My Journey

My Journey This is my Journey with AML leukemia. What's it like living with cancer? It's not easy.

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12/08/2025

I want to share this video because I feel like it is important to share. I recently hit a huge milestone and have surpassed eight years with no evidence of disease. While that is a huge milestone, and I am so grateful for each and every day, I find myself grieving a loss that Cancer took from me. Sometimes it’s hard to put things into words and just come out and talk about it so I decided to write something so that I could get the message I wanted to convey, across. Although an article would have sufficed, I wanted people to feel the emotion behind what I was saying, so I decided to record me reading what I had written. I truly hope that my words are able to help someone who might have gone through the same thing or in the future will go through the same thing. My number one goal in sharing this is to raise awareness and to make women feel and understand that what they are feeling is valid and that raising your voice isn’t having an attitude or being difficult. Your health, your body, your mind, your words and your concerns are sacred and what you’re feelings are matter! Don’t ever feel like asking a question or advocating for yourself is being difficult.

When your oncologist texts you on your 6th re-birthday! I have the best doctor ❤️❤️
11/28/2024

When your oncologist texts you on your 6th re-birthday! I have the best doctor ❤️❤️

September 17 2018 - after finding out the cancer was back and only given a 10-20% chance of living, my 2nd induction che...
09/17/2024

September 17 2018 - after finding out the cancer was back and only given a 10-20% chance of living, my 2nd induction chemo started. After relapsing with AML, I was numb. So many feelings come up when I think about this, but the one thing that always gets me through it is knowing my family was by my side.

This October 5, when I give my keynote speech I will be discussing all of the emotion I felt. I will speak about relapse, having to explain it to my son, what the family dynamic looked like and why I was able to speak about it so openly.

There is still time to register for this event! Go to PerspectivesOnCancer.com to snag a ticket!!

08/29/2024

The nerves in my feet are dying very fast, which is leading to horrific neuropathy, however, the test that was on my calf shows moderate damage and my thigh seem to be OK, which means the damage is minimal.

This means that I am going to try new medications to stop the nerve damage from getting any worse. The neuropathy I have in my feet is already bad but it can get to a point where I will lose mobility however the doctor said I’m about 40% right now. Most likely won’t be able to go down but we’re hoping we can stop it from going forward at least for another 5-10years. I will also be looking for a clinical trial to hopefully join the deals with neuropathy caused by chemotherapy. I just want to be able to cheer for my son on the sidelines, if that means I need a wheelchair on 10 years, so be it. At least I’m alive!

F**k Cancer 🖕🏼

Another test came back today and was in the my chart. No inversion 16 was detected. I’m assuming my Oncologist did all o...
07/09/2024

Another test came back today and was in the my chart. No inversion 16 was detected.

I’m assuming my Oncologist did all of this testing because he thought there could be a possibility of relapse again however everything is coming back good except for the GV HD ST2 test .

I’m going to continue praying and I will post more updates as I receive them but for right now, everything is looking promising.
I still need to set up CAT scans and x-rays , I just received my B12, which I’ll start taking tomorrow morning, and I’m waiting to see if Oncologist wants to do another bone marrow biopsy.

I always thought that once Cancer was done, it would look a lot different than this.

Just wanted to post an update… So I heard back from a friend of mine that works for the national bone marrow association...
07/06/2024

Just wanted to post an update…

So I heard back from a friend of mine that works for the national bone marrow association and she gave me some information on ST2. Basically when your levels are very high, it just means that there is GVHD that is resistant to medication. Currently, I am dealing with it in my left leg, which I think is positive because it’s only in one spot. Although very high numbers can mean mortality I am not looking at it that way, and my friend doesn’t feel like it’s going to be that bad. We just are thinking it’s because of the nerve biopsy and this is how my donors immune system reacts to having a flareup..

I still need to get a lot of testing done most likely another bone marrow biopsy. I also have to have some CAT scans and x-rays done to check for masses and things like that in my left leg but for the most part, we’re pretty sure it’s just a flareup and I will be continuing to pray that God heals Me. Unfortunately when the donor immune system sees your body as a foreign entity and start attacking it, there’s not much you can do about it. I am in touch with my oncologist and all of the other Doctors and we will be getting to the bottom of what is going on.

06/18/2024

Update - 6/18

06/13/2024
06/02/2024
7 years ago I received the worst news of my life…. “You have cancer” I wasn’t sure what my life would look like, if I wo...
05/17/2024

7 years ago I received the worst news of my life…. “You have cancer”
I wasn’t sure what my life would look like, if I would survive, or if I would ever see my son again.

My cancer journey was NOT easy and today I suffer with excruciating pain because of the treatments I received, but…. They worked!

Today, I am alive! I am 5 years NED and can finally say cancer free.

So proud of Isaac ! Let me know your thoughts!
04/18/2024

So proud of Isaac ! Let me know your thoughts!

I am so excited to share today's video! I think you will be surprised and impressed! We have a returning guest, Amanda Ferraro, as well as her 10 year old ...

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