My Lyme Coach

04/22/2026

I’m so grateful to sit down with Bloom Tampa Bay to talk about Lyme Disease Awareness—especially the part no one prepares you for: the first 30 days after diagnosis. That window can feel chaotic and overwhelming, and you deserve a clear plan and real support (not more Google spirals).
Watch the segment here: https://www.wfla.com/bloom-tampa-bay/lyme-disease-awareness-2/
If you’re newly diagnosed—or supporting someone who is—comment PLAN (or message me) and I’ll point you to the best starting place.
Bloom Tampa Bay Global Lyme Alliance ILADS

Early diagnosis and treatment are key when it comes to Lyme disease. Founder of My Lyme Coach, Samantha Sloves, talks with Bloom Host, Amber Freeman, about how newly diagnosed patients should navig…

11/20/2025

𝗧𝗵𝗲 𝗽𝗮𝗿𝘁 𝗼𝗳 𝗵𝗲𝗮𝗹𝗶𝗻𝗴 𝗻𝗼 𝗼𝗻𝗲 𝗿𝗲𝗮𝗹𝗹𝘆 𝘁𝗮𝗹𝗸𝘀 𝗮𝗯𝗼𝘂𝘁.
The coming home.
The taking off the makeup.
The checking in with your body to see what the night actually cost you.

There were years where nights like this wiped me out —
where “fun” came with a price I didn’t get to choose.

This time felt different.
Not perfect.
Not symptom-free.
But grounded.
Present.
𝗟𝗶𝗸𝗲 𝗜 𝗳𝗶𝗻𝗮𝗹𝗹𝘆 𝗴𝗼𝘁 𝘁𝗼 𝗯𝗲 𝘁𝗵𝗲𝗿𝗲… 𝗮𝗻𝗱 𝘀𝘁𝗶𝗹𝗹 𝗰𝗼𝗺𝗲 𝗵𝗼𝗺𝗲 𝘄𝗶𝘁𝗵 𝘀𝗼𝗺𝗲𝘁𝗵𝗶𝗻𝗴 𝗹𝗲𝗳𝘁 𝗶𝗻 𝘁𝗵𝗲 𝘁𝗮𝗻𝗸.

𝗧𝗵𝗶𝘀 𝗶𝘀 𝘄𝗵𝗮𝘁 𝗵𝗲𝗮𝗹𝗶𝗻𝗴 𝗹𝗼𝗼𝗸𝘀 𝗹𝗶𝗸𝗲 𝗶𝗻 𝗿𝗲𝗮𝗹 𝗹𝗶𝗳𝗲.
𝗡𝗼𝘁 𝗴𝗼𝗶𝗻𝗴 𝗯𝗮𝗰𝗸 𝘁𝗼 𝘄𝗵𝗼 𝘆𝗼𝘂 𝘄𝗲𝗿𝗲 —
𝗯𝘂𝘁 𝗹𝗲𝗮𝗿𝗻𝗶𝗻𝗴 𝗵𝗼𝘄 𝘁𝗼 𝗺𝗼𝘃𝗲 𝗳𝗼𝗿𝘄𝗮𝗿𝗱 𝘄𝗶𝘁𝗵𝗼𝘂𝘁 𝗹𝗼𝘀𝗶𝗻𝗴 𝘆𝗼𝘂𝗿𝘀𝗲𝗹𝗳 𝗶𝗻 𝘁𝗵𝗲 𝗮𝗳𝘁𝗲𝗿𝗺𝗮𝘁𝗵. 💚

11/10/2025

Lyme is Hard. The pain, isolation, crushing fatigue, brain fog, cost of treatment, loss of careers, loss of relationships, and so much more. Lyme non-profits are funding groundbreaking research to help develop more accurate diagnostic tests and effective treatments. Hold on, even if for just one more day, then one more.

You are not alone and there are resources to help.

If you're in crisis or need immediate help, please reach out right now—talking to someone can make a difference. In the United States, call or text 988 for the Su***de & Crisis Lifeline (24/7, free, confidential support via phone, text, or or online chat at 988lifeline.org).

Crisis Text Line (US): Text HOME to 741741 for 24/7 support.
psychiatry.wisc.edu

International Directory: Use findahelpline.com to search verified hotlines in over 130 countries (phone, text, or chat).

You may also find support and guidance at Lyme support groups:
https://projectlyme.org/resource/support-groups/

https://lymewarrior.us/lyme-disease-support-groups

https://www.lymedisease.org/lyme-disease-support-groups/

For financial assistance programs:
https://projectlyme.org/resource/financial-assistance-programs/

https://lymediseasechallenge.org/financial-assistance/

11/02/2025

Appointments used to make me anxious before they even started.
I’d rush around, forget what mattered most, and leave 𝗳𝗿𝘂𝘀𝘁𝗿𝗮𝘁𝗲𝗱 with myself.

Over time I realized: brain fog wins when I don’t have a plan.
𝗦𝗼 𝗻𝗼𝘄 𝗜 𝗵𝗮𝘃𝗲 𝗮 𝘀𝗵𝗼𝗿𝘁 𝗽𝗿𝗲-𝗮𝗽𝗽𝗼𝗶𝗻𝘁𝗺𝗲𝗻𝘁 𝗿𝗶𝘁𝘂𝗮𝗹 𝘁𝗵𝗮𝘁 𝗵𝗲𝗹𝗽𝘀 𝗺𝗲 𝘀𝘁𝗮𝘆 𝗰𝗮𝗹𝗺 𝗮𝗻𝗱 𝗰𝗹𝗲𝗮𝗿 — 𝗮𝗻𝗱 𝘄𝗮𝗹𝗸 𝗶𝗻 𝗳𝗲𝗲𝗹𝗶𝗻𝗴 𝗽𝗿𝗲𝗽𝗮𝗿𝗲𝗱.

