Sickle Cell Thalassemia Patients Network

Sickle Cell Thalassemia Patients Network Sickle Cell Thalassemia Patients Network (SCTPN) by adults living with sickle cell disease, thalassemia, and other hemoglobin disorders.

Sickle Cell Thalassemia Patients Network (SCTPN) was incorporated in 1992 as a volunteer, community-based organization (CBO). Their desire was tto serve the larger community by providing a face and a voice for these under represented health issues. SCTPN provides scholarships to young adults with SCD to assist them with college expenses. We also provide public education programs to help increase awareness and knowledge of hemoglobin disorders. We serve as advocates/liaisons for families and healthcare professionals at hospitals, throughout the New York Tri-State area, that provide comprehensive care for sickle cell disease and coordinate referrals to needed services. SCTPN is committed to helping diminish the negative social, psychological, and economic impact of these debilitative disorders on our community.

11/28/2025

Moody's Blues: Remembering Cavaub Moody.
visit www.sctpn.net for resources and support.

11/21/2025
Health Inspector Hiring Event from NYC Dept of Mental Health and Hygiene:https://nycdohmh.surveymonkey.com/r/DHCH9SWOur ...
11/20/2025

Health Inspector Hiring Event from NYC Dept of Mental Health and Hygiene:
https://nycdohmh.surveymonkey.com/r/DHCH9SW

Our Healthy Homes Program (HHP) Public Health Sanitarians inspect homes for lead exposure, educate families, and help keep entire neighborhoods safe.

We’re offering an incredible career opportunity for those who want meaningful work, steady growth, and the chance to protect our community from the inside out.

This could be the career you’ve been waiting for.
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11/20/2025

Health Inspector Hiring Event from NYC Dept of Mental Health and Hygiene:
https://nycdohmh.surveymonkey.com/r/DHCH9SW

Our Healthy Homes Program (HHP) Public Health Sanitarians inspect homes for lead exposure, educate families, and help keep entire neighborhoods safe.

We’re offering an incredible career opportunity for those who want meaningful work, steady growth, and the chance to protect our community from the inside out.

Watch the video to see what the job is really like — and why this could be the career you’ve been waiting for.
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10/24/2025

Moody Blues: Remembering Cavaun Moody

Visit www.sctpn.net for resources and support


09/30/2025

Today, we mark the 2025, dedicated to the theme “Ensuring Access to Environmental Information in the Digital Age.”

In a world facing climate change, pollution, biodiversity loss, and disaster risks, access to timely and cross-border environmental information has never been more critical. 🌱

Open data and digital technologies play a transformative role in making knowledge more accessible, fostering transparency, and empowering citizens to participate in environmental governance and .

Universal access to information is a cornerstone of democracy and accountability, and a powerful tool for building more inclusive and resilient societies.

Let’s continue to uphold the right to know and ensure that everyone, everywhere, can access the knowledge needed to protect our . 🌏

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1139 Saint Johns Place
New York, NY
11213

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Tuesday 11am - 11pm
Wednesday 10am - 11pm
Thursday 10am - 11pm
Friday 10am - 11pm

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Our Story

SCTPN is a 501 (c)(3) non-profit organization incorporated in 1993 which provides advocacy, education, referral services, and support for individuals and families living with Sickle Cell Disease, Thalassemia(Cooley’s Anemia), and other inherited hemoglobin disorders. We were founded in 1989 at Brooklyn Jewish Hospital (now Interfaith Medical Center) as an adult and parent support group.

Sickle Cell and Thalassemia are hemoglobin disorders caused by genetic mutations developed as a result of the immune response against malaria. They primarily affect people of African and Central/South American descent, but also occurs in Mediterranean, Middle Eastern, East Indian, Asian and Southeast Asian populations. The disease process results in severe anemia, poor circulation, oxygen deprivation, joint/bone pain, and chronic episodes known as “crisis” which can begin as early as 6 months old. It is debilitating, especially in conjunction with other complications. Even with medical care, disability or death often occur in childhood and early adult years. The CDC conservatively estimates that 100,000 Americans are affected.

Our mission is to improve the quality of life for individuals and families living with these hemoglobin disorders through education, advocacy and support interactions.