Cerebral Palsy Foundation

Cerebral Palsy Foundation CPF's mission is to be a catalyst for change for the 50 million people w/ cerebral palsy in the world This page is managed by CPF staff
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As Cerebral Palsy Awareness Month comes to a close, we want to share an important update with our community.Along with f...
03/30/2026

As Cerebral Palsy Awareness Month comes to a close, we want to share an important update with our community.

Along with families and people with cerebral palsy, organizations, institutions, and clinicians across the U.S. came together this month alongside the Cerebral Palsy Foundation to call for increased investment for cerebral palsy research and lifespan care. Together, we have submitted a joint letter of support to Congress.

Stronger cerebral palsy research investment and public health priority can help:
• Improve understanding of cerebral palsy
• Support earlier diagnosis and intervention
• Strengthen treatments, services, and supports
• Improve outcomes across childhood and adulthood

This effort reflects the voices of people with cerebral palsy, families, clinicians, researchers, institutions, organizations and advocates coming together to push for change.

While this is an important step forward, there is still much more work to do.

Please know that our voices matter, your experiences matter, and they are helping drive this work forward.

We’re proud to stand alongside organizations and the CP Community across the country as we continue working toward better support and outcomes for people living with cerebral palsy.

American Academy for Cerebral Palsy and Developmental Medicine
American Brain Coalition
CBRE (Global Commercial Real Estate Services)
Cerebral Palsy Alliance Research Foundation
Cerebral Palsy Research Network
Child Neurology Foundation
Children's Craniofacial Association
Columbia University in the City of New York
Columbia Weinberg Family Cerebral Palsy Center
Easter Seals DuPage and Fox Valley
Eliana's Light
Encephalitis411
Florida Atlantic University
Gillette Children's
HMS School for Children with Cerebral Palsy
Hope for HIE
Kennedy Krieger Institute
Montana Chapter of the American Academy of Pediatrics
Northwestern University, Feinberg School of Medicine and McCormick School of Engineering
PMD Foundation (Pelizaeus-Merzbacher Disease)
Shirley Ryan AbilityLab
The Akari Foundation
The Hydrocephalus Association
The LCC Foundation (Labrune Syndrome)
United Ability
United Cerebral Palsy
United Cerebral Palsy of Alabama
United Cerebral Palsy of Central Arizona
United Cerebral Palsy of Huntsville and Tennessee Valley, Inc.
United Cerebral Palsy of Mobile, Inc.
United Cerebral Palsy of Northwest Alabama
University of Alabama Pediatrics
University of California Los Angeles
University of Florida
University of Florida Department of Pediatrics
University of Texas Southwestern

CP Advocacy Changemakers: Pt. 4 — Nicola Welford✨Nicola's dedicated advocacy in Ireland has reached far and wide — just ...
03/30/2026

CP Advocacy Changemakers: Pt. 4 — Nicola Welford✨

Nicola's dedicated advocacy in Ireland has reached far and wide — just last week, she met with Minister for Disability, Emer Higgins to share her story, part of which we want to share with you:

"Life with a child who has quadriplegic cerebral palsy, who is non-verbal, who uses a power chair, and yet is fully intellectually capable—thriving in mainstream school with the highest grades—has reshaped every part of who I am... it meant learning how to balance being a parent, an advocate, and simply trying to survive the day-to-day demands.

You find yourself fighting battles you never expected to fight, simply to access the basic services your child needs. Yes, everything changed the day she was diagnosed. But in that change, we took action and found a new way forward—one built on advocacy, resilience, and unwavering love.

This year’s Cerebral Palsy March Awareness campaign asks us to “Take Action.”

And that is exactly what we must do.

We must listen to the voices of the CP community. We must elevate those voices to the main stage. We must challenge the gaps in services and the lack of support. We must demand better—from our systems, from our government, and from society as a whole."

Calling all adults with cerebral palsy: we still need your input! You deserve clear, accessible health information and o...
03/30/2026

Calling all adults with cerebral palsy: we still need your input! You deserve clear, accessible health information and opportunities to participate in research.

This is our last call for responses to our open survey... help us understand what needs to change. Take the survey at https://www.surveymonkey.com/r/PCORI1FB.

Thanks to everyone who's shared their perspectives with us already! We're so grateful for your support and we'll use this feedback to improve how we engage with healthcare and research.

The majority of people with cerebral palsy experience chronic pain and that can also change with age. We know that pain ...
03/29/2026

The majority of people with cerebral palsy experience chronic pain and that can also change with age. We know that pain can be managed with the right treatment and support in place but it's something a lot of individuals learn to live with.

We recently conducted a review of existing research on pain in adults with CP through our program and want to share our findings with you. Read our systematic review on pain and download more related resources at cerebralpalsygrowsup.org/cpg.

