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Shine a Light NF Walk -Children's Tumor Foundation

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Shine a Light NF Walk -Children's Tumor Foundation

Shine a Light NF Walk is the signature fundraising event of the Children's Tumor Foundation. Over the last ten years it has raised more than $10 million.

The Children’s Tumor Foundation’s Walk Program was established in 2009 as an important national fundraising program to support NF research, raise awareness, and provide support for individuals with NF and their families. In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event, to bring NF out of the shadows and inspire the community to come together to raise critical funds for NF research. If you have any questions, please visit shinealightwalk.org or contact us at shinealightwalk@ctf.org.

12/05/2025

💚📣ATTENTION SHINE A LIGHT WALK NF COMMUNITY📣💙

Today is your LAST CHANCE to hit that fundraising goal!!

Take another look at what you’ve already earned, want to earn, and how close you are to the next level. 🎊

Walk family, we can’t thank you enough for all the hard work you put in for the 2025 Shine a Light NF Walk season. You’ve truly earned you’re super cool gear while joining our mission to 💙💚

12/01/2025

⏰ DEADLINE TO FUNDRAISE: 12/5! ⏰

The deadline to fundraise for your 2025 Shine a Light NF Walk incentives is approaching!

Your fundraising efforts have already made a huge impact by helping us take NF out of the shadows. Thank you for pushing towards our mission to 💚💙

How close are you to the next incentive level? Now’s your chance for some final stretch fundraising and to hit that goal!

11/27/2025

This Thanksgiving, we’re giving thanks for YOU! Our NF heroes, families, and supporters who make the Shine a Light Walk such a powerful movement.

Thank you for walking beside the NF community and bringing hope to families across the country. 💚💙🦃

11/18/2025

Swipe to see some of our favorite smiles! 🤩

Just reminiscing on how much joy you all brought this season. As the pics roll in, we’re reminded how much strength and impact the Shine a Light Walk family brings in our mission to 💙💚

Check out the fun photos from your walk day using the link in our bio! ✨

Don’t see your location? More albums will be added soon!

11/12/2025

Wow, just like that, Florida wrapped up our final event of the 2025 Shine a Light Walk season! ☀️

The Florida NF community showed up big time and shined bright to raise awareness and fuel the fight to . It was an unforgettable day celebrating our NF heroes and the incredible spirit that brings us all together. 💙💚

A huge THANK YOU to Florida’s very own Farida Timal, who passed the walk director torch after 10 amazing years of dedication. We were proud to honor her with the ‘Guiding Light Award’ for her outstanding leadership and heart! ✨

And shoutout to Houston for wrapping up their walk weekend with a success, too!

We might be done walking, but we’re not done fundraising! Keep that momentum going, fundraising for those super cool rewards closes December 5! 💪🎉

11/05/2025

Happy ! 💙

Today we’re proud to feature Isobelle Mick, 19-year-old NF1 hero from our Shine a Light Walk Florida!

Diagnosed shortly before her 3rd birthday, Isobelle’s NF1 was suspected from birth due to several large café-au-lait spots that continued to appear as she grew, along with delayed milestones. Her family found the Children’s Tumor Foundation after she was diagnosed and they’ve been part of our community ever since, hosting fundraisers, attending events, and even participating in Racing4Research! 🏁

Each year, Isobelle looks forward to the Shine a Light Walk as a place to meet new people, raise awareness, and feel a sense of belonging.

Isobelle shares, “I participate in the walks because it helps me feel a since of belonging. I was a spontaneous mutation so I am the only one in my family with NF. Most of the time I feel isolated due to not having anyone near me that has NF and can understand what I’m going through. The NF walks gives me a signs of belonging and an odd sense of comfort. I’m around people with the same condition who can relate, as well as seeing people that look like me, they have spots, freckles, and bumps over their body.”

And of course, Isobelle says she loves getting the chance to scream at the top of her lungs!

She leaves us with a quote as a reminder that every person is enough, just as they are:

“Today is coming to be a good day and here’s why, because today you’re you and that’s enough” - Dear Evan Hansen

Thank you so much for sharing your story, Isobelle! Looking forward to your bright energy at Florida’s walk on Sunday 🎊

Good luck to Florida and Houston this weekend as they finish out our Shine a Light Walk season!

