Chiari Connection International

Chiari Connection International Chiari Connection International (CCI) is a website and Yahoo Health Group resource for people with Chiari and related disorders.

the connection of MTHFR gene and Anxiety!
11/18/2025

the connection of MTHFR gene and Anxiety!

Explore the link between MTHFR gene mutation and mental health, covering its effects, testing options, and management strategies for better mental well-being.

love her passion!
11/17/2025

love her passion!

11/16/2025
11/15/2025
11/14/2025

Living with EDS and MALS turns eating moving and even breathing into a daily fight share the symptom from this list that changed your life the most so others know they are not alone 🦓💛

11/14/2025

đź§  PANS/PANDAS: A Treatable Condition Too Often Missed

Imagine your thriving, happy, social child—or yourself—suddenly unable to function. Overnight, everything changes: OCD or restricted eating takes over, anxiety skyrockets, tics appear, moods swing, schoolwork slips away, sleep disappears, and once-familiar behavior turns unrecognizable. This is what PANS and PANDAS can look like.

PANS and PANDAS are neuroimmune conditions triggered by infections, inflammation, or metabolic imbalances that cause brain inflammation.

Symptoms often relapse and remit, changing quickly depending on exposure to triggers and treatment access. At first glance, PANS/PANDAS can resemble OCD, ADHD, autism, Tourette’s, anxiety, or mood disorders—and that’s why it’s so often misdiagnosed.

But here’s what makes PANS/PANDAS different:
This isn’t just a psychiatric disorder. It’s a medical condition affecting the brain. And treating only the symptoms psychotherapeutically isn’t enough. Proper care requires a medical and therapeutic approach.

Research shows that early identification and appropriate treatment lead to better outcomes. Yet families often see an average of 8 doctors over 3 years before getting the right diagnosis. That delay can mean lost childhoods, lost stability, and in devastating cases, lost lives.
It’s time to change that.

🧩 Download and share ASPIRE’s free 8-page Overview of PANS/PANDAS Toolkit — a resource for families, educators, and clinicians that helps bridge understanding and guide appropriate care.
📎 https://aspire.care/clinicians/aspire-overview-of-pans-pandas-information-packet

11/11/2025

Current Research from IOF members Frontiers in Safety and Efficacy This project was the brainchild of one of the pioneers of Regenerative medicine, Gerry Malanga, M.D. I was blessed with the rare opportunity to work beside him as a medical student, resident, and colleague. Gerry was an endless sourc...

finally a UK MD that understands!
11/08/2025

finally a UK MD that understands!

11/08/2025

I once had a doctor look at my chart and ask, "So, the trauma is in the past?" I didn't have the words then. I just remember the thrumming in my own veins, the way my shoulders would lock for no reason, the stomach that felt like a clenched fist days after an argument. My body knew what my mind was trying to bury. It was a living, breathing archive of every shock my system had ever endured.

Reading Bessel van der Kolk's "The Body Keeps the Score" is like being handed the key to that archive. This book is not just a text on trauma; it is a radical re-envisioning of the mind-body connection. Van der Kolk, a pioneering psychiatrist and researcher, lays out, with devastating clarity and profound compassion, how trauma literally rewires the brain and gets trapped in the body, not as a memory, but as a physical, present-tense reality.

1. Trauma is a Civil War Within the Self
Van der Kolk’s central thesis is that trauma is not the story of something that happened back then. It is a physiological state to be re-lived. The brain's alarm system gets stuck on 'on,' leaving the body in a constant state of defense, at war with its own senses, its own safety. The past is not past; it is an ever-present physiological emergency.

2. The Mind Can Lie, But the Body Always Tells the Truth
We can construct narratives to survive, to make the unbearable seem neat. But the body refuses to be edited. It speaks in the language of migraines, autoimmune flares, chronic pain, and a heart that races in a quiet room. Healing begins when we stop arguing with the story and start listening to the flesh.

3. The Path Out is Through the Body, Not Just the Mind
Talk therapy can only take you so far when your body is still on the battlefield. Van der Kolk presents a powerful array of somatic therapies—yoga, EMDR, neurofeedback, and sensorimotor psychotherapy—that bypass the storytelling brain to speak directly to the nervous system. The goal is to teach the body that the danger is over, and that it is safe to inhabit itself again.

4. The Emotional Brain is Held Hostage
Trauma fundamentally alters brain structure. It hijacks the rational, "thinking" part of the brain (the prefrontal cortex) and gives ultimate authority to the emotional, survival brain (the amygdala). This is why traumatized people can't just "calm down" or "think rationally." Their brain's command center has been overthrown.

5. Trauma Shatters the Sense of Self
A core wound of trauma is the loss of ownership of one's body and mind. Survivors often feel disconnected, numb, or as if they are watching their life from a distance (dissociation). Healing, therefore, is not just about processing a memory, but about reclaiming the self—the right to feel, to desire, and to be present in one's own skin.

6. The Power of Rhythm and Relationship
Van der Kolk highlights two of the most fundamental regulators of our nervous system: rhythmic movement (like drumming, dancing, or swimming) and attuned, safe relationships. These are primal sources of comfort that can help re-regulate a dysregulated system and rebuild a sense of connection that trauma destroyed.

7. Trauma is Transmitted and Collective
The book extends beyond individual experience to explore how trauma can ripple through families (as in generational trauma) and entire societies. The body of a culture, like the body of a person, can hold the score of historical atrocities, shaping behaviors and health for generations.

8. The Limitations of Medication and Talk Therapy Alone
While sometimes necessary, van der Kolk argues that medication often just numbs the symptoms, and traditional talk therapy can sometimes re-traumatize by forcing a person to relive the event without providing the bodily tools to process it. True integration requires a bottom-up approach, starting with the body's physiology.

9. Healing is the Recovery of Play and Imagination
Trauma makes the world a terrifying and predictable place. Recovery involves rediscovering the capacity for play, creativity, and imagination. These are not frivolous; they are biological imperatives that allow for flexibility, spontaneity, and the creation of new, safe experiences.

10. You Can Re-write the Score
The book’s ultimate message is one of profound hope. Neuroplasticity means the brain can change. The body can learn new rhythms. While the scar of trauma remains, the debilitating pain does not have to. We are not condemned to be prisoners of our past. We can learn to live in the present, with a body that is no longer an enemy, but a trusted ally.

There is a line in the book that serves as a guiding light for the entire work: "The body keeps the score, and the body can be the door to the healing process." "The Body Keeps the Score" is a monumental, essential, and life-changing book. It is for anyone who has ever felt trapped by their own physiology, for anyone who has been told "it's all in your head," and for anyone who seeks to understand the deepest roots of human suffering and resilience. It is a difficult, often painful read, but it is also a map—the most comprehensive and compassionate one we have—leading out of the wilderness of trauma and back home to the self.

BOOK: https://amzn.to/4nJdTR7

You can ENJOY the AUDIOBOOK for FREE (When you register for Audible Membership Trial) using the same link above.

I know so many patients need Mast Cell Activation help.
11/07/2025

I know so many patients need Mast Cell Activation help.

Novartis is an innovative medicines company. Every day, we work to reimagine medicine to improve and extend people’s lives so that patients, healthcare professionals and societies are empowered in the face of serious disease. Our medicines reach 296 million people worldwide.

Address

New York, NY
10016

Opening Hours

Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 9am - 5pm

Telephone

+19175549500

Alerts

Be the first to know and let us send you an email when Chiari Connection International posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Chiari Connection International:

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram