumps. Also, visually look for any moles, rashes, growths, lesions, white raised lesions, red spots or pimples or wart-like growths, open sores, lumps, etc.

📌 Repeat this check with your l***a minora (the inner lips).

📌 Finally, look at your perineum. The perineum is the space located between the va**na and the a**s. Again, look for rashes, bumps, growths, and lesions.

🚨 If you see something, say something! Report anything suspicious or abnormal to your doctor. Even if it seems to be small it's, important that you do it. Vulvar cancer is very treatable if detected early.

There are no screenings for Vulvar Cancer. The ONLY 100% sure way to rule out or diagnose this cancer is a biopsy.

Please share this post with others to encourage them to check their vulvas.

GynaeCancer FemaleCancers FemaleAnatomy GynaeCancers GynecologicalCancer WomensHealth WomansHealth Gynecology GynaeHealth LichenSclerosus UterineCancer Cancer CancerSucks Healthcare PelvicHealth Wellness VaginalCancer Melanoma SquamousCellCarcinoma SkinCancer SelfCare PelvicFloorHealth CervicalCancer OvarianCancer Menopause

01/06/2026

Thanks for being a top engager and making it on to pur weekly engagement list! 💜🎉
Deb Scholberg, Lynn Oelkers, Sharon Mason Poynter

01/03/2026

✨ New Year’s Message from Our Founder ✨

As we step into 2026, I want to take a moment to thank each and every one of you for being part of this community. Many of you noticed that in 2025 we weren’t as active on social media as in previous years. While our presence here was quieter, our work behind the scenes was anything but. We’ve been building, strengthening, and preparing for a year of growth that we cannot wait to share with you.

I’m thrilled to announce that in 2026 we will be launching several major initiatives, starting with our brand‑new, interactive website. This updated platform will include a discussion forum, downloadable pamphlets, educational tools, and so much more. It’s designed to give patients, caregivers, clinicians, and advocates a space to connect, learn, and feel supported.

We are also excited to reveal that throughout 2025 we formed several meaningful partnerships that will help us take vulvar cancer awareness, advocacy, and research to the next level. These collaborations represent a powerful step forward, and we can’t wait to announce them publicly in the coming months. Please stay tuned, there is so much good on the horizon.

This community continues to grow in ways that humble and inspire us. We are now a family of more than 100,000 followers across all platforms. Your support, your shares, your comments, your invitations to others have been the heartbeat of this movement. You are the reason our message reaches individuals around the world. You are the reason lives are being changed and saved.

In 2026, we remain committed to doing the work that matters: raising awareness, amplifying voices, supporting those affected, and pushing for better research, better education, and better outcomes. Together, we will continue to make a difference for all.

Thank you for walking with us. Thank you for believing in this mission. And thank you for helping us shine a light on a cancer that deserves far more attention than it receives.

Wishing you all a hopeful, healthy, and empowered New Year.

With gratitude,
S. Yohanna Hoehler 💜

11/13/2025

I want others to know....

11/13/2025

Our prayers and thoughts are with Pippa. Vulvar cancer can be so relentless and its effects are utterly life changing.

Pippa, we're rooting for you! 💜🙏🏼

11/13/2025

10/27/2025

💌 I want others to know....

10/26/2025

Question of the Day:

What’s something kind you’ve done for yourself lately?

10/26/2025

"I wish I had known....."

"I want others to know..."

10/25/2025

💌 "I wish I would have known..."
💌 "I want others to know..."

10/25/2025

Early detection saves lives! 💖 Vulvar cancer can be treated effectively when diagnosed early. Consult the best Gynaecologist in Nallagandla for expert care. 🌸
📞 Book appointment: 8328589321
🌐 www.medicushospital.in

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P. O. Box 3316
Bethlehem, PA
18017

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+14848930360

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http://www.vulvarcancerawareness.com/

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