10/31/2025

Wishing our Shine a Light Walk family a safe and happy Halloween! 🎃 💙💚🧡

Together, we’re proving that even in the spookiest season, our light is brighter than any jack-o’-lantern ✨

Shout out to New Jersey for getting in the spirit by painting pumpkins while raising awareness to !

10/09/2025

A peak into the Carolinas fantastic walk this past weekend! 🎉

More than 160 supporters gathered on Saturday to rally for the Carolinas NF community, raising nearly $103,000 in our effort to 💚💙

A meaningful day for spreading love and awareness in honor of our NF heroes 🫶

We’d also like to congratulate the Denver, New Jersey, and New York NF communities on rocking their walks too!! 🌟

Good luck to Cleveland with their first walk on Saturday! We know you’ll crush it 👏

Thank you to everyone who’s joined and supported the Shine a Light Walk this season! Keep up the great work!

09/10/2025

✨ Meet Claire Flanagan, this week’s star 💫

Diagnosed with NF1 last May, at only 3 years old, Claire has already shown incredible strength. Since her diagnosis, she has faced countless MRIs, doctors’ appointments, tumors, and medications. NF has brought many challenges for Claire and her family, but through it all, they remain committed to walking beside her every step of the way.

This year marks the very first Shine a Light Walk Cleveland for Claire’s family. To honor her, they formed Claire’s Crew. A team dedicated not only to supporting Claire, but also to spreading awareness and fundraising for the NF community.

For the Flanagans, the walk is more than just an event. It’s a chance to connect with others, raise awareness, and bring hope to families who share the same journey.

Candace shares:
⭐ “It is important to us to be there to help support everyone who is going through this and to help spread as much awareness and funding as we can. Since there is no cure, we try to do as much as we can to help support Claire and all the individuals going through this disease.”

Together, Claire’s Crew will shine a light for Claire and for all our NF Heroes. Thank you for sharing your story 💡💙

Join us and Claire’s Crew for the first Cleveland Shine a Light Walk this year!

09/03/2025

Welcome back to another ! Today we recognize 3-year-old Isabelle Mota, the heart of Team Izzy Bear for the Shine a Light Walk Southern California. ☀️🧸

Isabelle’s mother, Darlene first connected with Children’s Tumor Foundation through the website after Isabelle was diagnosed with NF1 at one year old.

Each year they look forward to meeting more people and showing our NF heroes they’re not alone in this fight.

Darlene shares, “It’s hard. I am just learning what her future holds. This walk is important because we need more visibility on this diagnosis.” Thank you for sharing your story 🫂

Join Team Izzy Bear, and countless others as we come together to 💚💙

08/27/2025

This we want to congratulate Utah, our first walk of the season, for an amazing event!

Over 100 people came out to Shine a Light on NF, raising over $19,000 and counting!

We celebrated 41 NF Heroes and had a blast!

Thank you to everyone who joined and supported the NF community this weekend 💙💚

08/20/2025

✨ Happy ! ✨ Can you believe the very first Shine a Light Walk of the season is only 3 days away?! 🎉

We’re so excited to kick things off in Utah this weekend, and we’re honored to introduce Cora Glackin from Team NF1 Mutation Nation! 💙💚

Cora was diagnosed with NF1 when she was less than a year old, part of a family of five known generations of NF Heroes. From the start, her parents, Wendy and her husband, have worked as a team to stay proactive. Setting aside funds for medical bills, paying attention to NF red flags, and making sure Cora receives the best care and educational support possible, even when it means sacrifices in other areas of life.

Wendy first discovered CTF and the Shine a Light Walk through her own search for support navigating a child’s diagnosis. Since then, the Walk has become an opportunity to connect with other parents and kids who understand, to raise awareness among family and friends, and to give Cora the chance to meet others who share her struggles and remind her she’s not alone.

Every year, their family looks forward to seeing the NF community gather in one place, walking side by side toward the same goal. As Wendy puts it:
✨ “It is a place and a time people from all backgrounds share one thing in common (NF) and the same goal—to End NF.”

Thank you, Wendy and Cora, for sharing your story with us. 💙 We can’t wait to walk with you and celebrate the start of another powerful season this weekend in Utah! 🌟

Address

697 Third Avenue, Suite 418
New York, NY
10017

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+12123446633

Website

http://shinealightwalk.org/, https://ctf.canto.com/v/SALW2025/landing?viewIndex=0

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In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event to bring NF out of the shadows and inspire the community to come together to raise critical funds for NF research.