02/09/2026
Meet Eli Kromirs:
Two weeks into the COVID lockdown in March 2020, Eli entered his first flare. At just four years old, he didnât yet have the vocabulary to explain what he was feelingâand after living with pain for so long, he didnât realize that it wasnât normal. By April 2020, Eli was admitted for his first hospitalization, the only way to access the tests needed to understand what was happening in his body. On his fifth birthday, he underwent his first colonoscopy and was diagnosed with Very Early Onset Inflammatory Bowel Disease (VEO-IBD).
The following six months were marked by an exhausting search for the right medical team and treatment plan. That journey included an ambulance transfer from a hospital in Washington, D.C. to another in Philadelphia, where an incredible VEO-IBD care team helped set Eli on the road to recovery. It would take another year of hospitalizations, testing, and trial and error to fully address his remaining symptoms.
Slowly but surely, Eli no longer required blood and iron transfusions. He was able to return to school and reclaim his childhood. Today, Eli is a thriving fifth grader living a mostly typical lifeâone that just happens to include regular infusions to keep his body healthy.
For the past three summers, Eli has been one of the youngest campers at Camp Oasis in West Virginia. Beyond creating joyful sleepaway camp memories, the experience has shown him that he is not alone in living with IBD. Eli has grown into a strong self-advocate, learning to listen closely to his body. Knowing he was surrounded by adults who truly understand IBD provided his parents with invaluable peace of mindâand much-needed respite.
Eliâs mother, Melanie, also found support through the Crohnâs & Colitis Foundationâs Parent Support Groups. Connecting with fellow parents navigating similar challenges has been an essential source of strength, understanding, and shared knowledge.
Thanks to the ongoing research, advocacy, and community support of the Crohnâs & Colitis Foundation, there has never been more reason for optimism for those living with Crohnâs disease and ulcerative colitis.