Sickle Cell Thalassemia Patients Network

Sickle Cell Thalassemia Patients Network Sickle Cell Thalassemia Patients Network (SCTPN) by adults living with sickle cell disease, thalassemia, and other hemoglobin disorders.

Sickle Cell Thalassemia Patients Network (SCTPN) was incorporated in 1992 as a volunteer, community-based organization (CBO). Their desire was tto serve the larger community by providing a face and a voice for these under represented health issues. SCTPN provides scholarships to young adults with SCD to assist them with college expenses. We also provide public education programs to help increase a

wareness and knowledge of hemoglobin disorders. We serve as advocates/liaisons for families and healthcare professionals at hospitals, throughout the New York Tri-State area, that provide comprehensive care for sickle cell disease and coordinate referrals to needed services. SCTPN is committed to helping diminish the negative social, psychological, and economic impact of these debilitative disorders on our community.

* Summer GENERAL Campferences� * Our residential programs that bring young adults together for a weekend of food, fun...
04/25/2026

* Summer GENERAL Campferences�
* Our residential programs that bring young adults together for a weekend of food, fun, and friends.�

* Interested? Apply here for Summer Campference�
* https://www.nextstepnet.org/event/2026-next-step-summer-campferences/�
* Summer Songbook�
* This music therapy program is a 4-5 week commitment where you meet 1 on 1 with a Music Mentor (virtually) for an hour a week to find your voice, develop your self-confidence, and learn other life skills through songwriting.� ◦ Interested? Apply for Summer SONGBOOK here�
* https://www.nextstepnet.org/event/next-step-songbook-summer-2026/
*
* Summer Mentoring�
* We offer a mentoring program that supports folks 16-29 years old living with a chronic illness in identifying and working on a goal of their choosing.�Interested? Apply for Summer MENTORING�https://www.nextstepnet.org/event/next-step-mentoring-program-summer-2026/

Please Save the Date: Thursday, May 7, 2026 at 7:00 PM EST.Westchester Sickle Cell Outreach Invites you to Join:The Nut...
04/24/2026

Please Save the Date: Thursday, May 7, 2026 at 7:00 PM EST.
Westchester Sickle Cell Outreach Invites you to Join:
The Nutrition & Wellness Workshop.
Presented by Athena Dent - Alleyne
Certified Health Coach

visit www.sctpn.net for resources and support.

For many patients with sickle cell and thalassemia, blood transfusions aren’t optional — they’re survival.And we are fac...
03/15/2026

For many patients with sickle cell and thalassemia, blood transfusions aren’t optional — they’re survival.
And we are facing a severe shortage.
If you’re eligible, your 1 pint could save up to 3 lives.
Especially needed: African American, Caribbean, Latino, and ethnically diverse donors.
Your blood is powerful.
Your donation is life.
Act now.


visit www.sctpn.net for resources and support.

Address

1139 Saint Johns Place
New York, NY
11213

Opening Hours

Monday 11am - 11pm
Tuesday 11am - 11pm
Wednesday 10am - 11pm
Thursday 10am - 11pm
Friday 10am - 11pm

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Our Story

SCTPN is a 501 (c)(3) non-profit organization incorporated in 1993 which provides advocacy, education, referral services, and support for individuals and families living with Sickle Cell Disease, Thalassemia(Cooley’s Anemia), and other inherited hemoglobin disorders. We were founded in 1989 at Brooklyn Jewish Hospital (now Interfaith Medical Center) as an adult and parent support group.

Sickle Cell and Thalassemia are hemoglobin disorders caused by genetic mutations developed as a result of the immune response against malaria. They primarily affect people of African and Central/South American descent, but also occurs in Mediterranean, Middle Eastern, East Indian, Asian and Southeast Asian populations. The disease process results in severe anemia, poor circulation, oxygen deprivation, joint/bone pain, and chronic episodes known as “crisis” which can begin as early as 6 months old. It is debilitating, especially in conjunction with other complications. Even with medical care, disability or death often occur in childhood and early adult years. The CDC conservatively estimates that 100,000 Americans are affected.

Our mission is to improve the quality of life for individuals and families living with these hemoglobin disorders through education, advocacy and support interactions.