CP Advocacy Changemakers: Pt. 3 — Jen Lyman✨She started advocating when her son was just very young — first in D.C., adv...
03/28/2026

CP Advocacy Changemakers: Pt. 3 — Jen Lyman✨

She started advocating when her son was just very young — first in D.C., advocating for children’s healthcare, then helping unite CP organizations across the country into one collective voice. Today, alongside CPF, Jen continues this work and reminds us that progress in cerebral palsy takes collaboration, consistency, and commitment year after year:

"What I've learned through all of this is that it takes consistency. You can't just do it [awareness and advocacy work], and then forget about it. You literally have to go back every year, and continue this effort — to remind [Congress] why cerebral palsy is important, why we need more treatments.

That’s what awareness is about. We want to improve the quality of life for people with cerebral palsy to make sure that they have the very best treatments and therapies that are available — and that the research to support evidence-based therapies is funded — that’s really what it’s all about."

Thank you for continuing to share your stories with us 💚Each Saturday, we’ve been highlighting voices from our community...
03/28/2026

Thank you for continuing to share your stories with us 💚

Each Saturday, we’ve been highlighting voices from our community and what cerebral palsy awareness means to them.

But awareness doesn’t end in March — let's keep the conversation going. What does CP awareness mean to you? Let us know below ⬇️

CP Advocacy Changemakers: Pt. 2 — Michael Kutcher✨Michael wears many hats, business executive, disability advocate, moti...
03/27/2026

CP Advocacy Changemakers: Pt. 2 — Michael Kutcher✨

Michael wears many hats, business executive, disability advocate, motivational speaker, father, husband and brother... the list goes on.

He's motivated by the impact he can have: "Every conversation that changes someone’s perspective, every door that opens a little wider, every person who feels seen or supported—that’s fuel. Progress might not always be loud or fast, but it’s real. And knowing that advocacy can create a ripple effect keeps me committed.”

From his home state of Iowa, and now Colorado, to Washington DC where he testified before Congress on behalf of CPF and the cerebral palsy community, Michael has been a great advocate for cerebral palsy research and CP Awareness for more than a decade using his voice and lived experience to help create positive change.

37 signatures in support of cerebral palsy research. 💚Over the last week, the Cerebral Palsy Foundation mobilized organi...
03/27/2026

37 signatures in support of cerebral palsy research. 💚

Over the last week, the Cerebral Palsy Foundation mobilized organizations and institutions across the nation to urge Congress to prioritize cerebral palsy research investment in Fiscal Year (FY) 2027.

Cerebral palsy is the most common lifelong motor disability, yet the prevalence of cerebral palsy in the United States is not declining despite advances in maternal and neonatal care. The public health need continues to grow for the millions of individuals living with cerebral palsy and their families. Increased federal research investment is critical to advancing our understanding of the causes of cerebral palsy, identifying risk factors, improving early detection and intervention, and developing better treatments and supports across the lifespan.

This investment will also help accelerate the scientific research and clinical innovation being carried out at universities, hospitals, and research institutions across the country.

We're so grateful for this collective support — there is strength in numbers and together, we will transform the future of cerebral palsy!

Have you heard of the GMFCS when it comes to cerebral palsy? Do you know your or your child's GMFCS level? Leave a comme...
03/27/2026

Have you heard of the GMFCS when it comes to cerebral palsy? Do you know your or your child's GMFCS level? Leave a comment sharing what you experience.

The Gross Motor Function Classification System, or GMFCS is designed to describe levels of function and it's often used to asses what mobility aids your child may need to complete certain tasks. As individuals with CP age, or even in certain situations like big crowds or dark spaces, they may experience changes in function.

Swipe through ➡️ to see visuals and descriptions of GMFCS 1-5. Learn even more about this system and cerebral palsy on https://cpresource.org/topic/what-cerebral-palsy/key-facts-gross-motor-severity.

03/26/2026

More fantastic highlights from Cerebral Palsy Awareness Day yesterday! The CP Community and advocates like State Representative Nicole La Ha are doing fantastic work!

03/26/2026

CP Advocacy Changemakers: Pt. 1 — Cathryn Gray

Listen to what Cathryn shared about life with cerebral palsy in a recent testimony to U.S. Congress members. Cathryn is a disability advocate who serves on several advisory boards, works in financial services, and is a competitive rower and national rowing medalist for the Atlanta Rowing Club.

In addition to her advocacy, Cathryn grew into an elite para track and field athlete and was the first female University of Michigan track and field athlete with cerebral palsy!

03/26/2026

Did you know? Early intervention is crucial for children with cerebral palsy. APPLES-tele brings therapy right to your home! Open to babies 4-13 months old with cerebral palsy or at high risk.

Comment “yes” below or DM us to learn more.

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