You can’t control everything that happens in that room,
but you can show up organized and confident in 𝘄𝗵𝗮𝘁 𝘆𝗼𝘂 𝗻𝗲𝗲𝗱 𝘁𝗼 𝘀𝗮𝘆. 💚

If you’ve ever walked out and got in your car thinking “𝘜𝘎𝘏 𝘐 𝘧𝘰𝘳𝘨𝘰𝘵 𝘵𝘰 𝘮𝘦𝘯𝘵𝘪𝘰𝘯 𝘵𝘩𝘢𝘵,” try this next time. It’s been a game-changer for me.

10/19/2025

“If you were my daughter, I’d tell you to stop all this nonsense.”

A doctor actually said that to me.

And the worst part? For a second, I believed him.

That’s what gaslighting does — it makes you question your own body, your own pain, your own truth. You start to wonder if maybe you are the problem.

But you’re not.

You’re a person living in a body that’s been through hell — and you deserve to be taken seriously.

I wish people understood how much damage dismissive medicine can do. How a single sentence can unravel months, even years, of progress.

But I also wish they knew this — you can rebuild that trust. You can find doctors who see you, listen to you, and fight alongside you. They exist.

So if you’ve ever walked out of an appointment feeling smaller than when you walked in — I see you.

You’re not dramatic. You’re not crazy. You’re not broken.

You’re just tired of being told you’re fine when you’re not.

And you deserve better.

💚
This is your reminder: your body’s truth is still valid, even when someone else can’t see it. 💚

10/15/2025

💚 MYTH: “You should be better by now.”
💚 REALITY: Healing isn’t a straight line — it’s a lifetime of learning your body again.

If you’re tired of proving your illness, this one’s for you.

I lost years to being doubted — told it was stress, anxiety, or “just growing pains.”
The truth? Most of what people think they know about Lyme is totally wrong.
And that misunderstanding costs people their lives, their careers, their relationships.

Healing from something invisible means constantly fighting to be believed.
You learn to smile when you’re breaking.
To say “I’m okay” because it’s easier than explaining the thousand ways you’re not.

But you’re not weak for being tired.
You’re not dramatic for wanting answers.
You’re surviving something brutal — and still trying.

If nobody’s told you lately:
You’re doing better than you think. 💚

10/08/2025

The first time I ever saw the GLA Gala, I was 14 years old. I watched through my screen from home, sick, wondering if I’d ever get better. If I’d ever walk again. If I’d ever get to be in that room.

Last night, I was there. In heels. With my boyfriend. Surrounded by people who understand what this community means.

It might not sound like a big deal, but when you’ve had everything taken from you, things like walking in heels or dancing or just being there feel like miracles.

I’m so grateful for every person I met, old friends I got to hug again, and the new ones who make this community what it is.

GLA, thank you for what you do and for reminding me that my pain had purpose. I’m proud to represent this community and to turn what once broke me into something that gives others hope. 💚

10/01/2025

Brain fog isn’t quirky or “cute.” It’s brutal.
It’s being mid-sentence and your thought just… disappears.
It’s trying to follow a conversation but your brain feels like static.
It’s not forgetfulness. It’s a fight.

💚 If you’ve lived it, you know how frustrating it is. You’re not lazy. You’re not broken. And you’re definitely not alone.

👉 Save this for the days brain fog steals your words.

09/24/2025

No one tells you how heavy even the smallest things can feel when you’re sick.
And yet, those “small” things — breathing, resting, listening to your body — matter MORE than anyone on the outside could ever understand. They’re not “nothing.” They’re survival. 💚

09/13/2025

Accepting where you are in your healing journey is one of the hardest parts.
Because no one tells you the truth:
Healing isn’t a ladder. It’s a slinky. Up, down, forward, back. Never a straight shot.

It can feel like you’re circling the same ground…
But if you look closer, you’re still moving.

💚 Your pace is valid.
💚 Your timeline doesn’t have to match anyone else’s.
💚 You’re doing better than you think.

✨ If you’re ready for support that actually meets you where you are → Reset Sessions are open
https://www.mylymecoach.org/booking-calendar/_select-date-time?timezone=America%2FNew_York&referral=service_details_widget

07/23/2025

For a long time, I thought if I could just explain it the right way—if I could be patient enough, gentle enough, detailed enough—people would finally understand.
But sometimes, they still don’t.
And the truth is, that can feel deeply disappointing. It’s confusing to wonder why the people we care about can’t see what’s so real for us. Sometimes it even feels like a loss.
Yet even in the sadness, there comes a quiet clarity: you don’t have to keep bending yourself to fit someone else’s comfort.
It’s not bitterness to stop overexplaining.
It’s not cold to let go of needing their approval.
It’s not selfish to protect the space your healing needs.
Letting go doesn’t always feel pleasant. Sometimes it’s heavy and bittersweet. But it can also be the moment you finally belong to yourself again.
This isn’t about shutting people out. It’s about honoring your reality, even when others can’t fully grasp it.
You are allowed to take up space in your own life—without justifying every step.
💬 If you’ve reached this place—where you’re choosing your truth over constant explanation—I’d love to hear how it feels. You deserve the freedom to stand in your own story.