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Triple "M"

Messiah was born 4/30/17 with complex Congenital Heart Disease. He had his first heart surgery at just 5 days old. He died 10/16/18

Messiah's sweet little heart was truly too tired after 5 additional surgeries when he was 10 months old.

03/31/2026

This weekend at Hayden’s House was something I’ll carry with me for a long time 🤍

Surrounded by love and grief, I spent time with some truly amazing women—mommas who understand in a way only we can. We were given the space to just be… to feel, to share, to remember, and to breathe.

I also spent this weekend wrapped in Messiah—the love, the peace, the covering—and it was truly amazing. In the middle of grief, there was still comfort… still light… still moments that reminded me I’m not alone.

There’s a unique comfort in shared grief—being held by women who truly get it. And just as powerful was the laughter… the kind that feels safe, genuine, and needed, shared with mommas who understand both the pain and the love we carry every day.

From hot tub time to pool time, craft time to karaoke, and even game time—every moment was filled with connection, bonding, and a deep sense of comfort.

My heart is full. My spirit feels held.

To the Mommas… until next time 🐘🤍

05/01/2025

Happy 8th birthday, Messiah🎂🎈👑🎁🥰

It seems so surreal that you would be 8 today. I will always wonder who you would be and what life would look like with you still here. Every Birthday some how gets harder bc this is so unfair. We both definitely deserved better. We deserved a full story, more time, more loving each other, more everything.. I just get this... NOW.. Birthdays with you in the sky😔

Life is so unfair.

Happy Birthday to my SON, my MOON & and all THE 🌟 STARS in the GALAXY🎉🎉🎂🎂🎂🌟🌟🌟🎁🎁👑👑🎈🎈🎈..

Messiah should be here turning 8 and blooming into a sweet young man... with his beautiful smile, big bright eyes, and zipper scar to show the girls🤭🤣

Hey sweet boy, our love is forever 🥰🎁🎈 until we meet again🌟👑👋🏾😘😘 I love you for ALWAYS🥰 My baby boy, you will be.

12/26/2024

Merry Christmas, Messiah Ya momma loves you 🎄🎉🎁🎊🎈❄️💙

Christmas 🎄🎄❄️❄️ in heaven has to magical🥰

🎄

03/31/2024

Happy Easter in Heaven Messiah, we love l9ve you beyond the Sky sweet boy🥰🥰🐰🐣💓

🐣

12/24/2020

Merry Christmas in heaven sweet boy Messiah 🎅🏾🎄☃️🦋🕊👼🏽

02/11/2020

****Power of Pictures - Angels, are images and words expressly given by a parent. The messaging is pure, honest, heartfelt, and told with such love and light.****

“Messiah was born with DORV, ASD, VSD, and interrupted aortic arch. He had his first surgery at 5 days old called Norwood and excelled after 3 months of the NICU and rehab. He was scheduled for his 2nd stage surgery at 10 months (Feb 2018). They attempted to do the Rastelli but the patches kept slipping off the VSD. This caused his repair surgery to be 4 (between Feb/Mar). They added PA bands to help with the blood flow and he later developed aneurysms in his heart. This caused a rush surgery where they decided to do the Glenn procedure (May 2018). He came out of that surgery in heart failure. He waited 60 days for a new heart, still inpatient and thriving while he waited for his new heart. The new heart (transplanted Aug 2018) was perfect but his little body was so tired from having 6 OHS in 2018 (7 in his life). He passed away 49 days after transplant due to organ failure. He wasn’t alone ever. His mother was with him everyday all day. He was quite the fighter and the strongest kid I’ve ever known. He’s truly missed and loved deeply. This hasn’t shifted my belief in organ donations and I promised to spend the rest of my life helping to spread awareness for CHD. ”

DORV, ASD, VSD, Interrupted Aortic Arch

4/30/2017 - 10/16/2018

02/01/2020

Welcome to heart Month- day 1"What is CHD?"

Congenital Heart Disease (CHD) is an abnormality in the heart that develops before birth. Congenital is the structure of the HEART. CHD is one of the most common type of birth defects in infants, harming about 1 in 4. The defects can involve the heart, valves, arteries, and veins of the heart.
Symptoms include: abnormal heart rhythms, blue-tinted skin, shortness of breath, failure to thrive/feed, swollen body tissues or organs.
Cures: there is no cure for CHD. Surgeries repair the heart, however babies and kids are never cured.

01/29/2020

Messiah was born 4/30/17 with CHD, his heart defects were DORV, ASD, VSD, and interrupted aortic arch. He had his first surgery at 5 days old called Norwood and excelled after 3 months of the NICU and rehab. He was scheduled for his 2nd stage surgery at 10 months (Feb 2018). They attempted to do the Rastelli but the patches kept slipping off the VSD. This caused his repair surgery to be 4 (between Feb/Mar). They added PA bands to help with the blood flow and he later developed aneurysms in his heart. This caused a rush surgery where they decided to do the Glenn procedure(May 2018) He came out of that surgery in heart failure. He waited 60 days for a new heart still inpatient and thriving while he waited for his new heart. The new heart (transplanted Aug 2018)was perfect but his little body was so tired from having 6 OHS in 2018 (7 in his life). He passed away 49 days after transplant due to organ failure on October 16, 2018, he wasn't alone ever I (his mother)was with him every day all day. He was quite the fighter and the strongest kid I've ever known. He's truly missed and loved deeply. This hasn't shifted my belief in organ donations and I promised to spend the rest of my life helping to spread awareness for CHD.
and his IG:Messiahstrong_chdwarriorangel

12/02/2019

Nov. 27, 2017 Messiah went in for his Gtube surgery. I was very hesitant at first bc I felt like he didnt need to have wasted surgeries when he would have to have heart ones. I just didnt wanna put him thru the stress of another surgery.
Messiah hated the tape on his face and would literally pull the feeding tube daily, sometime multiple times a day. I became a professional at putting that tube in bc Messiah made sure I practice alot😂. I remember leaving Blythdale after training and thinking I'd never be able to do this weekly. I ended up so good at it, he hated it though and watching him fight me was hard to do, but I knew he needed it done. I hated for him to lose weight.
That Gtube was the best thing ever!! Surgery was simple for what we later went through 🙄 his recovery was quick. The Gtube allowed him to have a free face🥰🥰 and what a cute face. This Gtube also allowed his feeding therapy to be better, since the annoying tube wasnt there.
Messiah spent his first month of life not needing to eat from a bottle to feel full. So he never seen the importance of it. Also heart babies have a hard time with the eat,suck,breath combo. They also shed calories while they suck so that also kept Messiah always in the higher weight percentage, since he wasnt sucking. I loved him fat and plumped. Usually heart babies are skinny and he wasnt. Drs were always surprised he was a heart kid bc he was so big in weight. Weight was never a struggle for us.
He also had a paralyzed vocal( from his 1st surgery atc5 days old) cord which made feeding liquids by mouth tricky.
The Gtube ended up being so perfect for him and us, I'm so thankful they have all these feeding options available.

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