Oxalosis and Hyperoxaluria Foundation

03/01/2026

Today on Rare Disease Day, we stand together with the 300 million people worldwide living with a rare disease, their families, and caregivers — including our entire hyperoxaluria community!

This global day shines a light on the challenges we face and calls for rare diseases to be recognized as a human rights priority. By advocating at local, national, and international levels, we can build a more inclusive world where no one is left behind.

Together, we're stronger. Let's keep raising awareness and pushing for better care, research, and support for those affected by hyperoxaluria and oxalosis.

02/27/2026

The International Hyperoxaluria Workshop registration - AND the call for abstracts - is NOW OPEN!!!

The International Hyperoxaluria Workshop is recognized globally as the largest professional event in which leading stakeholders come together to explore clinical advances, cultural trends, and current research outcomes that will inform our work and provide better care to those facing the challenges of hyperoxaluria diseases.

Collaboratively, leading experts, researchers, clinicians, and members of industry will engage each other through inspiring dialogue aiming to advance the highest quality and development of hyperoxaluria future outcomes.

All conference registrations will include full access to the 2-day scientific program, access to the poster exhibition and networking events.

https://ohf.org/international-hyperoxaluria-workshop-2026/

02/26/2026

💙🩷💚💜

02/26/2026

More than you can imagine.
Living with hyperoxaluria isn’t just about managing a rare disease — it’s about navigating daily life in ways others rarely see.

02/25/2026

More than you can imagine.
The appointments. The planning. The physical and emotional strength it takes every day.

02/24/2026

More than you can imagine.

Behind every rare disease statistic is a person, a family, and a community working to be seen, heard, and supported.
At OHF, we’re proud to support those affected by hyperoxaluria and to amplify the voices that too often go unheard.

02/23/2026

Light Up for Rare!

Join people around the world in lighting up homes and landmarks to raise awareness for rare diseases on Rare Disease Day!
Saturday, February 28 | 7:00 PM (local time)

Find ideas and learn how to participate in this global show of support:

Everyone can participate in the Global Chain of Lights and Share Your Colours!In an effort of global solidarity, you are invited to light or decorate your ho...

02/23/2026

More than you can imagine.
Hyperoxaluria affects far more than the body, shaping daily choices, long-term planning, and emotional resilience.

02/22/2026

More than you can imagine.
Living with hyperoxaluria means more than managing symptoms. It means facing daily decisions and uncertainty most people never see.

What’s one thing you wish others understood?

02/22/2026

More than you can imagine.
Rare diseases affect millions of people, yet so much remains unseen.

02/21/2026

More than you can imagine.

Living with hyperoxaluria means navigating challenges most people never see.