Jewish Genetic Disease Consortium

07/17/2018

Thanks for sharing, Jscreen!

A Boston couple shares their experience with at-home Jewish genetic testing.

08/15/2017

Check out this article on the importance of genetic testing:
http://health.usnews.com/health-news/patient-advice/articles/2016-07-28/genetic-testing-before-pregnancy-should-be-as-common-as-taking-folic-acid

Very few pre-pregnancy checklists include carrier screening as an important health item.

07/31/2017

If you are interested in getting genetic screening, but are worried about the cost, there are options for you! Check out our resources for genetic testing to find a program near you: http://www.jewishgeneticdiseases.org/resources/

If you are not near a genetics center, Jscreen is a great option. It offers saliva-based test kits in the mail for $149. Check them out: https://jscreen.org/

Currently there are several ways to obtain screening – your doctor’s office (usually OB/GYN), Hospital based Medical Genetics Programs or online genetics education, counseling and screening programs.

07/18/2017

Check out 10 Things to Know about Jewish Genetic Diseases
http://reformjudaism.org/blog/2015/11/02/what%E2%80%99s-our-genes-10-things-know-about-jewish-genetic-diseases

07/17/2017

Doctors are not the only ones who can educate people about the importance of carrier screening. The Jewish community can be a resource to many families, with the right education. See where the JGDC has been teaching rabbis and communities: http://www.jewishgeneticdiseases.org/past-jgdc-rabbinic-community-programs/
Contact us if you would like to schedule a JGDC Rabbinic or Community Program in your area!

Connecticut Jewish Federation – Greenwich, CT – Couples Aware Rabbi Education Jewish Community Center of Stamford – Stamford, CT – Community Program University of Hartford – Hartford, CT – Community Program for students Mandell JCC of Greater Hartford – Hartford, CT – Community Program Congregation…

07/13/2017

A Short Film: The Jewish Genetic Disease Consortium
We invite you to watch this short film about the impact of Jewish genetic diseases on parents, children and families. The video features the stories of a family who lost a child to Tay-Sachs, a family with two adult children with ML-4, and a woman living her life with Bloom’s Syndrome.
These diseases are preventable with proper testing!

https://vimeo.com/122750731

This is "A Short Film: The Jewish Genetic Disease Consortium" by Jewish Genetic Disease Consort on Vimeo, the home for high quality videos and the people…

07/05/2017

Some things you might not know about Jewish genetic diseases and how they could affect you:

1. It's not just Tay-Sachs Disease
There are 38 genetic diseases that are common in people of Jewish ancestry.

2. They're really common
It is estimated that nearly 1 in 3 Ashkenazi Jews in the United States is a carrier of at least one of 19 Jewish genetic diseases. Even if you don't have a family history of a disease, you could still be a carrier. Carrier parents of the same disease have a 25% chance of having a child affected with the disease.

3. These diseases are preventable
You can reduce your risk of having an affected child by getting carrier screening. Visit our website to learn about the 38 genetic diseases and what you can do to prevent them!

The Jewish Genetic Disease Consortium (JGDC) increases awareness about Jewish genetic diseases and encourages timely and appropriate carrier screening.

01/13/2015

01/13/2015

CCAR PHILIDELPHIA, MARCH 2015

The JGDC will be attending the CCAR (Central Conference on American Rabbis) where they will be on a panel with the Victor Center, JScreen and The Program for Jewish Genetic Health. This panel will be monitored by Rabbi Peter Kasdan.

They will also have an educational booth alongside the aforementioned groups.